Hi Jennifer,
I read your profile on your daughter and it sounds like my daughters same story. Even the pics of your daughter look similar to my daughters hair. She will be 7 in 2 weeks and she has had alopecia since she was 4. She is starting to be more conscious of it this past year. Right now she can hide it easily but I worry if and when it gets worse and we wont be able to hide it anymore. Luckily she is involved in a lot of activities and really does not have time to worry. Your daughter is precious. It really helps to talk this out with other parents going through this.
Tracy
Hi Jennifer...go to www.hairclub.com and click on kids club. There will be a phone number to call to get the application. You need a doctors signature and that is because of the adhesive used. just call your ped for them to sign it. Once you have the paper work call you local hair club for men and make an apt. It takes about 12 weeks to get the wig. Sam likes them and they did a great job matching her color...Sam also wears headbands with hair sewn into them from www.hatswithhair.com. she prefers them in the summer. however, now that her hair is fairly grown in I don't think she will be wearing them much once school finishes...Please write if you have any questions. ARe you doing any treatment?
Hi Jennifer and Alieena. My name is Cindy and I have a 7 yr old daughter. She too lost her hair during K last year. Your daughter sounds like a gem. Sam is now regrowing, but she wears a wig through the hair club for men. I suggest checking it out if you decide to get one. They have a kids club that offers 3 free hair replacements a year. Cindy
Wow, I can't believe that doctor was such a jerk- I really think he needs to retire ASAP! It is interesting how every one thinks differently- when we went to a derm I didn't want any sugar coating--- I wanted the black and white... where as you would have been content with the gray area... interesting... but yeah you can always tell which docs have children and which don't. I hope you have a great Holiday (I am just assuming that you celebrate Thanksgiving.)
i read your blog and was appauled at the way this dr treated you. I mean the nerve of people. No one has the final say so on what happens. Just stay strong and keep faith
Hi Jennifer and Alieena,
Interesting story about dermatologists. Terrible! How are you both doing? I know that sometimes the moms have a lot harder time with alopecia than the children. Anyway, I wanted to say hello. I've had aa for about 30 years.
LeslieAnn
Hi Jennifer and alieen, Its a shame that some derms have no compassion. I know how u feel the first derm I took my daughter to walked in the room looked at my daughter from across the room and said she has alopecia, I dont treat that or children. I left so upset and luckly found a childrens derm that was absolutely wonderful my daughter Loves him. Try and stay strong, its easy to breakdown for our children. Its been a over a year and I still have my days.
Maria
Hello Jennifer, Thank you for the firend request, I also read your blog and I almost cried just reading it, I could only imagine what you had to go through that day. My daughter Savanna was diagnoised with AA when she was 3yrs old actually it was a couple months before she turned 3. She is now 6 yrs old and AU, it didnt take long for her to lose all her hair, it was about 2 or 3 months and she was completly bald it took a lil longer for her to lose her eyebrows and eyelashes.
Her derm. was a woman and extremly senstive to the issue and a wonderful woman at that. I choose not to do any treatments at this time, I dont want her submitted to anything painful. I honestly believe when it is ready it will grow back on its own.
Savanna being bald has changed her life in some aspects, but she still lives a wonderful life, We give her all our love and tell her everyday how beautiful she is. She still does everything she wants to do. If you have any question or would just like to talk sometime, Just feel free to ask....Maria
hello! i just read your blog about your horrible experience...I AM SOOOOO SORRY...your poor daughter, that sounds miserable.
Just thought I would share that I am a 23 year old female from CT and I first got bald spots on my head when I was in the 2nd grade(what is that 7 or 8 years old??) and I have never lost all of my hair. I did not go through the injections because I was way too scared but I did try every cream imaginable. I have lost up to 90% of my hair, but never all of it and now I have 95% of my hair back and it has been back since before high school.
Every situation is different, that is a promise I can make you...no one knows for sure what will happen with your daughter so please do not let anyone tell you otherwise...You cannot even try to predict what the future holds, all you can do is support her and keep telling her how beautiful and special she is...If you could, come to the conference next year and have your daughter meet other people with alopecia or attend a support group with other kids so she can see that she is not alone!
I am so sorry that doctor was so rude and unfortunately, this world is a cruel place...Just keep showing her your support and keep hope regardless of what people say. Good luck and please feel free to contact me for anything!
As we created this site and more and more people joined I realized just how important the visual of others with alopecia is. I think just seeing others living thier lives with alopecia is so important and I think a photo... says a 1,000 words. Take care. Cheryl
Hi Jennifer & Alieena!
We have a kitty named kitty too! Only she is a real kitty cat. You look adorable Alieena and what a beautiful name. We hope you don't let the hair or lack there of get you down and that you find support here. Helen and her mommy.
Hi Alieena, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
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Jennifer and Alieena's Comments
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I read your profile on your daughter and it sounds like my daughters same story. Even the pics of your daughter look similar to my daughters hair. She will be 7 in 2 weeks and she has had alopecia since she was 4. She is starting to be more conscious of it this past year. Right now she can hide it easily but I worry if and when it gets worse and we wont be able to hide it anymore. Luckily she is involved in a lot of activities and really does not have time to worry. Your daughter is precious. It really helps to talk this out with other parents going through this.
Tracy
i read your blog and was appauled at the way this dr treated you. I mean the nerve of people. No one has the final say so on what happens. Just stay strong and keep faith
Interesting story about dermatologists. Terrible! How are you both doing? I know that sometimes the moms have a lot harder time with alopecia than the children. Anyway, I wanted to say hello. I've had aa for about 30 years.
LeslieAnn
Maria
Her derm. was a woman and extremly senstive to the issue and a wonderful woman at that. I choose not to do any treatments at this time, I dont want her submitted to anything painful. I honestly believe when it is ready it will grow back on its own.
Savanna being bald has changed her life in some aspects, but she still lives a wonderful life, We give her all our love and tell her everyday how beautiful she is. She still does everything she wants to do. If you have any question or would just like to talk sometime, Just feel free to ask....Maria
Just thought I would share that I am a 23 year old female from CT and I first got bald spots on my head when I was in the 2nd grade(what is that 7 or 8 years old??) and I have never lost all of my hair. I did not go through the injections because I was way too scared but I did try every cream imaginable. I have lost up to 90% of my hair, but never all of it and now I have 95% of my hair back and it has been back since before high school.
Every situation is different, that is a promise I can make you...no one knows for sure what will happen with your daughter so please do not let anyone tell you otherwise...You cannot even try to predict what the future holds, all you can do is support her and keep telling her how beautiful and special she is...If you could, come to the conference next year and have your daughter meet other people with alopecia or attend a support group with other kids so she can see that she is not alone!
I am so sorry that doctor was so rude and unfortunately, this world is a cruel place...Just keep showing her your support and keep hope regardless of what people say. Good luck and please feel free to contact me for anything!
Kate Martino
We have a kitty named kitty too! Only she is a real kitty cat. You look adorable Alieena and what a beautiful name. We hope you don't let the hair or lack there of get you down and that you find support here. Helen and her mommy.
Roger.
Roger.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.