At 12:44am on September 17, 2014, Sassydiana said…
I am great... Thanks for asking. I finished reading your book, and find it very helpful. A great read, with just enough fun to keep it balanced. I have only been diagnosed for about 1 month, I still have hair and am hopeful it will grow back, however I am still loosing hair at a fast rate. I read and research all I can about this disease. I would love to make a difference in the lives of children who are facing alopecia.
Hello, im from Bosnia and i have SCARRING ALOPECIA LICHEN PLANOPILARIS,and doctor told me that i probably have ANDROGENIC ALOPECIJA to! Im 29 years old and im dealing with that since i was 20 years old. I still have my own hair but i decide to by a wig so i was wondering if someone can give me some advice regarding that and i would be glad if i can exchange experiences relatet to diagnosis.Doctors told me that is not hereditary, but im scared that my children could inherit it from me when i decide to have them. I think im dealing with this very good theres a days when i just cry when im alone in my 4 walls and sometimes i just say things could be much worse. You are healthy,smart enjoy in your life. Some people are struggling with the horible desises like that i comfortet myself. But still its hard especially when you know that you never had even a broken tooth not to mention that i have never been sick in my life and for years i have alopecia and i dont know why or how to treat her!
That is awesome news, the possibility that I may get my hair back. Will be keeping my fingers crossed on that one.
Looks like we have more than alopecia in common. Congrats and best wishes in your new romance. My friends always told me good things come to those who wait. Just didn't think I would have to wait that long (divorced in 1993 after 23 yrs).
I must say you wear 68 well!!! Good for you! And I really like your wig in the pics. I am sure u r an encouragement to many.
Hi Lesley:
I am havingg a good day in spite of the fact that we have SNOW this morning in AB, CAnada, and it is way too early for that. I am thankful that I can winter in Yuma, AZ, USA, but don't head south til end Oct.
The reason I chose Kojack as my name for this site is my fiancé (68 yrs old and finally found the love of my life, got engaged August 13th) said, when I was diagnosed in Aug, "Guess I will just have to call u Kojack then." That was his way of making light of it. I am thankful that I got it later in life (had such a thick head of hair til now) and that it is not life threatening. Just hoping we can arrest any further hair loss. I haven't read of any others having lost all hair on arms and legs as well as frontal, eyebrows and around ears, and wondering if I am alone in that symptom? At present (since August 23rd) I am applying topical 0.05% glucocorticoid lotion twice daily around hairline on head and taking 1 Finasteride every 48 hrs. If no improvement in 2 mos., I go for (cortisone?) injections. Scalp is still very itchy on and off so not sure if treatment is working or not.
Just want to add that my heart goes out to the mom's of little girls who have alopecia. Praying for all of you that they will find a cure for this.
Hi LeslieAnn, Thanks for the Welcome. So glad Ive joined. I feel greatful to have found this Website. I feel relieved that I can talk with people who understand how it feels to lose all your hair or some of your hair. This is a very vulnerable and scarey time. I also read on your wall you wrote a book. Ill have to search for it and give it a read. Have a great day !
Thanks for the message. It is nice to know we are all not alone! My seven year old daughter was diagnosed exactly a year ago with Alopecia Totalis. Within 3 months, she had entirely lost her hair, but not her eyebrows and eyelashes. We are working with a Dermatologist, but have also seeked the help of a Naturopath. After extensive food sensitivity testing, and live blood work, we have eliminated gluten completely, as well as dairy, and eggs primarily. She has been on this regimented diet since November 1. March, she started to get blonde peach fuzz. She now has hair, covering about 70 percent of her head. It is coming in in patches, just as it shed, but we are thrilled to have any regrowth. We understand Alopecia is very unpredictable, and we are prepared for what may be a very long journey, but feel very fortunate at this point. I look forward to reading your book.
Thank you for your welcoming! I just got diagnosed, so I'm definitely new in the situation. Trying to stay positive and happy even though som Days are easier than others. I guess that's a part of the process. Congratulations onn your book, I will definitely order it!
Hi Leslie-Ann, and thank you for your welcoming me.
