Amber is doing great and has started Prep. Lucky for her she started with a full head of hair. Mount Eliza is a very nice place and how is Jennifer finding her new school.

How is Greg and your son? You guys should come down soon so that the children can catch up. I know that Amber would love to see Jennifer again...

Hi :)
aww, im so glad that Jennifer is doing well :)
and I hope she will love her new school and make lots of friends and have fun there! :D
I haven't had any growth at all in the past, year I think. But im doing pretty with dealing with it i think :P
I have a real hair wig, and i absolutelly love it! :) Ive had about 6 wigs since alopecia. ( 2 every year ).
I just got a new wig for the summer! and mine is longer as well :D, i guess long hair is in style these days ;)
And yes I tattooed my eyebrows a year ago, and i LOVE THEM. Its so great because I used to always have to think if they looked okay and everything, now i NEVER have to think about it. I absolutely love the tattoo.
The pain was COMPLETELY worth it, i really recommend it!
hope Jennifer is doing well :)

Hi Christel,

Where are you now. Are you far from us so that we can come and visit...

Hi Christel! :)
I am 15 years old and Ive had alopecia since I was 12. Now I have Universalis alopecia so I dont have any hair at all. Its pretty difficult on me but I know that hair isnt everything. I dont want it to change anything in my life so I just keep living even tho it is hard sometimes. I know it sounds cheezy, but life is like a rollercoaster, there are ups and there are downs. Even thought the downs can make you fall pretty low, and make you lose hope, dont forget there will always be high. You just have to wait for it and keep living.

I hope Jennifer will keep her confidance because it seems like she doing pretty good :)

Hows Australia?? Thats completely at the other end of the world!

Hi Christel,

How are things going on your side of the world. Thank you so so much for the Christmas card. Nice to know that you were thinking about us.

How is Jennifer doing. Any news on the treatment.

Hi Christel

No I do'nt know of any perth groups I am loosing my hair too I would love to be friends with you love Narelle

Hi Christel,
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.

Hi Christel,

Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back

Adrienne

I think I am getting on the rollercoaster again. Amber is showing signs that her hair is going to shed again. Here I go....wish me luck

Hello! Thanks for the comment! This year at school I didnt wear a wig. I just used dark eyeshadow to cover the spots and always wore my hair down. I only got teased a few times because I kept it very private. My teachers knew which was a big help because my seat was always at the back of the room where no one could look at my head which was perfect and made me feel better. This year I am going to wear a wig though because my spots are getting bigger and harder to hide. I love Keith Urban and Rascal Flatts too! Im actually going to see Taylor Swift and Rascal Flatts in September! Its my third time seeing Rascal Flatts =D I'm a huge fan of theirs. Country music is amazing<3 It has helped me so much. Thats so cool that you're from Australia! I live in New England. Keep in touch! Send Jennifer my hope and love =]

love and hugs
Caroline

Hi Christel,

Amber is doing great and has now have almost total regrowth. We are happy but at the same time...I am not exactly celebrating as I really don't know what is going to happen around the corner.

I still tell her straight out about what could happen so that she is prepared no what matter happens.

To be honest, the only thing that is keeping me sane is the prospect of knowing that a wig like Jennifers exist.

Are you coming down in August?

Hi Christel..Popping by to say hi and see how Jennifer is doing with the DCP. If I recall she regrew and lost again. Sam is doing SADBE and after several months we are starting to see some hair coming in. We go to the doctor later this month and hope to see lots more by then. Sam is a trooper, but now that she sees the hair she is getting excited. How has your daughter been able to cope with her AA in relation to peer relationships as she has gotten older? Sam wears a wig to school and headbands with hair sewn in during the summer. This is our first summer with no hair. We are starting to make our way. I do have to say we let her go bald at times during our recent trip and I did not like the thoughts that people had. We keep her head covered in our area. I am private about her condition, but her close friends know. I don't feel that my daughter's medical issue is the towns business. I live in a small town of busy bodies and I don't want the gossip. If we get to a point that we need to share then I will, but for now we are doing our thing, going about a life..Cindy

You daughter sounds so confident that is so great. My daughter is 6 and wow they sound so much alike Olivia has no hair at all as well she is very confident and wears wigs at school has lots of friends but now summer is here she would rather go without which we say sure if she feels like it why not. There are somedays she says she wishes she was like everyone else and had hair but the next day she says she likes being bald. I know what you mean about being skeptical that her hair will return we feel the same way as well but who knows maybe someday they will find a cure.
take care, stacey

Hello again Christel thanks for the info re the wonderful suction wig you found for your daughter, its amazing you know, I work in a primary school and today whilst flicking through magazines with a grade one student I work with as an aide, I came across an article in the womans day 2003 issue about a woman called Martine Richards who has lost her hair twice and now has set up her own business called FREEDOM WIGS..... there was a phone number 0419534695 and a website www.freedomwigs.com.au it seems like she is based in NSW going by the web site. I'm going to try the number tomorrow, otherwise we'll be taking a trip to Melbourne to the place you recommend these holidays hopefully its an expense that we will just have to budget for, as anything to aid in Cassies self esteem at this stage will be a big plus. the $1000 government rebate sounds good!!! Catch you later Regards Di

Hi Christel,

Amber says that to me and her aunties all the time but I just treat it like something that is not really important so that she can sense that it is a irrelevance to me. I am hoping that she can learn from that and not place too much emphasis on hair as she grows up.
Jen's got a great wig and it suits her and as you can see from a lot of people on this site, they look fantastic. Have she seen the people on the site yet? I think she is lot stronger than you think she is and I know that she will get stronger and stronger over time. Strength comes with alopecia and now she just needs to experience all this to become a beautiful adult.

Hi christel,

Thank you! The kids at her school did not know exactly what was going on but they did notice the spot. The rest I was able to cover. She goes to a small school so they were very good and did not tease her. she basically told them she did not want to talk about it because it was a long story. I think it was harder because i knew what could happen and what was to be expected. Well she has been blessed and her hair came back within a matter of months in her initial spot and has stopped shedding. The treatments worked for her and I am just really thankful.

thank you! I am glad I can be a role model for young girls. Your daughter is a beauty and I am sure she will go far. x

Hi Christel, Samantha is doing SADBE which is a bit different from the DCP..She has handled her hair loss fabulously. We really have not told many people about her AA. Samantha started the school year with hair and made a smooth transistion to a wig. However, she did let her class know about it since she was so excited. But, truthfully, I have not told the parents in her class and I don't know what they know or what Sam says when not with me. The kids in her class this year have been awesome and have never said a hurtful thing to her. They always tell her they like her even though she has no hair. Samantha always has her head covered, but now that it is warm here she likes to take her wig or headbands off when she is home. She loves her wig. We are waiting any day now for her new hair to arrive from the hair club for men. She will finally have a human hair wig that will be styled like her hair was. This wig supposedly is designed to be like having your own hair and not feel the need to take it off. I hope we get it before our trip next weekend and that she will just want to leave it on. I also have headbands with hair sewn into them that she wears, like the pic of her in the black headband...

Is your daughter having any regrowth now with the DCP treatments since losing again. I imagine it was hard for her to have to go through that again. How does she cope with it?

Nice to finally meet you..karen always speaks of you..

Cindy

Hi Christel,

Welcome to Aloepcia World. I have been living with this crazy condition for most of my life. While it can be trying it is possible to make it through. I also have an 8 year old daughter who was diagnosed with Alopecia about 7 months ago. Her spots have grown back in with treatments within about 4 months. i think I tried everything I could think of..

Your daughter will be fine as long as she has a strong support system like you