I'm glad the hair loss has slowed down! Mine has too and some little stubbly hairs have started to grow in. Very exciting. Don't worry about the little spots..they will fill in soon! And you will be amazed at how full your hair looks once they fill in. even if the hair is only .0004 cm long it still looks full! It's actually quite amazing. Eurgh i know what you mean about the itching. Gee i wonder why that is. Do you have a dry scalp too? Well i'll tlak to you soon!!
-Zoe
Hey! Sorry it took me so long I have been busy and not on here but trying to check it more haha. This site is so sweet to. Anyway yeah thanks! I think over the years I learned how to make my wigs look fairly normal usually, and usually I just don't care. haha. So have A.A? you look fantastic as well.. do yuo wear wigs then? Well lets keep in touch.. I do have myspace too.. I just need to remember what my address is haha..
Hey Katie. I saw some of your comments on Zoe's wall and I feel the exact same way you do! I have most of my hair and can easily cover up the spots that I have, but I am constantly worried that someone is going to see a spot or that it's going to get worse. Then I see people on here that have it much worse than I do, and I get so mad at myself for being upset. I am "lucky". It's amazing how brave a lot of people are- I wish that I could be. Everytime I think about it or see my spots, I feel like such a freak. And I never want my boyfriend to look at me and think so too. I am glad we have this website where we can support and encourage each other. I am here for ya if you have to vent!! By the way- wicked adorable pic of you and your daughter in your sunglasses!!
Hi Katie!!
How long has your hair been falling out for anyways? Has it slowed down at all? The percentage of people that lose all their hair is actually quite low, so that usually reassures me. My dermatologist says that she has tons of alopecia patients and only two of them have universalisis. It often stops and regrows. I honestly think that the more attention you pay to it, the worse it gets. The first time i had alopecia, i didn't even notice until it has stopped falling out and it didn't bother me at all because i had no idea what it was. I don't think i even shead a single tear. The second tiem was the worst because i knew exactly what it was and so i had a freak out, and sure enough, it was a lot worse than the first time. This time, i got my friends and my sisters and my mom to brush my hair, that way i wouldn't have to see all the hair falling out which i think is the worst part. That's exactly what i think is the worst part!! I just want to knowwwww!!! Because if it is all going to fall out i want to shave it off RIGHT NOW, but if it's going to stay, then i can chill out for a while. And when i ask people: Do you think its all going to fall out? I just want them to say of course not. But they always say I don't know. which is true, but i'd just rather them say it's not going to. haha. I got my hair piece from a lady in Victoria B.C. (not much help to you i guess) But if it's almost stopped falling out that's a great sign Katie! Believe me, it will grow back and as soon as the bald spots fill in you can't tell at all. Even if they're less than 1cm long, it fills in and looks totally normal again. I can totally understand the panicking. That's why, as hard as it is, it's best just to ignore it. Slap on a hat or whatever and focus on all the amazing things about your life and try not to worry about your spots because you're a hot babe no matter what! Don't worry abotu crying though, it's good to let it all out! You're not weak or vain Katie. Alopecia will only make you stronger and teach you to understand other people better. It will show you who your true friends are and make your beauty shine stronger from the inside:) And plus, these people on here have been coping with alopecia for a long time and it's taken them time to adjust adnd be so open and strong about it. You'll definitely get used to it eventually. Man, i'm on my fourth time with it and it's STILL not easy! (I guess that wasn't exactly encouraging haha) And KATIEE...of course your husband doesn't think that your ugly!! HELLO!?! He married you..which means that you guys will get old and saggy and wrinkly together. I'm sure he married you for being you not because of your hair. Anyways...i lovve chatting with you!! Take care katie bear!
Loooove Zoe
Hey katie one more thing, if you still have a fair amount of hair on your head, you should look in to getting a hair piece instead of a full "wig" ( i hate that word for some reason). I've had one for a while and it's really handy. It just clips into your existing hair at the top of your head and blends in with the rest atthe bottom. It looks really real and it's easy to style. I'm wearing mine in the last couple photos that i have. okay talk to you soon:)
Hi Katie!
