I went to the conf by myself 2 years ago and it was awesome! I hadn't even had alopecia for a year yet. It really put everything together for me. I knew I wasn't alone and since I have made some of the best friends ever!
Don't be nervous you will not be lonely. You will be surrounded by over 600 men, women, children and their friends/families.
At 10:02pm on February 3, 2010, Pamela Rosse said…
Hi Denise
I love your attitude regarding your AAT, you go girl, I have AAU, I am at a year now since I lost all my hair. It Sounds like we were/are in the same boat when came to losing our hair, my did the same thing, when it started to shed/fall out it went for broke. I was scared & devastated, I found Leslie Ann Butler's book which lead me to AW, my saving grace.
I wanted to introduce myself as we have friends in common, one is the lovely, sweet Heather & another is the lovely Leslie Ann.
Take care.
Thank you for the friend invite!!! :) I have not been to a national alopecia areata conference yet- do hope to this June. so I do not have much info other than what is given on the NAAF website. www.naaf.org - that has lots of details, pictures and dates/place etc. Thinking about going this summer?
Hi Denise
Happy New Year to you as well! I'm watching the tv in anticipation this morning to see if that little groundhog sees his shadow or not, I could use a shorter winter myself (although I know it does get colder way up North where you are). I'll have to check my friends list to see if there's anyone else from around SSM, unfortunately I can't remember off hand (got over 500 people in there, mostly Canadians). There's a woman in Sudbury but she's the closest I can think of at the moment. I'll let you know if I come across anything though. Take care!! :)
I'm pretty new to this aloepecia thing, too. Ive had it for about four years, but the first couple of years I could pretty easily cover my patches. Now I have huge patches and the hair i used to use to cover them has all fallen out. I wear a synthetic wig now, and it has helped my self confidence alot, but it took some getting used to. I'm worried about my first summer with a wig too! I don't want to be hot or get all sweaty and have to take it to get washed all the time. Im just hoping by that time my laser therapy will have made some more progress and I can get by with just hats or a ponytail. Whatever happens, we'll both get through this!
Thanks denise I will keep that in mind. I recently went to a salon in my area and there making me a custom human hair wig. I never realized what a difference there is from the ones ive been buying. The way I look a it I didnt have a clue what to do when my hair started falling out I never thought it would come to a wig. But Im dealing with it better each day.
Hi there Denise. Yes I tried the injections etc when I was 12yrs and I tell you it really was painful. When that never work I just had a feeling inside that this was it for me "the end of the road". It was confirmed later that yr by a doctor that my hair will "never" grow again and his words where so true. Within a week of him confirming that, all my hair had fallen out. So since then I have been wearing wigs and scarves/dooks on my head. I must admit i go through the phases of wanting to having all back, just to experience the wind blowing my hair or my fingers rubbing through it. But I am stong eventhough weak at times.
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I went alone all the way from Sweden 2008 and 2009. I will go alone this summer too.
Roger.
I went to the conf by myself 2 years ago and it was awesome! I hadn't even had alopecia for a year yet. It really put everything together for me. I knew I wasn't alone and since I have made some of the best friends ever!
Don't be nervous you will not be lonely. You will be surrounded by over 600 men, women, children and their friends/families.
I just booked our tickets. I'm so stoked!
Jeffrey
If you want more info about the NAAF Conf check out www.naaf.org
They have all the details about the conf there.
Your cup will be full if you attend. Trust me.
Hugz,
Jeffrey
I love your attitude regarding your AAT, you go girl, I have AAU, I am at a year now since I lost all my hair. It Sounds like we were/are in the same boat when came to losing our hair, my did the same thing, when it started to shed/fall out it went for broke. I was scared & devastated, I found Leslie Ann Butler's book which lead me to AW, my saving grace.
I wanted to introduce myself as we have friends in common, one is the lovely, sweet Heather & another is the lovely Leslie Ann.
Take care.
Pam
Thank you for the friend invite!!! :) I have not been to a national alopecia areata conference yet- do hope to this June. so I do not have much info other than what is given on the NAAF website. www.naaf.org - that has lots of details, pictures and dates/place etc. Thinking about going this summer?
Hope you are having a great day!
Heather
Happy New Year to you as well! I'm watching the tv in anticipation this morning to see if that little groundhog sees his shadow or not, I could use a shorter winter myself (although I know it does get colder way up North where you are). I'll have to check my friends list to see if there's anyone else from around SSM, unfortunately I can't remember off hand (got over 500 people in there, mostly Canadians). There's a woman in Sudbury but she's the closest I can think of at the moment. I'll let you know if I come across anything though. Take care!! :)
Thanks so much for the add and for your encouraging words. They made my day! Write me anytime you want to chat or vent. I'm a pretty good listener.
Andrea
Hugs!
How are you doing today?
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.