This website have finally made me realize that I'm not alone in this World and that there's people that understands me and know what I'm going through. I got diagnosed in February, and loosing my hair slowly so I'm definitely a beginner in all of this and trying to get through day by day. I understand that you have a book abt this, i will buy it as soon as I'm back in america. Im visiting my family in sweden right now. Im very excited to read it, I Think it might be just what i need right now.
Thanks Leslie. I'm having rough moments today but I didn't spend the whole day crying so its better than days I've had. I just feel so helpless and I hate, absolutely hate being so emotional about it. My journey is just starting and freaking out about now far its going to progress! Hope you had a great day!
Thank you and she is doing great! A few more spots have appeared (right here at the beginning of school) but depending on the way she wears it, not so noticeable. I look forward to reading your book. Hope you are doing well.
Thanks for your reply LeslieAnn, and for all your info :)
I have looked into the drug you mentioned. It seems from the article I read, that 'they' are going to work on a cream form version of the drug, probably to avoid serious internal sideeffects. It looks like there's a possibility that they might find a working cure within a few years. I'm thinking If only they could identify, isolate and/or remove the factors that cause the sideeffects in their new cream form, then it's going to be a huge discovery.
Hi LeslieAnn,
I ordered your book and must say it was so nice to read and relate too. You are an inspiration! I live in Portland, Or and have just gotten my first full hairpiece, however, I need a few touch ups on it. Can you recommend a hair stylist that works on wigs in Portland? Hope to hear from you. Have a great day!
Thank you for welcoming me to AW. My girls and I are fine and we hope you are too. I just finished reading through your informative profile. I plan to purchase your book for my daughter (and me too!). She doesn't like to talk about her alopecia so I think your reading your book will serve her well in many ways. Thanks again! God bless you...
Thank you for your message, I am brand new to the site, I live in the UK. I'm going to download your book in a minute, I am struggling with the recently diagnosed alopecia so any form of help is amazing, I will look forward to reading it.
Hi LeslieAnn, thanks for the welcome. Sorry it took forever to respond. I seen ur message the other day when I was at work but I had to return from my break. That's awesome that you wrote a book. I'm gonna have to read it. I'm doing good. Other than the sunburn burn on my scalp. :( This is new to me, I really don't know how this group works. But glad I found it. Take care , netty
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Hello, im from Bosnia and i have SCARRING ALOPECIA LICHEN PLANOPILARIS,and doctor told me that i probably have ANDROGENIC ALOPECIJA to! Im 29 years old and im dealing with that since i was 20 years old. I still have my own hair but i decide to by a wig so i was wondering if someone can give me some advice regarding that and i would be glad if i can exchange experiences relatet to diagnosis.Doctors told me that is not hereditary, but im scared that my children could inherit it from me when i decide to have them. I think im dealing with this very good theres a days when i just cry when im alone in my 4 walls and sometimes i just say things could be much worse. You are healthy,smart enjoy in your life. Some people are struggling with the horible desises like that i comfortet myself. But still its hard especially when you know that you never had even a broken tooth not to mention that i have never been sick in my life and for years i have alopecia and i dont know why or how to treat her!
Looks like we have more than alopecia in common. Congrats and best wishes in your new romance. My friends always told me good things come to those who wait. Just didn't think I would have to wait that long (divorced in 1993 after 23 yrs).
I must say you wear 68 well!!! Good for you! And I really like your wig in the pics. I am sure u r an encouragement to many.
Thank you Leslie Ann for your welcome message. I have read about your book on here and I am very much looking forward to reading it! Have a great day.
I am havingg a good day in spite of the fact that we have SNOW this morning in AB, CAnada, and it is way too early for that. I am thankful that I can winter in Yuma, AZ, USA, but don't head south til end Oct.
The reason I chose Kojack as my name for this site is my fiancé (68 yrs old and finally found the love of my life, got engaged August 13th) said, when I was diagnosed in Aug, "Guess I will just have to call u Kojack then." That was his way of making light of it. I am thankful that I got it later in life (had such a thick head of hair til now) and that it is not life threatening. Just hoping we can arrest any further hair loss. I haven't read of any others having lost all hair on arms and legs as well as frontal, eyebrows and around ears, and wondering if I am alone in that symptom? At present (since August 23rd) I am applying topical 0.05% glucocorticoid lotion twice daily around hairline on head and taking 1 Finasteride every 48 hrs. If no improvement in 2 mos., I go for (cortisone?) injections. Scalp is still very itchy on and off so not sure if treatment is working or not.
