My name is Cindy and I have a 6 yr old daughter with Alopecia. I think her hair loss has been harder on me then her. She wears a wig and does not seem to mind it. Her hair started growing in June, but we still have a long way to go. I see that you tried most kids of wig, but cyberhair. Sam's first wig was an Amy Presence Cyberwig. The hair was not bad, but it was high maintanace. Sam recently got her first wig for the hair club for men and she loves it, mostly in part because it gave her, her old look back. How are your kids dealing with their Alopecia. Samantha has really embraced it and is unphased. I am sorry to read that two of you kids are dealing with. You all must be a great support system for each other. take care, Cindy
At 2:08pm on September 10, 2008, Taylor-Jean said…
Dear Gina:
Thanks so much for getting back to me. I will get those pics up soon and I will chat with you soon also. Thanks again,
Cynthia
At 2:27am on September 10, 2008, Taylor-Jean said…
Dear Gina:
With having so much experience with alopecia and having a daughter that is quite close in age with mine, I wondered if I could ask you some questions some time? Thank you in advance,
Cynthia (B.C.,Canada)
Hello Gina,
First of all I want to say your kids are adorable!!!
My name is Maria and I have a 6yr old daughter also and she is the one with AU, her name is Savanna...she has had it since she was 3yrs old, we do not do any treatments at this time, but I am strongly considering trying something, but I havent totally convinced myself yet that it would be best for her. Savanna is a well adjusted with her condition but she has had several bad experiances with this disease. She too doesnt often wear wigs only when she is playing or take the notion to put one on in the house...but in public it is only HATS!!!
hi gina,
your daughter has so much hair that is growing in! thats great! and i love her pink wig in picture 2, where did you get it, ive always wanted a color wig- lol
Great! Please let me know how you like my book, okay? You can get it on www.Amazon.com or www.leslieannbutler.npauthors.com.
I know, the glue-down thing doesn't appeal to me...I haven't tried it but I don't like the idea of wearing a wig 4-6 weeks straight -- I like to keep my scalp clean and when stuff is glued to it, how can you do that?
A lot of people swear by the vaccuum wigs. You can choose either the soft, flexible base as well or the hard base. I never got one of those because my head gets so hot. I alternate between human hair with poly base (which is also hot), human hair with a silicone covered netted base -- which is nice and cool), and the synthetics which are very cool and easy.
Hi Gina, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
Hi Gina,
Yes, there are a lot of wigs -- I think it's best to have both human hair and synthetic. I love synthetic for travel and when I am working out, because it is so easy to clean and there's no styling. Human hair other times.
Well, I just wanted to say hi and find out how you and Boni are doing today!
LeslieAnn
You are such a good mother...brave and strong. My daughter is in Kinder as well and I have met a liitle boy in Kinder that has your condition as well. he was born with no hair and it is genetic. He is brave and outgoing just like your daughter. I guess our children will grow up confident as Alopecia is so recognised these days. There is no school that has four kids with alopecia over here so it is definitely more open nowadays.
Have you heard of the Freedom wig. I think they are the best....
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what finds kids you have!
say hello too them from me!
Christina
My name is Cindy and I have a 6 yr old daughter with Alopecia. I think her hair loss has been harder on me then her. She wears a wig and does not seem to mind it. Her hair started growing in June, but we still have a long way to go. I see that you tried most kids of wig, but cyberhair. Sam's first wig was an Amy Presence Cyberwig. The hair was not bad, but it was high maintanace. Sam recently got her first wig for the hair club for men and she loves it, mostly in part because it gave her, her old look back. How are your kids dealing with their Alopecia. Samantha has really embraced it and is unphased. I am sorry to read that two of you kids are dealing with. You all must be a great support system for each other. take care, Cindy
Thanks so much for getting back to me. I will get those pics up soon and I will chat with you soon also. Thanks again,
Cynthia
With having so much experience with alopecia and having a daughter that is quite close in age with mine, I wondered if I could ask you some questions some time? Thank you in advance,
Cynthia (B.C.,Canada)
First of all I want to say your kids are adorable!!!
My name is Maria and I have a 6yr old daughter also and she is the one with AU, her name is Savanna...she has had it since she was 3yrs old, we do not do any treatments at this time, but I am strongly considering trying something, but I havent totally convinced myself yet that it would be best for her. Savanna is a well adjusted with her condition but she has had several bad experiances with this disease. She too doesnt often wear wigs only when she is playing or take the notion to put one on in the house...but in public it is only HATS!!!
love to talk...Maria
your daughter has so much hair that is growing in! thats great! and i love her pink wig in picture 2, where did you get it, ive always wanted a color wig- lol
I know, the glue-down thing doesn't appeal to me...I haven't tried it but I don't like the idea of wearing a wig 4-6 weeks straight -- I like to keep my scalp clean and when stuff is glued to it, how can you do that?
A lot of people swear by the vaccuum wigs. You can choose either the soft, flexible base as well or the hard base. I never got one of those because my head gets so hot. I alternate between human hair with poly base (which is also hot), human hair with a silicone covered netted base -- which is nice and cool), and the synthetics which are very cool and easy.
Yes, there are a lot of wigs -- I think it's best to have both human hair and synthetic. I love synthetic for travel and when I am working out, because it is so easy to clean and there's no styling. Human hair other times.
Well, I just wanted to say hi and find out how you and Boni are doing today!
LeslieAnn
Have you heard of the Freedom wig. I think they are the best....
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.