Hi Mike - that sounds great. Apparently the Facebook group was archived?? I haven't been on that particular page in a while. Please feel free to contact me on Facebook; hopefully I don't have my privacy settings so restricted that you can't find me. Let me know!
I believe we've spoken before. If you're ever near PA or Saskatoon, would you be interested in meeting up with us? Logan is 15 now and going through "those teenage years". He doesn't like to talk about alopecia at all and I sometimes wonder if it's affecting him at all. Overall he seems like a happy kid but I speculate he would feel relieved if he actually had a chance to sit down and talk to somebody who shares similar experiences. Let me know. Thanks!
Hi Mike,
New to AW-Just been running through the Canadain Group messages and ran across one where you had asked if there was anyone here from Saskatchewan. Why yes I am :) Regina area.
I think that sounds like a great idea. I started a group on Facebook called Saskatchewan Alopecia with the hopes of starting some kind of support group. I've neglected it for a while but there are a few members - mostly my friends and family. We're in Prince Albert; where do you live?
Thanks Mike, I sometimes wonder how I would of felt if when I first lost my hair and found the site. I find it amazing that people can now find immediate support with others who are going through the same thing. Take care, Cheryl
i will admit it i have naired my head!!!! and it workes but i used the most gentle one i could find! i used it in the summer when i start to grow the small white hairs that bug me !
Hey Mike, I don't know of any support groups in the province - I tried to look when I first moved here ten years ago but I didn't have any luck; Very few people even knew what it was and I was still trying to figure it out for myself. There are actually a number of people in Regina who have it, though I don't really know any of them too well - I am actually a very shy in person so I haven't approached the few people I see when I am out and about.
I never went through the re-growth, my hair just stoped growing and that was pretty much the end of it, though it did take close to a year for it to all fall out. I have about twenty or so hairs on my head and one stubborn little hair on my left arm which shows up every few weeks or so on my left arm I named it Spike and sometimes he brings friends and I fear that I might turn into a werewolf :)
Hey Mike, I just read your story, I know exactly what it is like to live in smalltown, SK (and also the "big city") and encounter people who don't have a flippin' clue about alopecia. Hopefully your hair will decide to either go one way or the other so you can perhaps find you feel comfortable as either a hair-ed person or as a full-time alopecian:)
I think the one encounter that probably meant the most to me was about seven years ago, I was working retail and a guy came into my store who was minus one leg - the whole thing from the hip - so I thought 'heck - if he can get over losing a body part, so can I.' I never even spoke to the guy, he was just meeting his wife. Up until this point I hadn't looked at losing my hair as losing a body part - people had suggested it but I hadn't really seen it until that very moment...
I know a few guys with alopecia and I have noticed that over time that skin tone does even out - even on us girls who don't always have the freedom of walking around without covering.
BTW, what station are you on?? Do you broadcast to Regina?
Hey mike, thanks for the comments and the question. The spots are still noticable with the Headblade. The headblade is basically like any other razor thats not electric. However I will say what is really noticable to us, may not be to others. My friend asked me why I shaved my head and so I showed him the back of my head where the spots are really noticable and he said he wouldn't have noticed them unless I pointed them out. I think it all has to do with the fact that it's us and we dwell on the things that are wrong.
And even the ones who have noticed the spots on me say that its not like they jump out (and my hair is a darker color at the root and base of it. I've found for the most part that people may ask questions once but then they act like nothings different. And that is how it was with the girls who are on my soccer team I coach (they're all under 13) and we all know that kids can be the most brutally honest without meaning to be.
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
Mike's Comments
Comment Wall (29 comments)
You need to be a member of Alopecia World to add comments!
Join Alopecia World
Hi Mike - that sounds great. Apparently the Facebook group was archived?? I haven't been on that particular page in a while. Please feel free to contact me on Facebook; hopefully I don't have my privacy settings so restricted that you can't find me. Let me know!
Melanie Markling
I believe we've spoken before. If you're ever near PA or Saskatoon, would you be interested in meeting up with us? Logan is 15 now and going through "those teenage years". He doesn't like to talk about alopecia at all and I sometimes wonder if it's affecting him at all. Overall he seems like a happy kid but I speculate he would feel relieved if he actually had a chance to sit down and talk to somebody who shares similar experiences. Let me know. Thanks!
Jeffrey
New to AW-Just been running through the Canadain Group messages and ran across one where you had asked if there was anyone here from Saskatchewan. Why yes I am :) Regina area.
Hi Mike,
Stoping in to say hello!
How are things with you?
All is good here.
Jeffrey
I think that sounds like a great idea. I started a group on Facebook called Saskatchewan Alopecia with the hopes of starting some kind of support group. I've neglected it for a while but there are a few members - mostly my friends and family. We're in Prince Albert; where do you live?
Great Page!
Whats up?
Jeff
It's been awhile since we last chatted.
I enjoyed reading your most recent Blog.
It made me wonder why I have never cried about my Alopecia.
Jeff
I never went through the re-growth, my hair just stoped growing and that was pretty much the end of it, though it did take close to a year for it to all fall out. I have about twenty or so hairs on my head and one stubborn little hair on my left arm which shows up every few weeks or so on my left arm I named it Spike and sometimes he brings friends and I fear that I might turn into a werewolf :)
I think the one encounter that probably meant the most to me was about seven years ago, I was working retail and a guy came into my store who was minus one leg - the whole thing from the hip - so I thought 'heck - if he can get over losing a body part, so can I.' I never even spoke to the guy, he was just meeting his wife. Up until this point I hadn't looked at losing my hair as losing a body part - people had suggested it but I hadn't really seen it until that very moment...
I know a few guys with alopecia and I have noticed that over time that skin tone does even out - even on us girls who don't always have the freedom of walking around without covering.
BTW, what station are you on?? Do you broadcast to Regina?
And even the ones who have noticed the spots on me say that its not like they jump out (and my hair is a darker color at the root and base of it. I've found for the most part that people may ask questions once but then they act like nothings different. And that is how it was with the girls who are on my soccer team I coach (they're all under 13) and we all know that kids can be the most brutally honest without meaning to be.
But best of luck...
MIkry V
Welcome to
Alopecia World
Sign Up
or Sign In
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.