Just want to add that my heart goes out to the mom's of little girls who have alopecia. Praying for all of you that they will find a cure for this.
Hi LeslieAnn, Thanks for the Welcome. So glad Ive joined. I feel greatful to have found this Website. I feel relieved that I can talk with people who understand how it feels to lose all your hair or some of your hair. This is a very vulnerable and scarey time. I also read on your wall you wrote a book. Ill have to search for it and give it a read. Have a great day !
Thanks
Tiffany W
Thanks for the message. It is nice to know we are all not alone! My seven year old daughter was diagnosed exactly a year ago with Alopecia Totalis. Within 3 months, she had entirely lost her hair, but not her eyebrows and eyelashes. We are working with a Dermatologist, but have also seeked the help of a Naturopath. After extensive food sensitivity testing, and live blood work, we have eliminated gluten completely, as well as dairy, and eggs primarily. She has been on this regimented diet since November 1. March, she started to get blonde peach fuzz. She now has hair, covering about 70 percent of her head. It is coming in in patches, just as it shed, but we are thrilled to have any regrowth. We understand Alopecia is very unpredictable, and we are prepared for what may be a very long journey, but feel very fortunate at this point. I look forward to reading your book.
Thank you for your welcoming! I just got diagnosed, so I'm definitely new in the situation. Trying to stay positive and happy even though som Days are easier than others. I guess that's a part of the process. Congratulations onn your book, I will definitely order it!
Hi Leslie-Ann, and thank you for your welcoming me.
This website have finally made me realize that I'm not alone in this World and that there's people that understands me and know what I'm going through. I got diagnosed in February, and loosing my hair slowly so I'm definitely a beginner in all of this and trying to get through day by day.
I understand that you have a book abt this, i will buy it as soon as I'm back in america. Im visiting my family in sweden right now. Im very excited to read it, I Think it might be just what i need right now.
hope all is well and thank you for your email!
Thank you and she is doing great! A few more spots have appeared (right here at the beginning of school) but depending on the way she wears it, not so noticeable. I look forward to reading your book. Hope you are doing well.
Thanks for your reply LeslieAnn, and for all your info :)
I have looked into the drug you mentioned. It seems from the article I read, that 'they' are going to work on a cream form version of the drug, probably to avoid serious internal sideeffects. It looks like there's a possibility that they might find a working cure within a few years. I'm thinking If only they could identify, isolate and/or remove the factors that cause the sideeffects in their new cream form, then it's going to be a huge discovery.
(Link to a published paper from Yale about their drug discovery)
http://news.yale.edu/2014/06/19/hairless-man-arthritis-drug-spurs-hair-growth-lots-it
(Link to description of the sideeffects of the Xeljanz drug)
http://www.rxlist.com/xeljanz-drug.htm
Take care,
Tommy
I ordered your book and must say it was so nice to read and relate too. You are an inspiration! I live in Portland, Or and have just gotten my first full hairpiece, however, I need a few touch ups on it. Can you recommend a hair stylist that works on wigs in Portland? Hope to hear from you. Have a great day!
Thank you for welcoming me to AW. My girls and I are fine and we hope you are too. I just finished reading through your informative profile. I plan to purchase your book for my daughter (and me too!). She doesn't like to talk about her alopecia so I think your reading your book will serve her well in many ways. Thanks again! God bless you...
Chris
Hi LeslieAnn,
Thank you for the welcome. I'm having a wonderful day as I hope you are. I look forward to reading your book and communicating with you in the future.
Have a good evening,
Rikki
Hi LeslieAnn,
Thank you for your message, I am brand new to the site, I live in the UK. I'm going to download your book in a minute, I am struggling with the recently diagnosed alopecia so any form of help is amazing, I will look forward to reading it.
Kind wishes,
Kristy
I appreciate your welcoming comment. Thanks! You look and sound like a beautiful person and congrats on the success of your book.
Take care,
Linda
Thank you for your welcome. I'm doing well. How are you?
I want to check out your book sometime. It seems like it's a good one :)
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.