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Annette's Discussions

Maybe a stupid question....:

Started this discussion. Last reply by Susan Jun 18, 2014. 13 Replies

AA as a baby?

Started this discussion. Last reply by Annette Jun 16, 2008. 3 Replies

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About Me:
Hi - I am a mother of 4 children (14, 12, 10 and 6 years old) - three of my children have alopecia:

My daughter got one spot 4 years ago (1 cm) - it is still the same size and she didn´t get any other spots (she was 8 when I discovered her spot and she never get a treatment).

My oldest son (now 14) got 3-4 spots when he was 7 years old - and they were pritty big. He got a kind of light-therapy and all hair came back within a half year. About one year later he got 2 spots again - but no treatment - and all hair came back anyway. Recently 16.6.2014) I found one new spot (left side, about 1 cm)ánd today (19.6.2014) a new spot on the back of his head (1 cm)

My youngest son (10) got 1 spot in 2013(ca. 1 cm big) - and recently another little spot (1 cm)- he is not loosing more hair...

(My sister in law has alopecia universalis).
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (33 comments)

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At 5:47am on March 24, 2014, Susi said…

Liebe Grüsse aus Deutschland :)

At 3:26pm on December 24, 2013, Wendy said…

I am looking into a hair system from Jeffrey Paul in Ohio for my teen daughter.  I know wigs for kids pays for them in you are diagnosed.

At 3:23pm on December 24, 2013, Wendy said…


I have alopecia and my daughter was just diagnosed.  Are there any other support groups in the Cleveland area?

At 2:11pm on November 12, 2013, Cheryl, Co-founder said…

Hi Annette,  I wanted to see how you are doing?

At 1:43pm on November 7, 2013, DaggiFK said…

Hallo Annette, 

Danke für Deine Freundschaftsanfrage, ich habe mich sehr darüber gefreut.

Trost zu spenden fällt schwer. Ich kann nur sagen, Du hast so bezaubernde Kinder. Versuche einfach die Hoffnung aufrecht zu erhalten, dass die Haare wieder kommen. 

Ich bin Mitglied im Verein AlopeciaAreata Deutschland e.V.  Mir helfen die jährlichen Treffen mit ebenfalls Betroffenen. Es sind "leider" auch immer mehr Kinder betroffen.

Ganz liebe Grüße


At 7:43pm on April 12, 2010, Lisa F and Chloe said…
Chloe so far has been very lucky. She has only 8 bald spots that we are still able to hide. Her hair is starting to thin in additional spots. We will go to the dermatologist on the 26th, I hope we will be able to find more help.
Your children are adorable, such cute photos. I will share there happy smiles with Chloe.
At 1:16pm on April 9, 2010, Lisa and Natalie said…
Hello! It's been 4 weeks for us and I can see some very tiny hairs growing on the very edge of the spot, nothing in the middle though. So that's hopeful, and no new ones thankfully! We are doing well, it's early spring here, how about over there?
At 5:52pm on March 24, 2010, Lisa and Natalie said…
Hello Annette! I saw the pictures on your page of your children and they are just beautiful! It's only been a week and I don't think there has been any change in the size of her spot. Her hair is pretty thick so it's not obvious to most people, but when when her hair is wet it's very obvious, so I get a pit in my stomach when it's time to wash her hair worrying about what I will find. Her 9th birthday is this weekend so she's pretty excited about that. She knows that she has AA, but doesn't really know what it is exactly, just that she has a bald spot. Let me know how you are from time to time....take care,
At 1:44pm on February 25, 2010, summer said…
Hallo Annette,
nun ich habe Dir schon vor einem Jahr geschrieben. Grins. Schön das wir nun Kontakten.
Liebe Grüße Summer
At 3:39am on March 16, 2009, summer said…
Hallo Annette,

Deine Bilder sind toll und ich wünsche Dir viel Kraft für Dich und Deine Kinder. Ich bin als Erwachsener erkrankt und habe selbst zwei kleine Kinder. Siehe mein Profil. Ich würde mich sehr über Austausch freuen.
Liebe Grüße Summer


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