Hi!

Wow - I didn't realize that Joseph Paris would send a sample wig!! I think that is great. Can't wait to hear what you think of it!! If I gets to the point I have to wear a wig on a daily basis.. that is the same thing I would do. I am currently using Olux foam and knock on wood... it seems to work well for me.

I also imagine that the vacuum wigs are AWESOME -- the pictures on this site of some of the people who wear them are so realistic looking!! So I love the idea of how real they look and how secure they are. BUT here's the thing -- you have to be totally bald and shave any type of re-growth you may get in order to wear it. So with the Joseph Paris wigs -- you always have the option for your hair to grow. And I BELIEVE that re-growing hair is always a possibility! I maybe alone in this .. but I still believe that a cure will be found!! :) I've got a stack of medical books sitting by my desk and there are so many wonderful things in the works... so why not an AA cure ? And now that they identified the genes -- only getting closer!!

Hope today was a better day for you! Hang in there - you are not alone.

Heather

Hey!

Thank you for your compliment! In my pictures -- only the dark hair is a wig....all the others is my hair (blonde). I have several spots.. and a receding temple area-- but fortunately for the most part I can still cover them all with my hair. ( windy days bite!)

I completely agree - if you find something you are comfortable with it will make you feel much better. The dark hair wig I bought I got from Wilshirewigs.com ( took Susan's advice- she never steers you wrong! :) ). It was inexpensive (103$) -- but truthfully I think mine looks a little wiggy. Maybe I'm just to picky? From the few I have seen it appears the shorter cuts look more real. Figures b/c I love long hair! ha!

Something I find odd... but a few of my friends have been wearing fashion wigs! ( ha.. guess when you have the choice it is fun...) One of my friends particular found one that looks so similar to her own hair that when she wears it- I never notice!!! She laughs and then tells me... even though I do not have personal experience with paula young wigs... that is where she bought hers and it does look good. So you may want to visit that website. ( paulayoung.com)

Just another suggestion-- I did call Joseph Paris in NY and talked to someone who was helpful and answered a bunch of "wig" questions I had. However I"m sure they have great wigs but they are VERY expensive ( 2,500+)

Hope you are having a better day!
Heather

I'm pretty sure you have to go there.

Thanks, I always try to keep a positive attitude, so that means a lot to me :) I got that wig from Serge's Showgirl Wigs in Las Vegas, NV and it was $2000. It's human hair, hand-tied, with a big patch of silicone in the front that suctions on.

Hello Kimberly!

Thank you for the friend request! Sounds like you are having a tough go of it right now... sorry! If I can help- happy too!!

Heather

hi kimberly! i just do it in the shower pee into a cup or container and put it on massage it on, leave it 4 a few minutes and then wash it off. i put shampoo or something on it so it doesnt smell after that. thanx so much. am i rough around the edges? all the best!

No glue, no tape. They all have have some sort of adjustment tabs to tighten or loosen as needed. There's really no danger of them "coming off" unless somebody yanks it off! You can tighten the tabs enough so the wig doesn't slip around your head, but not too tight as to cause headaches. I have found that you really need to wear the "wig caps" underneath - little sheer nylon caps that keep the wig from slipping and also makes it more comfortable and less itchy. I warn you though: if you haven't worm wigs before, they take some getting used to. DON'T GIVE UP! I started in October '09 when my fallout became too extensive to hide with styling and makeup. I HATED it and had headaches virtually every day. You learn to adjust the wig tightness and positioning on your head, and eventually it feels ok. Even now, I have days where I just can't stand it, but I'd rather that than the alternative.
There are some great gals on here that say "be bold, go bald," but I think you are in the camp as I am in that it's not likely that will ever happen.
Hang in there and ask as many questions of me as you'd like (private email too, if you want).

I have bought all but one from wowwigs.com. The one in the picture is a Revlon, the model is called Scorpio. Comes in lots of colors. The most comfortable wig I own is a little short shaggy one (Rumor) from Eva Gabor, I just don't wear it often. I find most of Gabor's styles a little too old-fashioned for me. I am SO due for a new wig. They wear out, even with good care.

Can't do much about the "not hot" part. I refer to my wigs as skin-tight beanies. I NEVER even wore hats before I lost my hair! I am very active, work out 3-5 times per week, run, etc. I will not go without a wig, so I tolerate the heat and discomfort. I would like to experiment with different brands and different companies, but they are so strict about returns/exchanges that it can be very costly if you end up not liking something you buy online. I am getting bored with my little red bob cut....I used to change my real hair every 6 months or so!

I just noticed your status up at the top. I wear my wig everywhere. I live in Florida and am constantly at the beach or pool and am at the gym 5 days a week and my wig still holds up through all that.

They have elastic pull tabs in the back and I also send my head measurements, so they fit pretty well without any help. My first one I ever bought lasted 4 years with just minor repairs done. The one I have no I've had for less than a year and I'm saving to buy the same one, so that I can send this one in for hair replacement when it's time.

Hi Kimberly....I buy my wigs from www.iwigs.com I've been wearing them for the last 5 years and they are by far the best ones I've ever had.

I'm sorry to hear that you were unable to make the conference. Have you ever attended one before? It was wonderful; I had such a great time meeting others in the alopecia family. I wish I could have had this experience years earlier, when I was a kid struggling through this condition. Despite dealing with alopecia the best way I could, for 19 years I've often felt so alone. The alopecia community is a great one to belong to; kind and so accepting. If you get the chance next year you should go. I would have loved to have met you too! :)

Hi Kimberly, See you next week at the conference!

Thanks for the friend invite, Kimberly.Your kids are so cute; love the pics. I see that you are going to the conference, I am too, and I am so excited (first time attending). Can't wait to see you there. Take care :)

I am soooo sorry I haven't commented back! I don't get on that often because I am well just busy or lazy! LOL.... Yes I have been in wigs for a year now and you know it is just who I am now. Amazing how you can adapt. Starting to lose eyebrows now though..... ugh!

HOw about you? How are you coping? How goes the hair loss?

Hey there and thanks so much for the post. I have been doing GREAT, however, my hair has gotten a little worse, but dealing with it. How have you been?

Hey Kimberly, I just wanted to see how you have been doing. I haven't been on here in such a long time. I hope 2010 is proving well for you!

Hi, Thanks for the add! Nice to meet you. Jules