I've got roughly 40 in my group however usually only about a dozen or so make it to the meetings. The package doesn't have a set fee, you can donate however much you want to. I hold most meetings in my home, hopitals/medical clinics are popular as well as restaurants, that's up to you. Take care! :)
Hi Kristine
That's great that you want to help other alopecians! I started my support group through NAAF which you can do online I believe or at least request the forms to do so, they just ask for a small donation and send you a binder full of information, their news letters and pamphlets for your members, events, etc. They require you to meet at least four times a year which is what I'm doing this year. Last year I wanted to meet every month but found that I didn't have a very good turnout that way. Meeting every two or three months seems to work best for us but Canadians are funny that way too sometimes so you may be able to get away with more, depends on the group. I also wrote the local news paper about doing a story on the start of my group and explained what alopecia is and they were really good about getting my story out. You don't have to start your group with NAAF either but they are good to start with at least because they do send all that wonderful info. and you can also get away with meeting more frequently when you do special things like a woman's lunch or some sort of kids event, pub night for the guys/adults, etc. These special events are also a good way to raise money for your group or for donations to alopecia related groups for research or wig grants and such. I hope you have as much fun as I do being a support group leader and I wish you the best of luck. If you ever have any questions please feel free to ask. Take care :)
HI Kristine, My turn ;). It has been a journey with rj and I. First the distance, the immigration issues, even our differences in personality. rj makes me strive. It seems that where I am weak he is strong and where he is weak I am strong. So we are both being stretched and growing daily. Thanks for your support.
Thanks for your sweet words. It sounds like you're doing great! I wish we all lived in the same part of the country and could all get together.
I tried something new this morning...instead of beginning my day with the first thought before getting out of bed being: "Damn! I'm still bald!" (believe it or not, I start many days that way.), I consciously thought "Damn! I'm healthy and special!"
As every month goes by, I realize that my problem isn't ON my head, it's IN my head!
Thanks for the comments. I love your wedding hat - did you design it yourself. I often think about what I might wear if I got married one day if I still don't have hair (not that I've found a husband yet!).
Hi Kristine, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
Hi Kristine,
Exciting about your wedding!
You can have someone make you a wedding cake topper. Google it -- you will find people who will do likenesses of you from your photos.
LeslieAnn
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Kristine's Comments
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That's great that you want to help other alopecians! I started my support group through NAAF which you can do online I believe or at least request the forms to do so, they just ask for a small donation and send you a binder full of information, their news letters and pamphlets for your members, events, etc. They require you to meet at least four times a year which is what I'm doing this year. Last year I wanted to meet every month but found that I didn't have a very good turnout that way. Meeting every two or three months seems to work best for us but Canadians are funny that way too sometimes so you may be able to get away with more, depends on the group. I also wrote the local news paper about doing a story on the start of my group and explained what alopecia is and they were really good about getting my story out. You don't have to start your group with NAAF either but they are good to start with at least because they do send all that wonderful info. and you can also get away with meeting more frequently when you do special things like a woman's lunch or some sort of kids event, pub night for the guys/adults, etc. These special events are also a good way to raise money for your group or for donations to alopecia related groups for research or wig grants and such. I hope you have as much fun as I do being a support group leader and I wish you the best of luck. If you ever have any questions please feel free to ask. Take care :)
Thanks for your sweet words. It sounds like you're doing great! I wish we all lived in the same part of the country and could all get together.
I tried something new this morning...instead of beginning my day with the first thought before getting out of bed being: "Damn! I'm still bald!" (believe it or not, I start many days that way.), I consciously thought "Damn! I'm healthy and special!"
As every month goes by, I realize that my problem isn't ON my head, it's IN my head!
Good luck, and keep on loving the woman you are.
Mary
Thanks for the comments. I love your wedding hat - did you design it yourself. I often think about what I might wear if I got married one day if I still don't have hair (not that I've found a husband yet!).
Exciting about your wedding!
You can have someone make you a wedding cake topper. Google it -- you will find people who will do likenesses of you from your photos.
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.