Janine-Connor's mom's Comments

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At 9:42pm on December 27, 2010, alfred guerar said…

I was reading on this site that you are using moducare to help your sons hair grow back. I have also been using moducare on my 7 year old son and noticed his hair coming back very slowly. Do you use anything besides the moducare. We have our son on moducare and fish oil. Your son by the way is very adorable.

 

Thank you

Al guerra

At 2:45am on November 4, 2009, Fizza said…
Hi Janine
Your son is so adorable. My son(14months old) also has alopecia. We noticed it in September - 2 spots and now he's lost I'd say 80% of his hair. But it isn't completely bald - just veryyy thin in those areas. Soem of your son's pics remind meof my son. I keep hoping its going to stop there but it looks like he's going towards being AT. I also have a 4yr old son. Aren't boys fun? I'm curious, how long did it take before you noticed hair regrowth?
Fizza
At 5:19pm on January 20, 2009, Cindy said…
Hi Janine.How is Connor doing? I wanted to let you know that a lunch in Boston has been planned for next Sat Jan 31st at 12:30. I have posted all the details on the Mass board. But, if you are interested in coming email me and I will send you the detailed info. We have about 40 people coming. Lots of families with kids in Connors peers group, about age 5.
At 9:53am on December 15, 2008, Cindy said…
Hi Janine, How is Connor doing? I wanted to let you know that there is another get together in Boston for lunch on Jan 31st if you are interested. We are meeting at the Prudential Center and having lunch at the California Pizza Kitchen at 12:45..Cindy
At 6:56pm on November 4, 2008, MONIQUE said…
REALLY?? SEE THATS WHAT I AM ALWAYS THINKING ABOUT..HAYDEN DOES PRETTY WELL THE WAY HE IS...BEING THAT WE HAVE WAY MORE GOOD DAYS THEN BAD WHEN IT COMES TO HIM HAVING NO HAIR...MY MAIN ISSUE IS HIS SKIN AND NAILS...HE SEEMS TO BE OK NOW...WE WILL SEE HOW IT GOES WHEN HE ENTERS SCHOOL....OUR DOCTOR DID WANT US TO START ALL THE SHOTS..BUT I DECIDED THAT I WASNT READY FOR THAT...CONNOR LOOKS GREAT AND I WISH NOTHING BUT THE BEST FOR YOUR FAMILY....I AM PLANNING ON BUYING THE PILL YOU GUYS HAVE CONNOR ON..THATS ACTUALLY WHY I CAME ON..TO SEE WHAT IT WAS CALLED! TALK TO YOU SOON!
At 6:27pm on November 4, 2008, MONIQUE said…
OH MY GOODNESS!!! I HAVENT BEEN ON IN SOOOO LONG..AND OF COURSE I HAD TO CHECK ON CONNOR AND I AM SOOOO HAPPY TO SEE HIS NEW PICTURES!!!! THAT IS AMAZING! HAYDEN HAS A LITTLE BIT OF REGROWTH..AND HIS EYELASHES ARE ALMOST AL THE WAY BACK...I HAVENT TREATED HIM AT ALL...BUT LOOKING AT CONNOR...WOW! I DONT KNOW WHAT TO DO...MAYBE I SHOULD BE DOING THE SAME THING AS YOU ALL ARE. MY MAIN PROBLEM IS HIS NAILS..WHAT ABOUT CONNOR??? DOES HE HAVE ANY PROBLEMS WITH THEM???? WELL..ANYWAYS..I AM SOO HAPPY THAT CONNOR IS HAVING SUCH A GREAT TURNOUT! KEEP IN TOUCH!
At 7:36am on October 14, 2008, Cindy said…
Well, he looks AMAZING and I hope it all comes back....Sam has been growing since mid June and it so slow..
At 5:30pm on October 13, 2008, Cindy said…
Janine, Connor looks so adorable!! How much regrowth does he have...He gives me hope ....Cindy
At 3:06pm on September 5, 2008, Cindy said…
Whatever you decide, I hope you have a wonderful birthday!!! It would be great to meet you, but there is always next time...
At 3:52pm on September 4, 2008, Cindy said…
Janine, are you planning to come up to Boston next Sat. I am planning on it and I love Boston. I am planning to spend the day down there. Samantha loves the street shows in Fanieul Hall. If you come and need some parking tips or directions let me know..Cindy
At 7:25pm on September 3, 2008, Dotty said…
Hi Janine,
I'm pretty sure that we will be going to the Cheesecake Factory for brunch at around 11 a.m. We would love to have you join us. It would be cool to celebrate your birthday with you too. A couple of us are going to a tattoo convention afterwards. I'm hoping to enter my head in the contest..LOL You can email me at hottie_dotty@hotmail.com with any questions or just to chat.
Love and Hugs,
Dotty
At 2:14pm on September 2, 2008, Janine-Connor's mom said…
Thanks Cindy, I hope Sam's regrowth continues for her! Alopecia is just a rollercoaster ride-ups and downs and who knows what is around the next bend??!!
At 1:43pm on September 2, 2008, Cindy said…
Sorry to hear that Janine..I hope it stops and turns itself back around again..Connor is adorable anyway you look anyhow!!
At 6:35am on September 2, 2008, Cindy said…
Janie, I just popping by to say hi and see how Connor's regrowth was coming, but I see his regrowth has progressed. That is so awesome!! How long has it taken for his hair to get that long? Samantha's hair is growing and still filling in. Cindy
At 7:29am on July 31, 2008, Cindy said…
Janie, Hope you all are having a nice summer. I was wondering how Connor's regrowth is going? Sam started regrowth in June. Cindy
At 3:54pm on June 17, 2008, Annette said…
what at wonderful little boy!
At 10:20pm on June 16, 2008, kim trivett said…
Your little guy is so handsome, hope everything is going well.
At 7:30pm on June 16, 2008, Cindy said…
Janie, Connor looks AWESOME!!!!! Is his hair coming in at a good pace now? I could not help to notice is new picture on friend list...Are you already to enjoy a nice summer with the kids? Cindy
At 9:16pm on June 12, 2008, Karen said…
I know exactly how you feel. I get paranoid that Amber will start shedding again but I always keep my chin up and think positive and keep teliing myself that maybe this is just a phase she is going through.
At 11:00am on May 28, 2008, Mommy said…
Hi Janine,

Connor is adorable. It is great to see other beautiful and happy kids with this condition. I wish we ( the other families) lived close so the kids could get to know each other. His regrowth looks great- do you think it is the plant sterols? I haven't looked at natural alternatives yet. Did you hear of this working with others?

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