Thank you, Thank you, Thank you!! I'm so sorry for bugging you with the same questions over and over. I'm just to scared I will end up with a really bad wig again. I wasted a !000 on the last one as you know with kids theres always something else that money could have gone to. But as you also know have good wig makes a wold of differnece.
I had pulled out the wig the other day to see if I felt the same way about it still and Yep still hated it! So I donated it to the ACS maybe somene else will like it.
So I went to a nearby slaon that sell wig and found a synthetic that maybe will work out until my hair either falls out totally or starts to regrow, Cause I'm getting the Vacuum for sure if it falls out I'll shave it like you did.
So not having luck with the regrowth?? I just luv your vacuum so if your happier with that just go with it if not then growing it and waiting to see what happens is fine too I've been doing it for the last year. I'm just kind of sick of getting the shots just for a new spot to fall out.
At this point in time the top of my head has a few little spot that are close together so it looks pretty thin. then one on the side of my head that you can't see and about 4 underneath that look like i may lose all of the bottom if they blend together. I feel like the rim of my head is falling out and I'll be left with a round hat of hair on the back like beenie.
How cute would that be.
So Blad Girls do lunch is coming to my area so do you think someone like us with regrowth are still aloud to go?? Would love to but don't want to piss anyone off.
Jess
ps hows Miss DeLaney? they grow fast is she doing anything new.
Hey Casey,
I have a few more questions if you don't mind? So did your vacuum piece still fit during your pregnancy? I'm asking becasue I still have 20 lbs to lose and I've heard that sometime with alot of loss or gain it may not fit the same?
Also I had a human hair wig and the texture was thick and on me had very little movement. It also was very hard style is that becasue it's not European hair. I'm just so scared that I will invest a ton of money in it and be disapointed again.
Well sounds like you had a great day at the baby shower. It's must have been a great feeling to go in with your head held high and to be able to talk freely with everyone about alopecia. I wish I could do that when I shave my head I think it made some of my friends uncomfortable to be around me with out covering my head.
So the vacuums last only 18 months or that's just how long before they need repairs? Do you have a few pieces? Oh all this really scares me I thought I was past all these feelings and was ok with anything that came my way but when it comes down to it I just feel so lost and alone. My husbans is totally fine with me not having hair and so are the kids it's me I feel like I'm losing part of who I was and I wont be the same. Please tell me it gets easier?
On a lighter note do any of your friends have children? Jason and I were 21 and 22 when we got married and I got preggers with Grace 3 month later so we were like the only people in our group with kids. Our friends are just now having kids and getting married. I'm glad we started having our kids in our 20's cause now we are in our 30's and soon we will be able to really enjoy their teen years and be involved with their activities.
I'm glad to be able to chat with you, I hope one day to have my act together with this hair loss and accept myself as I am.
Casey,
Hi thanks for all the information. Yes I can come up with so many more like on average how long do the vacuum wigs last? Do you have to color them like do them fade fast from sun light?
I totally agree my hair was just like your hair in your pictures ,it's always been on the thinner side and smooth and shinny. Right now I was thinking about leaving it alone until I can't hide the spots then I will shave it again. I guess I'd rather have no hair then really bad hair. So i've read they take a while to make so I would most likely just get a synthetic wig to carry me through, can you recommend a brand that's pretty good?
So do you and your baby girl have big plans for the weekend? My husbands birthday is tomorrow so we will most likely hang out maybe go to dinner. you'll notice after kids your weekends become some what different fun and very enjoyable but different.
How is your regrowth coming along? From your pictures it looks like your getting a lot. So you went AT? Like in my blog I've started losing body hair do you think that it's getting worse? I know it's hard to tell but I think my head hair has only stayed in this long becasue of the shots I guess only time will tell. I should have just let nature take it's course then if it came back then I would know it was real not just an induced remission from the injections.
So how is the weather there from what the news says it's getting pretty bad.
Wow let me just say your a rocking gal! Have you looked in the mirror very beautiful even without hair. I don't wear a wig right now i have my own hair again but have spots in the front now and back faling out. Before I lost both sides and bottom and shaved it off and got a wig which i hated. I was a real hair wig but looked nothing like me. the hair was thick and had very little movement I'm planning on donating it maybe it will work better for someone else. My picture is from Jan 08 i stopoed wearing a wig as soon as i had regrowth but your right i felt different.
I thank me lucky stars that I didn't lose my hair in high school God I don't think i would have made it through the dark days. I only after a few months of crying and hiding out figured out that it's not about me anymore and I had to pick myself up to take care of my babies.
No i stay home right now I stopped working about a yr ago with 3 kids we couldn't afford daycare. My husband just works crazy hours so I can stay home with the kiddies they are a lot of work I don't know how i could do both.
