help with knowing what to do to help their children with school. I am leaving Thursday morning for the NAAF conference in Indianapolis, Indiana to be a co-facilitator for one of the sessions on Dare to Be Bare...being openly bald. I have a questionairre and release form I could send you to use as a guide for thinking about your family's journey with alopecia. If Taylor-Jean would like to share her success story in this venue, please email me at psfitros@comcast.net with your email address

Cynthia,

I am so happy to hear how being open about alopecia is helping Taylor-Jean's class to understand and be supportive. I find that to be the case over and over again. Please see my website at http://boldlybaldwomen.com for my story. I am writing a book titled Boldly Bald Women and I would love to have you and Taylor-Jean tell me your story. I am weaving threads of many stories together and like Sanah there are many parents of children who need

HI,
thank you so much for your letter! It's so nice to know that there are other girls/moms out there that are going through what camille is. Camille would love to have a pen-pal! She is so excited! She said finally someone who will understand what I am going through!! We live in Huntley, Illinois which is about 45 mins from chicago! our e-mail is mlplook@aol.com! Camille can't wait to hear from Taylor-jean!!
Melissa~

I know what you mean by not signing in for a while. I've been so busy with softball and everything that I just haven't had the time to get on the computer. I wish I could meet your daughter and talk to her in person! But sure, have her leave me a comment. I was pretty shy at the age of 8 too but once I started opening up and telling people, I got a lot of confidence. My mom used to come into my elementary school and talk to my class about Alopecia and explain it to my classmates. They all took it very well and maybe Taylor-Jean's classmates would take it well too? Anyways, I'll be looking forward to talking to her!

Hi Cynthia, my daughter is 8 with AA and we live near Edmonton. We are new to this site. We only discovered this 2 months ago. She has 5 spots right now but is still able to hide them with the right headband and such. Hope you both are doing good.
Karen

Hi Cynthia and Taylor-Jean! I'm Peyton and I have also had Alopecia since I was two years old! I lost all of my hair in about second or third grade and (most of) it grew back when I turned 12. I just wanted to drop by and see how you and your daughter are doing!
-Peyton

Oh, I'm so glad the NAAF video worked out for you!
Big HUGS!

Hi I am ten nearly eleven and Im waiting for my hair to grow back.

Alyssa would love to have a penpal. Alyssa has had alopecia since about 2.5. At the moment she has most of her hair but at one point about a year ago was missing over half. What is your daughter's name. Alyssa is in 3rd grade.

Lori

Hello:

I am sorry that you are so far away from us. You can visit www.childrensalopeciaproject.org and register and get a username so you can see what is going on in the world of CAP. We always have something for the CAP Kids every month, one month it's based on self-esteem and the next month is something fun. Email - info@childrensalopeciaproject.org to get on the email list too. When you email ask about the chat room times for girls and for parents. We have a college girl from Portland, OR. who does the chats for girls.

Good luck and stay in touch.

Jeff Woytovich
Founder
www.childrensalopeciaproject.org

Hey Cynthia,
Can't wait to see pics of your kids. I would love to answer any questions you have. I'm sure we can all learn alot from each other. G

Hello Everyone!
Just so you know, I'm a far cry from being good with computers. As soon as my husband can help me get some pictures onto the computer, I will post them. I can't wait for you all to meet my beautiful daughter........Taylor-Jean. I also have a very handsome son (who does not have Alopecia), and his name is Kyle. My children are my most precious gift and I am so excited about sharing some photo's with everyone! See you all soon,
Cynthia

Let me know how things go with you and your daughter and the school, okay? And I'd love to know how you like the book!

Hi its Kaiana im new here too.I have totalis and ive only just lost my hair. Ive had alopecia for a year and also lost my elashes and eyebrows.

Wow, I know exactly what you are going through. When I was writing the book, I talked to a lot of women who were going through the same thing with their daughters or sons. I absolutely think it would help you to read my book. You can get it on the website on my page at the bottom, or go to Amazon.com or any other online book stores.
And YES, there is a free video you can get from the National Alopecia Areata Foundation that is just what you want. Go to www.naaf.org.
Hugs!

Hello to all that left a comment for me. It has been quite awhile since I first joined, but I have now built up the courage to talk and I can't wait to get started! I guess that I felt so alone for so long that it was really strange to hear about so many others with this challenge. Thank yu again to all that welcomed me to Alopecia World!! Cynthia H.

Bonjour Cynthia,
Welcome! There is a group of Canadians (see under 'Groups')...do not know where you are from Canada... Si tu es du Québec, ns sommes au moins 4 ;-)
Diane

Hi Cynthia,
I know sometimes it's harder for the parent than it is for the child! I wrote a book and have a chapter on parenting kids with alopecia. The book is called "If Your Hair Falls Out, Keep Dancing!" and you can get it on Amazon or on the link on my page. I think it will help you with some support!
Hugs, LeslieAnn