Celeste Edwards's Comments

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At 1:47pm on October 9, 2008, Jenn said…
well, i hung on to my hair as long as i could. i wore it up in a ponytail until that couldn't hide the bald spots and that is when i let it go. also had the problem of the hair all over the house and i was so tired of that and it was clogging up my vaccuum cleaner and that was a problem. i am having a good day today. it goes up and down as you know. i would commit myself if i could go to one of the cushy mental hospitals that you see in the old movies where they are painting flowers and are on some great meds - but i am so broke i would be in a straight jacket and drooling locked in a room so i figured out i just have to deal with it. i have decided against the wigs though because i just can't figure them out so it will just me the way i am. we went to lunch today and i could feel people staring and that bothers me. i am trying to not let it.

anyway my email is jenn.rogers@hotmail.com.

hope you are doing ok. we have a lot of plans for the weekend i have discovered that the busier i am the better i feel.

have a great time with you sisters, that is always good for me so i hope you enjoy.
At 11:44am on October 8, 2008, Jenn said…
hey celeste, just checking on you to see how you are. im having a good day so i am thankful for that. went to the doc yesterday and that was depressing, but im better today. the mood swings are a little crazy!
At 10:59pm on October 3, 2008, Amber Lounder said…
Hi Celeste you've come to the right place Finding this site sved my sanity AA for me is brand new I had a full head of hair 2 months ago It's hard, but it gets easier There will be great days, good days and pissy days Chin up Big hugs :)
At 5:23pm on October 2, 2008, Jenn said…
you and i think alike!!! a big ol glass of wine sounds fantastic!
At 4:38pm on October 2, 2008, Jenn said…
thank you celeste! i too am sick of making lemonade. i think that this is the best site ever and will be talking to everyone constantly so that i don't go postal around here. i am in alvarado, tx which is actually just south of ft. worth so if you know of anyone here that knows about this stuff, that would be great.
At 4:05pm on October 1, 2008, LeslieAnn Butler said…
Hi Celeste,
How are you today? I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and WELCOME!
LeslieAnn
At 1:04pm on October 1, 2008, Mandy said…
Hi Celeste! Thanks for the sweet comment on my hair. ;o) I am from Chicagoland and I got my wigs out there. (Just moved to Fort Wayne about a month ago for school.) I went to a store in Willowbrook called Naturally Yours. I'm sure there's somewhere closer for you though that would be good. I haven't really looked into wig stores out here yet...I've been so busy at school I just haven't had time! But this short wig I have is a synthetic Jon Reneau. The longer wig I have in my pics is a synthetic Raquel Welch. Both are monofilament tops.

I'm sorry to hear that your hair came back only to have it leave you again. :o( That is not easy, I imagine. Hang in there, girl! It's not so bad. ;o)

Hugs,
Mandy
At 11:24am on October 1, 2008, Linda said…
Welcome Celeste!
At 3:45pm on September 30, 2008, Mary Sarra said…
Hi Celeste, I can definately relate to how you are feeling. I have been dealing with AA for about 10+ years now. I still don't have the confidence to share with alot of people. I have tried the steroid shots and though they gave me new growth, I was still getting new spots just as quick. I have been wearing a wig now for what seems like forever. I went with a new freedom wig because it is so much like natural hair. I still have never enjoyed things in life that I used to. Real hard to feel normal when you have no hair. I have never been very vain, but it is harder as a women with no hair. I miss the things in life like swimming with my daughter, roller coasters and anything else I used to do. I still can't bring up the subject with my other half that I have been with almost a year. Not sure anymore if he knows or not. I think he was once told about it, but I also feel he forgot since we weren't together then. I can tell you, not sure if you know, there is a women in your area who holds support groups at the Fishers Library. her daughter has AU. Her email is sandyrust@netscape.net. I live in Kokomo and haven't been able to make one. Seems so far away when gas is so expensive. All I can say is keep your chin up. It could be worse. I am not much help since I can say I haven't felt normal in a very long time, but wanted you to know you are not alone.

Take care, Mary
At 11:13am on September 30, 2008, Cheryl, Co-founder said…
Hi Celeste, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 10:53am on September 30, 2008, rj, Co-founder said…
Hi, Celeste. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 12:47am on September 30, 2008, Drew said…
Hey Celeste, welcome to Alopecia World. I hope you find the answers to some of your questions here and also the support you are looking for. It really is a great site with some great people.

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