So the vacuum wigs are the best you think? I just want the best possible way to feel normal again if I lose a ton again. So you just shaved daily to make it fit secure? If you don't mind me asking how much did it run you and where did you get it styled?
Thanks Casey. You know what really gets me is that this whole thing is always in the back of my mind if not in the very front. I hate that it controls me. Why the hell would I not judge someone else and I damn myself? I am intelligent. I know better, yet for the life of me I cannot get a grip on this. It feels like I am hiding when I style my hair. It is always about hiding the spots that are gone and not about the style. I NEVER wanted to be the girl who told everyone to roll up the windows for fear it would ruin my hair. My hair is falling out. Ok. But what is it doing to me?? I am not myself, that is really what I want back more than anything. What kind of alopecia do you have? Did the docs know anything to help you? Did they try? Do you feel beautiful? Did you get yourself back? I hear people say that their children get them through the hard times...I do not have any children. Any words you have will help. I feel like an idiot. I have to almost laugh at myself sometimes as I am flailing like a beached fish unable to breath. You sound happy and that is what I want to sound like again. Hope all is well with you!
Thanks for getting back so fast. Well were do I start, my hair started to fall out in May of 07 when I was about 5 months along. I was sooo stressed there was a lot happening in my life that was hard for me to handle it's a long story lets just say i don't do well with a ton of stress. I noticed the hair coming out in handfulls behind my ear and like my bio states I lost about 50 % of my hair. I started the injections in Oct of 07 so I;ve been getting them of a year. I did have total regrowth within 4 months but now it's falling out again i have a few spots underneath of my hair and the sides where a man would thin out are falling out again. So yes I have way to much hair right now to wear a vacuum but I do know how fast it can all fall out again. That's what really sucks I thought I was going to get luck cause I've talked to a lot of people that it's fallen out then grown back and stayed for 5 10 year before it happend again.
So when you say vacuums are hot, just how hot are they. Is it easy to get past?
So you just had a baby girl what's her name? I have 2 girls and a boy. Grace is almost 8 Ava 3 and Aiden turned 1 last week!! Hold on tight the time will fly!! They are what get me past what I think of myself. I had a really really hard time with the hairloss and like you said baby blues ( postpartum depression) I was started on Lexapro for the depression. I can't ever let my life get that bad again I didn't think about anything ecxcept my hair and thought my life was over. I was in a real bad place I swear I will never let that happen again. My kids really suffered from all of it.
well thanks for the infor look forward to talking to ya soon
jessica
So this is my second time around with AA I'm looking into Vacuum Wig and read that your is can you give me some info I love your cut to I'm so happy to see your pic casue I'm kinda down in the dumps about losing it again.
Hey Casey, thanks for checking in. I actually took a break from here and tried to get away from all of the things that make me think about appearances. My hair is still falling out and I just had to get a better grip on things. How about you? Your baby is adorable! Congrats!
Lisa
Yes! Portland is beautiful! Did you see the photos on my web site of Portland? Those were taken from my deck. The other ones were taken at the beach.
Yes, I would like to fall in love, too. I think that may never happen again, though...
Hey Casey!
Thank you. And likewise, if you ever feel like chatting Ill be here as well. Although not the most active member due to a heavey workload! =D
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I had pulled out the wig the other day to see if I felt the same way about it still and Yep still hated it! So I donated it to the ACS maybe somene else will like it.
So I went to a nearby slaon that sell wig and found a synthetic that maybe will work out until my hair either falls out totally or starts to regrow, Cause I'm getting the Vacuum for sure if it falls out I'll shave it like you did.
So not having luck with the regrowth?? I just luv your vacuum so if your happier with that just go with it if not then growing it and waiting to see what happens is fine too I've been doing it for the last year. I'm just kind of sick of getting the shots just for a new spot to fall out.
At this point in time the top of my head has a few little spot that are close together so it looks pretty thin. then one on the side of my head that you can't see and about 4 underneath that look like i may lose all of the bottom if they blend together. I feel like the rim of my head is falling out and I'll be left with a round hat of hair on the back like beenie.
How cute would that be.
So Blad Girls do lunch is coming to my area so do you think someone like us with regrowth are still aloud to go?? Would love to but don't want to piss anyone off.
Jess
ps hows Miss DeLaney? they grow fast is she doing anything new.
I have a few more questions if you don't mind? So did your vacuum piece still fit during your pregnancy? I'm asking becasue I still have 20 lbs to lose and I've heard that sometime with alot of loss or gain it may not fit the same?
