I read your bio and found some similarities with my experience. I have been dealing with major stress for tha last 3 years which initally started my hair loss. Initially I was told I had AGA and at the time I had a ton of hair!! In my blood work everything was normal. I was shocked. I was put on rogaine which i shouldn't have done because it made my hair fall out even more. Then is caused contact derm and psoriasis on my scalp. Now I am shedding huge handfuls from stopping it. I recently just had more tests done an found out that I have almost no progesterone and low estrogen. I am 37 and pre menopausal. Its amazing what chronic stress can do to you. I am on a ton of supplements, like you were, and I am trying to lower the stress in my life, or how I react to the stress. I am just frustrated with dr's. I can't find one who will do a biopsy, and now I am told I have chronic TE. I was actually told to take propecia. I am scared to take anything new because of the rogaine experience. I want the biopsy because my sister has had spots of AA and I want to rule out if I have diffuse AA. Overall this is a frustrating experience ans I will soon be following you in doing the shave thing and getting a wig. I am trying to prepare my husband for this out come, I hope he can handle it. Sounds like yours is very supportive! Mines a little in denial. Well... sorry about the monologue but thanks for the invite and its nice to meet you!!
Hi Christy, incidentally, I had a biopsy when I started losing my hair, it came up as AGA. Well, this did not make sense to me because I was losing hair everywhere. It started with my eyebrows and then everything followed. I got every test imaginable...everything came up negative. Then about a year and a half ago I went to a reputable hair specialist doctor. Oh, I forgot to mention that my toenails were being affected. Anyway, he adamantly said I had diffuse alopecia areata. So, I don't know how reliable a biopsy is when DAA is involved.
Heather
Hi Christy,
I thank-you for the friendship add. I sure do love your hair peice its gorgeous. I usually dont go out with my turban exept for that one time. This is why my husband has decided to build a fence at my house so I can go out in my turban or even bald wthout anyone snooping over. I usually wear my wigs everyday until after dinner so that I can get comfy, I sure do love my turbans they are quite soft to the head and comfy to sleep in.
I can't bring myself to look in the mirrior much anymore when I am bald or lse I cry and get angry at the man upstairs asking "why me" as most of us have i'm sure. I'm only hoping things will turn out for all of us dealing with hairloss so that we never feel nothing but happiness and accept who we are as being bald, I know it's a long road ahead for that one but it is my hope.
HI Christy! Thanks for introducing yourself and adding me! FPB sucks!!!! I'm having an awful time dealing with is as a 30 year old single woman. All my friends have gobs of hair and life just isn't fair. They have other hard things they have to deal with, but this is mine (ours). You truly look beautiful in your pictures, bald and with the wig!!
Finally getting back to reality here. Sorry I didn't reply sooner. We were in Vegas last weekend and I wore wigs all the time except when sleeping. Decided to not wake up every hour to check if my head was covered in case my husband saw it. We had a great time because I let myself be me again. Now, if I could only do this all the time... He said he didn't mind so much about the hair but hated my eyebrows going. Thankfully the lashes are still there (for now). He helps a lot though with putting on the fake eyebrows for me. Of course, I have to shave first. Someone said "alien looking" and that's how I feel. I would love to "play" with the wigs, color and length but my husband insists that all be the same as when we first met. How do I get him to relax in that way? I truly feel that, if I have to "suffer" through this, then I might as well have fun! But I can't get him to go along with "fun." But... why should I have to have permission from him to do what I want? I guess I'm using him as the scapegoat for not doing what I truly want to do here. Thanks for listening!
Hi again, Christy -- Is that your husband in the photos? My other half has a ton of hair, at times that is difficult for me! But he is very supportive of me, and we married just as I was beginning to wear hair. I lost too much hair in front (very rapidly) to feel comfortable in anything other than a full wig. I started wearing full lace wigs since this past spring. I am still learning how to wear them, and I have my remaining hair still long (not quite ready to axe it all off - I am sure it will not grow long ever again). I don't know how I'd have managed to deal with this loss without the internet resources; I know no one 'in the flesh' with significant alopecia; so the internet is a huge support system for me. Glad to find my way here :)
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Heather
love the pic in blonde
nice to meet you :)
liselle
I thank-you for the friendship add. I sure do love your hair peice its gorgeous. I usually dont go out with my turban exept for that one time. This is why my husband has decided to build a fence at my house so I can go out in my turban or even bald wthout anyone snooping over. I usually wear my wigs everyday until after dinner so that I can get comfy, I sure do love my turbans they are quite soft to the head and comfy to sleep in.
I can't bring myself to look in the mirrior much anymore when I am bald or lse I cry and get angry at the man upstairs asking "why me" as most of us have i'm sure. I'm only hoping things will turn out for all of us dealing with hairloss so that we never feel nothing but happiness and accept who we are as being bald, I know it's a long road ahead for that one but it is my hope.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.