Trina's Comments

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At 9:36pm on April 8, 2008, Tray (Jazz's Mom) said…
ok. its just hard sometimes but when im with my family its like alopecia doesnt even exsist to me and i just have fun.
At 9:54am on April 7, 2008, Tray (Jazz's Mom) said…
That would be nice. I'm not that close though. We are about 3 1/2hours away from Disney.
I will find out if there is a chapter in my area.
Have fun at Disney. Jazz and I are taking another disney cruise next week! Your dauhter would love it. I think i had more fun than Jazz did. lol.

That Noni really works! let me know how you feel after! Your energy level will go from 0 to 100! My mother went from getting tired from walking to the bathroom to walk a flight of stairs with no problem at all!!!!
I have problems sleeping, I am going to get the capuls for myself.
At 8:51am on April 7, 2008, Tray (Jazz's Mom) said…
I see that you and your daughter went to the Wizards game. Was that this year? Not sure of the players name but he also has alopecia right. I would like to take my daughter to the next one. I saw this on NAAF but there were no specific dates. Please inform.
At 8:50am on April 7, 2008, Tray (Jazz's Mom) said…
Does this sound like a sub for biotin?

Hi Tray,
This is Dr. Li from Merry Clinic. Thank you for visiting our website.
Our Biotae treatment is designed to balance body system, supply essential nutrients for the hair. It helps stimulate the follicle cell to produce the hair and prevent the hair loss. It treats the root of alopecia without causing any side effect.
For your daughter's 's condition, I suggest her take 4 Biotae capsules each time, twice daily along with using Biotae Scalp Oil 2 times daily on her bald patches or thinning area. You can open the capsules; mix the herbs with juice to let her take if she can not swallow the capsules. The internal treatment is much more important.
I also recommend her to take Children's vitamin together with our herbal treatment.
Usually, her hair loss will be under control within one month. She will have some hair growth in about 2 to 3 months.
If you have any question during the treatment, please feel free to contact with me.

Please refer to http://www.merryclinic.com/hairloss/treatment.htm

Dr. Li
At 7:56am on April 7, 2008, Tray (Jazz's Mom) said…
Hi. Hope you and your daughter had a great weekend.

I went grocery shopping over the weekend and was reminded of a juice called Noni. Shortly after my mother had a stroke she started on this juice along with the rest of my family. It works for the entire body.
My mother used to be tired, have aching muscles and all sorts of things.. Well a just a few weeks after consistently drinking the Noni juice she had energy and less aches every day.

I bought some for my daughter to start taking (there are different name brands depending on which you have, my daughter takes one teaspoon for every 17lbs she weighs). The guy that was telling me about it over the weekend said that it is very, very good for the immune system. Which we both know is the root of alopecia. He had knowledge of alopecia and said that this would be great for the immune system. On top of that it has all sorts of vitamins and minerals that are just good.
I myself can’t stomach the taste but they also have it in capsules and candy. I will be picking up the capsules for myself. Per the gentleman it can be added to a drink instead of taken directly and it won’t loose any strength.
Maybe you should read up on it and add it to your daughter’s vitamin source (http://en.wikipedia.org/wiki/Noni). You can get it from a health food or vitamin store.

Sharing the knowledge.
Let me know what you think.
At 12:04am on April 6, 2008, emily said…
thanks for your comment, much appreciate you taking the time to read me. also, yeah, so true....love that we can just go to the store and buy hair. its actually pretty amazing that we can change our hair whenever we feel like....makes us all stronger... kids, adults, all of us. be well..hearts and flowers.
At 5:57pm on April 4, 2008, Susan said…
Your little girl is absolutely gorgeous!!! Like her moma!! :)

I know it must be hard to have a child go through this hair loss stuff. It is bad when we have to deal with it but you know what? Kids are so resiliant, they do better than us alot of the time.
At 7:40am on April 4, 2008, Tray (Jazz's Mom) said…
I am looking for another dermatologist now. This will be the third time changing. They just seem that they dont care. They just say "...there is no cure... put this on it and see me in four months." I am ready to go to the specialist in Tampa I've heard about but dont know much about.

He told you to use Elidel? My daughter currently uses that on her arms to help her eczema. Maybe will apply it to her scalp, although she doesnt itch much.

Thanks for the info on the Biotin and the other. I will let you know how it works for us.
At 6:56am on April 4, 2008, Susan said…
Im good girl, I've just been busy as heck. I plan on getting on here this weekind and catching up though. :) How are you?
At 10:31pm on April 3, 2008, Julia said…
Thank you for your words...
At 8:18pm on April 3, 2008, Julia said…
Hello Trina, I just saw that my 6 year old has a small dime size patch. She's just like..."oh...ok".

Now I know how I deal with it...ME, but her...GOODNESS! I'm more than ever on this MISSION for awareness and EDUCATION! so it can be a normal part of EVERYONE'S day, to see someone with patches or a bald woman.

Take Care
At 12:18pm on April 2, 2008, Daria said…
Hey Trina. I'm in Baltimore, near White Marsh Mall. Where did you get your brows done? I'm going to a consultation in Columbia on Tuesday.
By the way, your little girl is BEAUTIFUL!
At 12:18pm on April 2, 2008, Tray (Jazz's Mom) said…
Hello,
Hope things are well with you and your daughter. I was reading the dicussions and saw where you were talking about boitin? Can this be ordered online? the topical treatments given to my daughter by the dermot. is not working for her but against her. Looking for something to use!
At 11:17pm on March 31, 2008, Cheryl, Co-founder said…
Hi Trina, your daughter is a very lucky little girl. When you think of it, she does not have to go through this alone and neither do you :). I am sure that you will both teach each other alot about self-acceptance and what is really important in life. Take care and keep in touch. Cheryl
At 9:27pm on March 30, 2008, Cheryl, Co-founder said…
Hey Trina,

I wanted to drop by and say hi to you and see how you were doing? How is your daughter?
At 4:11pm on March 28, 2008, Cindy said…
Hey Trina, I bough the Biotin shampoo today and a multi vitamin with that 63 mcg's as well as omega, etc..I hope it can do something for her..Cindy
At 8:22pm on March 27, 2008, Tray (Jazz's Mom) said…
I would love for our children to discuss this. We know no one her age or any one at all beside online that may be dealing with the issue.
I am checking on the conference. I really want my daughter to go! I'm checking into it. Delete Comment
At 7:19am on March 27, 2008, Cindy said…
You Trina, I think having kids involved in sports is a great self-confidence booster. It really helps mold them, especially when they love what they are doing and are so involved in the sport. Samantha has been figure skating since age 3 and she is preparing for her 2nd competition. She loves it and is good at it. In addition, she has extra supports there that really build her confidence. Samantha also loves swimming and her teacher wants her on her swim team come the fall. We will see, but these are the people I need in Sam's lives right now...Good luck to in the competition. Cindy
At 9:04pm on March 26, 2008, Cindy said…
Trina, you and your daughter are stunning..How much hair loss does she have? Do you mind if I ask you where you are located. I am in Mass. Cindy
At 12:03pm on March 23, 2008, Janna said…
Wow, Trina, of course I'd call you beautiful. You're gorgeous! I find it amazing just how many people who have alopecia are just stunningly beautiful.

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