Julia's Comments

Comment Wall (174 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 1:26pm on September 4, 2009, Tracy and Amanda said…
Hi Julia,
How are you?
Tracy
At 6:56pm on August 11, 2009, Tana said…
Hey I don't know if this is you or not but i think i talked to you at the National Alopecia Areata Foundation Conference in Houston, TX. Anyways I was wondering if you could help me out and tell me what i need to know to start a support group in kansas. Thanks
At 12:02am on July 28, 2009, Pamela Rosse said…
Hi Julia, I too applauded the Today Show, I emailed them letting them know that I was one of those 4 million, I had the rarest form universalis. I requested they do continue this segment there was so much more to touch on. While alopecia is not life threatening it is life altering, it also can be life threatening for some 25 % of our sisters & brothers who are so depressed they think of suicide. I also noted about medical procedures we go thorough & the battles undertaken with insurance companies & medicare to cover medical procedures as well as wigs. That wigs or hair systems are expensive & not everyone can afford. I hope they continue. I loved your words of wisdom, for it is up to us as we accept & embrace our baldness to venture out & help one another.
You have a beautiful family. You are quite an inspiration. Take Care.
Pam
At 12:52pm on July 27, 2009, Ashley Nicole said…
Thaaaank you for the inspiration! and adding + me :)))
p.s your gorgeous!
At 2:22pm on July 8, 2009, Tray (Jazz's Mom) said…
Stopping by to show love.
At 12:14am on June 24, 2009, rj, Co-founder said…
Julia, Columbus is about four hours from us. But I thought I'd let you know that Cheryl and I will be spending more time in Cincinnati since one of my sisters and her family are moving there this month. Hopefully, we all can hook-up there. :-)
At 8:56am on June 18, 2009, Michelle Chapman said…
Thank you so much Julia for your lovely message! I must get into this Twitter malarcky!! Gail (Porter) and I were doing it from hers the other night (over a glass or two of vino!) and we had so many lovely messages back!! Once I get myself onto Twitter I will follow you!! Take care and always beautiful! Mxx
At 4:08pm on June 15, 2009, rj, Co-founder said…
Julia, we like the idea of meeting up in Ohio. What city do you have in mind. I don't think we're going to make it to this year's NAAF conference, but we'll see. Are you going?
At 4:35pm on June 12, 2009, Tray (Jazz's Mom) said…
Hi!!!
I know it's been a while. playing catch up.
I wont ask how you or the little ones have been cause I know you've been beautiful the entire time!

Jazz got injections in her scalp about two months ago and is to go back on Monday to get the more. Havent seen improvement plus she really cried the last time so I'm not sure if she will get them again.

As usual, keep up in your prayers. I think of you often.
When's the last time you spoke with Gayla?
How is the book? Did you finish?
Chat soon.
At 7:04pm on April 15, 2009, julie said…
I am better frankly and giving up therapy has not harmed me as i thought it would. guess i was thinking it would be harder to make it but i have done ok. Frankly we all know what therapists will say and what they will tell us, guess I was tired of spending my money I dont have as I lost my job too and was laid off. She keeps telling me I wasnt ready to give it up yet I have to do what I WANT TO DO Sometimes even tho she means well I feel she is just looking for her salary... And I've had enough after a year u would think that should be enough. I am feeling it doesnt look as bad as it did, dont know if its improved, if its just i'm mentally better, or if it never was that bad.. who knows i just know i'm dealing better.. and trying to hang on. I'm concentrating on trying to lose weight and eat right and trying to transfer the "hair" energy into the "weight" energy so I can concentrate on things that are good for me. Thanks for always helping me.. and I hope to stay in touch.
At 3:35pm on April 14, 2009, Josh and Kiah said…
Hey Julia never got back to you to say thanks for putting Kiah in the book. Between that and her article with Charlie she really feels like a celebrity now! Everyone I have shown the book to loves it and it was a good experience to sit down and write about our lives. Are you going to the conference this year? Also, you had mentioned emailing some of the pictures that you took in Louisville and Im sure that got lost in the shuffle but if you could still email them we would love to see them!

Thanks again, hope to see in Houston and the girls say hi!
At 9:51am on April 10, 2009, 3mee said…
Hi Julia! Thanks for the add.
At 4:02pm on April 9, 2009, julie said…
i am doing a lot better but am just contemplating about if i should have quit therapy as i couldnt afford it and have no job/insurance... and i decided for myself that enough was enough yet i guess i still worry about it but after a year, what can they say, what more can u talk about you know?.. there comes a point where you have to just realize maybe its not as bad as you think and the world wont come to an end.. and you have to deal... i am better, although i still have my anxious moments and disappointing things that have happened to me thru this....
At 3:40pm on April 2, 2009, KD said…
Ohh yeahh !??? :D I love it too :D i appreciate that Thank youu Julia !! How are you doing ???
At 6:54pm on March 30, 2009, Cheryl, Co-founder said…
Hey Julia, You were on my mind today! How are you?
At 7:38am on March 20, 2009, shuaa said…
thanks for the add - it's nice to be your friend.
At 10:21pm on March 17, 2009, Gena King said…
""""YES Come Visit Me""""""
At 3:15pm on March 14, 2009, Anastasya said…
Hi Julia!
Your video is great!
You have inspired me! Thank you!
With great pleasure to read your book, but I do not know English)))
At 9:55pm on March 2, 2009, Felicia Graham said…
Hi Julia
I would like to hear more about what youare doing. I really enjoyed the video. I can't wait to read your book. By the way your beauty inspires me.
At 9:49am on February 20, 2009, Roger said…
Julia!

Great book! People in the swedish foundation are very intrested in it =)

Roger.

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service