Thank you for your welcome - looking for people who want my contribution(my body) or contributing to experiment and make a successful cure for this disease.
I die daily with a fear about inheriting this disease to my child for whom i am waiting. I dont want him/her to face all that i have faced ...
Thanks for the reply, Cheryl. I have been in touch with CARF, in fact am waiting to hear from a doctor they've recommended as medical sponsor so that I can go ahead and set up a support group here in Phoenix.
My concern (as with many others with CA) is how to keep the head covered - with the inflammation and itching it's pretty well impossible to wear a wig. Don't feel like I want to spend the rest of my life wearing a hat of some sort. Anyone with suggestions?
Thank you Cheryl!!
I want to give you my congratulations for this great site!! From the first time I visited alopecia world I realised that I 'm not alone... Thanks!!
Thanks for the welcome, Cheryl. Nice to meet another canuck - I grew up in Victoria BC but lived in Montreal for 3 years (Dr. Penfield by McGill). Now we live in Scottsdale, Arizona - talk about a complete cultural change!
I'm particularly looking to contact others who have medically induced alopecia, specifically circatricial alopecia. Any place in particular on the site where I can find those? Thanks.
Hello Cheryl- Thank you for the welcome. I'm a children's book illustrator and one of my latest books, titled: Memoirs of a Goldfish was written by a Detroit author and TV news anchor, Devin Scillian. Maybe you recognize the name?
Anyway, thanks again for the welcome. T.B.
Hey Cheryl, my gig June 10th is just a regular gig on my calendar at a cafe in Ardmore, PA. What I recommend you DO come out to is the benefit I've put together to support Children's Alopecia Project, I will be performing along with other musicians I've invited and some surprise guests. Ms. Delaware will be a guest speaker. Takes place Sept. 16 2011 at World Cafe Live in Philadelphia. I will post it here. Proceeds to go to CAP. Check out my blog: http://www.lilianel.org/mfcap.html. Hope you'll consider coming to this event.
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Cheryl, Co-founder's Comments
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I die daily with a fear about inheriting this disease to my child for whom i am waiting. I dont want him/her to face all that i have faced ...
My concern (as with many others with CA) is how to keep the head covered - with the inflammation and itching it's pretty well impossible to wear a wig. Don't feel like I want to spend the rest of my life wearing a hat of some sort. Anyone with suggestions?
I want to give you my congratulations for this great site!! From the first time I visited alopecia world I realised that I 'm not alone... Thanks!!
I'm particularly looking to contact others who have medically induced alopecia, specifically circatricial alopecia. Any place in particular on the site where I can find those? Thanks.
Anyway, thanks again for the welcome. T.B.
Are you joining us for the picnic in Troy, MI on June 4th?
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.