How are you doing? Wow you are sooo beautiful! And your baby girl is so so so so so so cute. I love babies and kids. I can't wait to have them...but i'm going to try and wait haha. How is your hair doing? Mine is still falling out. The first couple of months was okay, but now i'm more than ready for it to stop falling out. It's just so damn annoying. Plus, my head it so itchy and gross which makes it worse. Sometimes i just think it would be easier to just shave it all off, but i think i'm going to tough it out for a little bit longer because i'm hoping that it is slowing down. I don't really know anyone that has this either around where I live, but you are definitely not a freak! "What makes us different is what makes us beautiful" :) Usually when I tell people they are really supportive and nice about it, but I know they don't really get what it is so I usually tell them to go wikipedia it. Haha. I've only ever told my close friends and family so I can totally understand how you would be freaked out to tell everyone around you. Sometimes i feel like I'm being weak, or shallow or something if i don't expose my bald spots and tell the whole world that I have alopecia. Because so many people on here are so brave and just bare their bald heads in public and spread the word about alopecia. But, I feel much more comfortable wearing head bands and hats and stuff. I'm glad I can pull them off for now. Anyways i hope that i'll talk to you soon Katie! Have a great great day
Thank you. She gets her wigs from Lari Vreeken. She is a hairdresser in LA that works with a lot of alopecia people. She also does a lot of extensions, and just regular styling and haircuts. Her wigs are amazing and very custom. Her web site is www.larivreeken.com. Let me know if I can help with any other info
Vicktoria
I know it took me a while to figure out how to read messages as well...on the very top of your page screen there is a icon of an envelope...just click on it and you will open the messages inbox....let me know if that doesn't work..but it should!!
ttyl - Nicole :)
hey how are you doing? My alopecia started out in spots but it all ended up coming out in less then 6 months. i think most of mine is from my dad.and maybe a little stress but i'm not completly sure. I have stated going to the doctor and getting injections in my head. The first time i got them it wasn't all that bad. but it was when i kept losing my hair that the shots started getting more and more. the last time i went i only had to get 27. but i will talk to you later bye:)
yah that's my real hair in most of the pictures but I have a hair piece on in a couple of the pictures. it definitely doesn't look like that right now. it's really thin and stringy right now.
do i think it's because of stress? hmm..
that's a good questions. people always ask me that but i honestly don't ever feel stressed out when my hair falls out. I don't like accepting the fact that "it happens for no reason"
I think that people who have alopecia have that gene in their body and then everyone has different triggers throughout their lives that might cause that gene to come out. For me, i haven't quite discovered what it is. For some people, it is stress, or a traumatic event or a pregnancy or something like that. I like to think that i have alopecia for a reason. I've decided that i got it to learn more about what really matters in life and to bring me down to earth. Right now, i also have this hypothesis that eating too much sugar contributes to my hair loss (although that is totally unaccepted by doctors). But who knows?! I really think that each person is so different.
I know what you mean when you say you miss your hair. I feel the same way all the time. I miss mine too, but I've learned to make jokes about it. No I don't have a Myspace. :( How old is your little girl ?
Hi Katie! I did get your MySpace message...sorry I didn't get back to you yet! I was just a little bit under the weather last week. :(
Anyway, it's nice to meet you! I'm glad you found this site...It's really great. Do you have any specific questions for me?
Hi Katie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Hi Katie!
It's so great to hear from you. It's so nice to meet women around my age to talk with too! I don't know of any around where i live. It's always nice to talk with anyone who has alopecia but it's especially nice to be able to relate with them and them to you. I would love to chat with you! My head gets so itchy too! I wonder what that's all about. Erg it drives me crazy. I don't have a myspace, but i'm on here quite a bit. Have you ever tried getting cortisone injections for your spots? I've had them several times and they seem to help. Well i'll talk to you!! Take care katie:)
Love zoe
Hi I'm Katie Jones and have just become a member. I was looking for some new friends to talk to that has something in common with me. Maybe we could talk sometime.
Hey Katie, Talk to your dematologist more about dexamethasone. Its really a kind of a last resort. It's not a cure thats for sure! If you only have a few spots then im not sure if the doctor will prescribe you it?? My doctor only gave it to me becasue I had Alopecia Universalis and she was trying to get just some of my hair to grow back. Many times peoples hair grows in then immediately false right back out. Again talk to your doctor about.
