Hi Tonya, my daughter is a competitIve cheerleader in Arizona. She is 12 and almost completely bald at this point. I got her a wig and the wig place is putting me in touch with someone who does hair bonding. I'm trying to find the best solution for her because she wants to make sure that she doesn't have issues at cheer. She just found out that she made a level 5 team and ow has this hair worry. Any advice would be appreciated. You can also call me if you like. It may be easier than typing it all out. My cell is 602-540-2890.
Thanks,
Evalyne
Hi Tanya,
I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the system and if you have any thoughts. My daughter's hair is short but she has a good bit on the sides with the top being very thin. They are suggesting that we shave the top of her head and leave her natural hair on the sides to blend in. Having used the system, what are your thoughts about that? Does your daughter say it is hot or itchy? We are very nervous. Thanks for sharing your thoughts.
Kelli
Long time since I've visited alopecia world, but wanted to update everyone on my daughter. She is doing amazing. We have been doing the virtuesse hair system since March and it has changed her life. Every 6 weeks she gets new hair and is now more confident in herself that she is having fun with them changing colors and lengths. She is able to do all the normal activities kids do over summer. I'll post more pics soon.
Thanks so much Tanya. How long do you think the Virtuesse looks good before you need to put another one on. Does it really stay on well? Thanks again--I really appreciate your advice!! Lauren
Hi Tanya, I was wondering how the system is working for your daughter? I had looked this system myself, but was afraid of if. How often does she get it changed, does it look natural? I need to do something soon.
Hi Tanya
I'm so sorry that you and Ashton are having such a horrible time. I fully understand what you mean about feeling helpless, it made me feel very guilty that I couldn't make her alopecia better. Hayley's now 21 and coping very well with alopecia , I hope that gives you some encouragement although I know it doesn't solve your current problems. Its so upsetting that these bullies think its ok to behave in the way that they do, by targetting vulnerable people. Rose Marie has some good advice and I hope that things improve for you both very soon. I'm glad that Ashton has the support of her cheer friends and of course yourself because understanding people can make all the difference even if they can't make difficulties disappear. Take care
Sheila
Hi Tanya, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
Hello and welcome, Tanya!
I know how hard it can be. Especially when you're a teen. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's a really informative and fun book and it might help Ashton feel better. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
Hi. I saw your blog about the teasing. I'm not a parent but I lost all my hair the summer going into 7th grade. I think teasing has to do with ignorance. Kids are more understanding and less likely to tease when they know what's going on. I found it a blessing to learn early on who my real friends are. I'm not sure if this make sense to you or not. Feel free to message me anytime.
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Tanya (Ash's mom)'s Comments
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This system is free for kids if you live in Ohio.
http://www.youtube.com/watch?v=DgcLGYmyvTw
Thanks,
Evalyne
I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the system and if you have any thoughts. My daughter's hair is short but she has a good bit on the sides with the top being very thin. They are suggesting that we shave the top of her head and leave her natural hair on the sides to blend in. Having used the system, what are your thoughts about that? Does your daughter say it is hot or itchy? We are very nervous. Thanks for sharing your thoughts.
Kelli
I'm so sorry that you and Ashton are having such a horrible time. I fully understand what you mean about feeling helpless, it made me feel very guilty that I couldn't make her alopecia better. Hayley's now 21 and coping very well with alopecia , I hope that gives you some encouragement although I know it doesn't solve your current problems. Its so upsetting that these bullies think its ok to behave in the way that they do, by targetting vulnerable people. Rose Marie has some good advice and I hope that things improve for you both very soon. I'm glad that Ashton has the support of her cheer friends and of course yourself because understanding people can make all the difference even if they can't make difficulties disappear. Take care
Sheila
Big hugs to both of you.
LeslieAnn
I know how hard it can be. Especially when you're a teen. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's a really informative and fun book and it might help Ashton feel better. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
Welcome to Alopecia World
Jill
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.