Tanya (Ash's mom)'s Comments

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At 2:26pm on December 21, 2013, Wendy said…

This system is free for kids if you live in Ohio.

http://www.youtube.com/watch?v=DgcLGYmyvTw

At 7:09pm on May 13, 2012, Evalyne Cambron said…
Hi Tonya, my daughter is a competitIve cheerleader in Arizona. She is 12 and almost completely bald at this point. I got her a wig and the wig place is putting me in touch with someone who does hair bonding. I'm trying to find the best solution for her because she wants to make sure that she doesn't have issues at cheer. She just found out that she made a level 5 team and ow has this hair worry. Any advice would be appreciated. You can also call me if you like. It may be easier than typing it all out. My cell is 602-540-2890.
Thanks,
Evalyne
At 11:42am on June 18, 2011, KWM said…
Hi Tanya,
I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the system and if you have any thoughts. My daughter's hair is short but she has a good bit on the sides with the top being very thin. They are suggesting that we shave the top of her head and leave her natural hair on the sides to blend in. Having used the system, what are your thoughts about that? Does your daughter say it is hot or itchy? We are very nervous. Thanks for sharing your thoughts.
Kelli
At 10:21am on June 18, 2010, someone gave Tanya (Ash's mom) a giftAnonymous
At 8:01pm on July 23, 2009, Tanya (Ash's mom) said…
Long time since I've visited alopecia world, but wanted to update everyone on my daughter. She is doing amazing. We have been doing the virtuesse hair system since March and it has changed her life. Every 6 weeks she gets new hair and is now more confident in herself that she is having fun with them changing colors and lengths. She is able to do all the normal activities kids do over summer. I'll post more pics soon.
At 1:04pm on April 13, 2009, Lauren said…
Thanks so much Tanya. How long do you think the Virtuesse looks good before you need to put another one on. Does it really stay on well? Thanks again--I really appreciate your advice!! Lauren
At 10:46pm on April 6, 2009, Jamie said…
Hi Tanya, I was wondering how the system is working for your daughter? I had looked this system myself, but was afraid of if. How often does she get it changed, does it look natural? I need to do something soon.
At 10:14am on March 3, 2009, Sheila Burton said…
Hi Tanya
I'm so sorry that you and Ashton are having such a horrible time. I fully understand what you mean about feeling helpless, it made me feel very guilty that I couldn't make her alopecia better. Hayley's now 21 and coping very well with alopecia , I hope that gives you some encouragement although I know it doesn't solve your current problems. Its so upsetting that these bullies think its ok to behave in the way that they do, by targetting vulnerable people. Rose Marie has some good advice and I hope that things improve for you both very soon. I'm glad that Ashton has the support of her cheer friends and of course yourself because understanding people can make all the difference even if they can't make difficulties disappear. Take care
Sheila
At 5:29pm on February 11, 2009, LeslieAnn Butler said…
Oh, that makes me so happy that she is doing better!
Big hugs to both of you.
LeslieAnn
At 11:47pm on February 9, 2009, Cheryl, Co-founder said…
Hi Tanya, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
At 3:30pm on February 8, 2009, LeslieAnn Butler said…
Hello and welcome, Tanya!
I know how hard it can be. Especially when you're a teen. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's a really informative and fun book and it might help Ashton feel better. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
At 7:34pm on February 6, 2009, Cherylnz said…
Hi Tanya and Ash,
Welcome to Alopecia World
At 6:37pm on February 6, 2009, Jill said…
Hi. I saw your blog about the teasing. I'm not a parent but I lost all my hair the summer going into 7th grade. I think teasing has to do with ignorance. Kids are more understanding and less likely to tease when they know what's going on. I found it a blessing to learn early on who my real friends are. I'm not sure if this make sense to you or not. Feel free to message me anytime.

Jill

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