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-Zoe
How long has your hair been falling out for anyways? Has it slowed down at all? The percentage of people that lose all their hair is actually quite low, so that usually reassures me. My dermatologist says that she has tons of alopecia patients and only two of them have universalisis. It often stops and regrows. I honestly think that the more attention you pay to it, the worse it gets. The first time i had alopecia, i didn't even notice until it has stopped falling out and it didn't bother me at all because i had no idea what it was. I don't think i even shead a single tear. The second tiem was the worst because i knew exactly what it was and so i had a freak out, and sure enough, it was a lot worse than the first time. This time, i got my friends and my sisters and my mom to brush my hair, that way i wouldn't have to see all the hair falling out which i think is the worst part. That's exactly what i think is the worst part!! I just want to knowwwww!!! Because if it is all going to fall out i want to shave it off RIGHT NOW, but if it's going to stay, then i can chill out for a while. And when i ask people: Do you think its all going to fall out? I just want them to say of course not. But they always say I don't know. which is true, but i'd just rather them say it's not going to. haha. I got my hair piece from a lady in Victoria B.C. (not much help to you i guess) But if it's almost stopped falling out that's a great sign Katie! Believe me, it will grow back and as soon as the bald spots fill in you can't tell at all. Even if they're less than 1cm long, it fills in and looks totally normal again. I can totally understand the panicking. That's why, as hard as it is, it's best just to ignore it. Slap on a hat or whatever and focus on all the amazing things about your life and try not to worry about your spots because you're a hot babe no matter what! Don't worry abotu crying though, it's good to let it all out! You're not weak or vain Katie. Alopecia will only make you stronger and teach you to understand other people better. It will show you who your true friends are and make your beauty shine stronger from the inside:) And plus, these people on here have been coping with alopecia for a long time and it's taken them time to adjust adnd be so open and strong about it. You'll definitely get used to it eventually. Man, i'm on my fourth time with it and it's STILL not easy! (I guess that wasn't exactly encouraging haha) And KATIEE...of course your husband doesn't think that your ugly!! HELLO!?! He married you..which means that you guys will get old and saggy and wrinkly together. I'm sure he married you for being you not because of your hair. Anyways...i lovve chatting with you!! Take care katie bear!
Loooove Zoe
How are you doing? Wow you are sooo beautiful! And your baby girl is so so so so so so cute. I love babies and kids. I can't wait to have them...but i'm going to try and wait haha. How is your hair doing? Mine is still falling out. The first couple of months was okay, but now i'm more than ready for it to stop falling out. It's just so damn annoying. Plus, my head it so itchy and gross which makes it worse. Sometimes i just think it would be easier to just shave it all off, but i think i'm going to tough it out for a little bit longer because i'm hoping that it is slowing down. I don't really know anyone that has this either around where I live, but you are definitely not a freak! "What makes us different is what makes us beautiful" :) Usually when I tell people they are really supportive and nice about it, but I know they don't really get what it is so I usually tell them to go wikipedia it. Haha. I've only ever told my close friends and family so I can totally understand how you would be freaked out to tell everyone around you. Sometimes i feel like I'm being weak, or shallow or something if i don't expose my bald spots and tell the whole world that I have alopecia. Because so many people on here are so brave and just bare their bald heads in public and spread the word about alopecia. But, I feel much more comfortable wearing head bands and hats and stuff. I'm glad I can pull them off for now. Anyways i hope that i'll talk to you soon Katie! Have a great great day
Looove zoe
Vicktoria
ttyl - Nicole :)
do i think it's because of stress? hmm..
that's a good questions. people always ask me that but i honestly don't ever feel stressed out when my hair falls out. I don't like accepting the fact that "it happens for no reason"
I think that people who have alopecia have that gene in their body and then everyone has different triggers throughout their lives that might cause that gene to come out. For me, i haven't quite discovered what it is. For some people, it is stress, or a traumatic event or a pregnancy or something like that. I like to think that i have alopecia for a reason. I've decided that i got it to learn more about what really matters in life and to bring me down to earth. Right now, i also have this hypothesis that eating too much sugar contributes to my hair loss (although that is totally unaccepted by doctors). But who knows?! I really think that each person is so different.
anyways you're fabulous!
talk to you soon katie:)
Looooove zoe
Anyway, it's nice to meet you! I'm glad you found this site...It's really great. Do you have any specific questions for me?
Cheryl
co-founder
Roger.
It's so great to hear from you. It's so nice to meet women around my age to talk with too! I don't know of any around where i live. It's always nice to talk with anyone who has alopecia but it's especially nice to be able to relate with them and them to you. I would love to chat with you! My head gets so itchy too! I wonder what that's all about. Erg it drives me crazy. I don't have a myspace, but i'm on here quite a bit. Have you ever tried getting cortisone injections for your spots? I've had them several times and they seem to help. Well i'll talk to you!! Take care katie:)
Love zoe
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.