KIM - Jessica's Mom's Comments

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At 11:27am on May 15, 2008, Cindy said…
Kim, glad Jessica got the letter...Samantha is looking forward to her reply..Cindy
At 6:52pm on May 12, 2008, Cindy said…
Hi Kim, Did Jessica's get Samantha's letter? How are you doing?
Cindy
At 7:48am on May 11, 2008, Maria, Mia's Mom said…
Kim
HAPPY MOTHERS DAY
Maria
At 2:18pm on May 2, 2008, Cindy said…
Anytime Kim...I have been learning along the way myself..I am looking forward to taking her to the kids hair club tomorrow. Please send me your address as well. Samantha told me yesterday that she would always be pen pals with kids with Alopecia...We are waiting for your address too..I sent you an email through this website. if you did not get it, there is a pic of envelope at the top of your page and you can click on it. It is a nice way to send private messages at times. I will let you know how it goes tomorrow. Cindy
At 3:45pm on May 1, 2008, Cindy said…
You've Got Mail!
At 2:51pm on May 1, 2008, Cindy said…
Kim..Here is a link for Hairclub of Men in Utah.If any of these locations are near you I suggest calling the kids club number to get the paper work..The hair pieces are free..We have our first apt on Sat. http://www.hairclub.com/utah.php.. Also, have you tried contacting children with hairloss. They will send you a temp wig to keep and to a place to get a custom wig made. Again it is at no cost to you. Also, Samantha wears a headband that has sewen into them and she loves them. Infact, it was all she wore last week in Florida and she wears them on the weekends. You can visit hatswithhair.com. I hope this info helps..You can ask me Sat if i like the hairclub for kids.HEHE..

The wig Sam wears now I bought and it is an Amy Gibson child wig. I got this wig because she can swim and sleep in, which of course she has never done. She prefers her swim cap. It seems like my concerns about what I was looking for in a wig have changed a little, but I still want these two features in a wig.

Samantha would love another pen pal..She loves to write..I will email you our address...

Are you trying any treatments at the moment? We are working with Children's Hospital in Boston now are doing a irritant treatment. We are in the early stages, but my motherly instinct thinks it will kick in soon....cindy
At 2:13pm on May 1, 2008, MARIA (mom of Savanna) said…
Hi Kim, I was glad to hear back from you. About the Locks Of Love you might have to send a w2 just to verify income, I believe it is totally free if your income is less than $150 thousand a year, If it more than that i really dont know how the process works...but the vaccume sealed wigs are of human hair, there is a long process to get it done. You have to make a mold of her head and she would have to be completly bald to do the mold then you have to send that back to them, then after that is done they take the mold and cut a plastic like mold and then they send it to you and try on her just to make sure it is the right fit, then you send that back and then they start making the wig which it takes up to 5 months to make...I was told anyway!! But since Jessica isnt completly bald they may just send her a synthetic one, unless you want to shave her head to do the mold for the vaccumed sealed wig...Savanna is completley bald so we didnt have to do anything like that...I am hoping that savanna will like the human hair wigs better than the synthetic ones she has, they bother her so bad she cant stand it. You might want to try and LOL and ask them some questions, and another mother on this site told me about this other site, www.childrenwithhairloss you might want to check in on that one too, I filled out the app and turned it in and savanna recieved her first wig from them the other day, it was a lil diffrent from what she has but she did like it, but not good enough to wear everywhere...I wish you good luck with this and maybe you might find something just right for Jessica....Hope to hear from you again...ttyl maria
At 10:34pm on April 30, 2008, Cindy said…
Hi Kim, I have 6 yr old who has been living with AA for just over a year now..She quickly lost all of hair about 5 months after her diagnosis. She has been wearing a wig since Dec and says she loves them. We are trying a new wig out. We have an apt at the Kids Hair Club which is part of Hair Club for Men. They have a program that gives kids free hair replacements. We have our first apt on Sat so I can not comment on them yet. If you go to their website you can get the number for the corporate office to get an application. It is easy and they are really just consent forms. A mom locally high recommend we try it..Hope this helps. And your daughter looks like she has a sunshine of a personality. Cindy
At 12:08pm on April 30, 2008, MARIA (mom of Savanna) said…
Hello Kim,

Thank you for the comment we do appreciate it, and your lil Jessica is also a very beautiful lil girl. Savanna also loves dance, she has been doing it for 3yrs now and has a dance recital coming up on May 10...I always have her hats made for her costumes and she is pretty happy with them, she doesnt really like wigs, she says they itch her head, so i dont make her wear them, she only does when she is playing in the house. Savanna loves her hats and feels pretty secure with them as for right now anyway....I am sure when she gets a lil older she might want to wear wigs all the time. We are waiting for the vaccumed sealed wigs from Locks of Love, and we recieved a new wig from childrenwithhairloss, she thinks it is pretty, but she hasnt wore it yet...If you have any other questions or just want to talk feel free to comment back...Maria
At 6:49pm on April 27, 2008, Carmella said…
You're girl is TOO CUTE! I hope that she will have all positivity and wonderful friends that she needs.
Love
CAR
At 5:23pm on April 25, 2008, Maria, Mia's Mom said…
Hi, Welcome
my daughter has alopecia for over a year she is now 4 1/2.
Maria
At 6:36pm on April 24, 2008, Dee Connelly said…
HI Kimberly, We just wanted to welcome you to the site!
At 9:46am on April 24, 2008, Cheryl, Co-founder said…
Hi Kimberly, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

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