Hello my friend how are you and how are you Alopecia areata

Hi maya. you left a comment for me a while back but I don't check my profile page that often. Both me and my little girl have had a form of alopecia since birth so like you I grew up with it. Now, it's just a part of my life like anything else not so much a big deal as it was when I was younger. Still, I am worried for my daughter because I know what kind of pain she will go thru.
Anyways, keep in touch!

I do not wear a hair piece and do not plan to ever get one. It's just not the thing for me. My own hair loss is the regular, male kind, but I have never considered a hair piece. I shave my head every day and always wear a pirate bandana outside. I very much enjoy its distinctive look :)

It is great that your hair is growing back. Congratulations :)

Thank you!

Hi Maya, Feel for you and understand where you are coming from. I had alopecia since I was 8. So I can relate to having it as a child from that age and then through the rest of teenage years and beyond. I used to try things to in the early days hoping it would help. Nothing worked or did temporarily. I had a short time where it was okish and then it got really bad again. It is hard because it so unpredictable. When I was 8 I was told my alopecia was because of stress. So I worried and worried that I was causing my alopecia which I hated and then I knew I was worrying so "allegedly" I was making it worse. It was awful and I am only in the last months getting rid of my self blame. Even though my alopecia never followed a pattern of when I was most stressed there was nothing else so go on. Now I have found some genetic research has been done and turns out there is alopecia in my birth family and into my extended birth family. It feels like a weight off my mind. So do you think your alopecia is related to stress or was this was what you were told? If you were born with it I wonder how stressed could you be? I really really hope you aren't blaming yourself like I did. The alopecia is distressing enough without that added stress/pressure. Thank you for saying I am pretty. I could say the same about you but maybe you wouldn't believe it. I think it is hard to feel perhaps pretty in some ways but then it never seems to make up for the hair loss which I still feel makes me unattractive. It good you have support here. It is really hard for partners to understand. I guess it is hard to understand if you haven't experienced it. My ex was supportive in ways and then not in others as they could never understand how it affected my self esteem etc. It is hard in a relationship as so much more exposed. Hope you are feeling more positive just now and that you can feel maybe just a bit beautiful. Talk anytime, to you too.

Hey Maya :) im not 2 bad winter finally comin 2 an end in Ireland its bein a v cold my head has been freezin lol.. i was in London last weekend wit sum friends had a great time...hows are u hope u are keepin good.. ahhh what disaster about the hair,,
At least it showed signs of growing back which is a good sign u must of bein gettin so excited an all, wat made it begin 2 grow back do u think? studyin 4 your exams used 2 make mine also fall back out... mine is always growing back in random patches is strange i think the sun is v good 4 me and helps me a lot with it,,, hows all goin in oz? are u able 2 swim in the sea with you wig? i know i used 2 spend lots on money on alopecia cures b4 especially wen i was in Turkey they got some strange ones there involving garlic there haha,, anyway talk soon good 2 hear from u Maya

Hey Maya thanks for adding me! Ive had alopecia for a long time as well... not my whole life. But i definately suffer from depression and alot of the things you mentioned. At times i feel my "partner" doesnt get it either. Hit me up if you ever need to chat or vent =) Stay strong !

Hi Maya! I have had alopecia for 5 years now and it is the hardest thing I have ever had to deal with. Don't know anyone here that has it and I feel alone quite often. No one has really understood what I am going through. How you feel is how I have felt before too. I hated it when someone would notice, a complete stranger and than say somthing rude. I still have trouble with it. I still feel not as confident sometimes because of it. I was very hurt when my boy friend who I was rencently dating asked me to put my wig on. That really hurt. I dumped him not just for that reason. We will get through it. I am here if you ever want to chat.
Beth

ya sounds good so u just traveling abouts oz nowadays? lots of my friends are movin there, are there many irish uc ome across? ya its summer time over so must b roasting isit! Martial arts camp sounds cool.... Haha Ireland is cool i like it here was livin in Holland the last few years in college i met many ppl form Isreal there but none from palestine,, is it hard wearing a wig in the summer heat? I know there are som many money robbers out there who claim they can help with alopica i hate them... chinesse herbs cud b interesting tho,,, Do u have any friends outside the internet with alopica? I would love 2 meet sum1 here but never seen any

Hi Maya
I have alopecia areata and have had it since I was 16! You like me are probably used to living with it but of course in the back of our minds wonder what it would be like to have hair again...I have forgotten :).

This is the reason why I am trying to get so many people registered on our AAAF website, facebook page and group pages on here.....we are trying to raise awareness for All forms of Alopecia not only to educate the public but to also rally the government for support in things like getting rid of sales tax on wigs etc....

Hope you join our page and help us raise awareness! There is a Qld support group which would be great if you touched base with if you are interested in conversing with other alopecians and joining in their activites.....

Talk soon
Ves :)

Hello ^^
i'm just fine :)
What kind of camp are you going to? :)

it was nice talking to you too, and things are well, thx

hey.. yes definitley would b great 2 chat with you aswell :),,, so where u from? Ireland is cold at the moment but no snow or nutin like that so its nice... i added u as a friend there tried 2 send u a message but i wasnt able 2 as we werent friends, any hope your trip goes well :)

Hello and welcome, Maya!
How are you doing today?
Leslie Ann

hey maya,
thanks for adding me as a friend!

Welcome Maya...it's nice to meet you :)