Also I had a human hair wig and the texture was thick and on me had very little movement. It also was very hard style is that becasue it's not European hair. I'm just so scared that I will invest a ton of money in it and be disapointed again.
jessica
jess
Well sounds like you had a great day at the baby shower. It's must have been a great feeling to go in with your head held high and to be able to talk freely with everyone about alopecia. I wish I could do that when I shave my head I think it made some of my friends uncomfortable to be around me with out covering my head.
So the vacuums last only 18 months or that's just how long before they need repairs? Do you have a few pieces? Oh all this really scares me I thought I was past all these feelings and was ok with anything that came my way but when it comes down to it I just feel so lost and alone. My husbans is totally fine with me not having hair and so are the kids it's me I feel like I'm losing part of who I was and I wont be the same. Please tell me it gets easier?
On a lighter note do any of your friends have children? Jason and I were 21 and 22 when we got married and I got preggers with Grace 3 month later so we were like the only people in our group with kids. Our friends are just now having kids and getting married. I'm glad we started having our kids in our 20's cause now we are in our 30's and soon we will be able to really enjoy their teen years and be involved with their activities.
I'm glad to be able to chat with you, I hope one day to have my act together with this hair loss and accept myself as I am.
Have a great day
jessica
Hi thanks for all the information. Yes I can come up with so many more like on average how long do the vacuum wigs last? Do you have to color them like do them fade fast from sun light?
I totally agree my hair was just like your hair in your pictures ,it's always been on the thinner side and smooth and shinny. Right now I was thinking about leaving it alone until I can't hide the spots then I will shave it again. I guess I'd rather have no hair then really bad hair. So i've read they take a while to make so I would most likely just get a synthetic wig to carry me through, can you recommend a brand that's pretty good?
So do you and your baby girl have big plans for the weekend? My husbands birthday is tomorrow so we will most likely hang out maybe go to dinner. you'll notice after kids your weekends become some what different fun and very enjoyable but different.
How is your regrowth coming along? From your pictures it looks like your getting a lot. So you went AT? Like in my blog I've started losing body hair do you think that it's getting worse? I know it's hard to tell but I think my head hair has only stayed in this long becasue of the shots I guess only time will tell. I should have just let nature take it's course then if it came back then I would know it was real not just an induced remission from the injections.
So how is the weather there from what the news says it's getting pretty bad.
Thanks for all the support
Jessica
Wow let me just say your a rocking gal! Have you looked in the mirror very beautiful even without hair. I don't wear a wig right now i have my own hair again but have spots in the front now and back faling out. Before I lost both sides and bottom and shaved it off and got a wig which i hated. I was a real hair wig but looked nothing like me. the hair was thick and had very little movement I'm planning on donating it maybe it will work better for someone else. My picture is from Jan 08 i stopoed wearing a wig as soon as i had regrowth but your right i felt different.
I thank me lucky stars that I didn't lose my hair in high school God I don't think i would have made it through the dark days. I only after a few months of crying and hiding out figured out that it's not about me anymore and I had to pick myself up to take care of my babies.
No i stay home right now I stopped working about a yr ago with 3 kids we couldn't afford daycare. My husband just works crazy hours so I can stay home with the kiddies they are a lot of work I don't know how i could do both.
So the vacuum wigs are the best you think? I just want the best possible way to feel normal again if I lose a ton again. So you just shaved daily to make it fit secure? If you don't mind me asking how much did it run you and where did you get it styled?
talk to you soon
jess
Thanks for getting back so fast. Well were do I start, my hair started to fall out in May of 07 when I was about 5 months along. I was sooo stressed there was a lot happening in my life that was hard for me to handle it's a long story lets just say i don't do well with a ton of stress. I noticed the hair coming out in handfulls behind my ear and like my bio states I lost about 50 % of my hair. I started the injections in Oct of 07 so I;ve been getting them of a year. I did have total regrowth within 4 months but now it's falling out again i have a few spots underneath of my hair and the sides where a man would thin out are falling out again. So yes I have way to much hair right now to wear a vacuum but I do know how fast it can all fall out again. That's what really sucks I thought I was going to get luck cause I've talked to a lot of people that it's fallen out then grown back and stayed for 5 10 year before it happend again.
So when you say vacuums are hot, just how hot are they. Is it easy to get past?
So you just had a baby girl what's her name? I have 2 girls and a boy. Grace is almost 8 Ava 3 and Aiden turned 1 last week!! Hold on tight the time will fly!! They are what get me past what I think of myself. I had a really really hard time with the hairloss and like you said baby blues ( postpartum depression) I was started on Lexapro for the depression. I can't ever let my life get that bad again I didn't think about anything ecxcept my hair and thought my life was over. I was in a real bad place I swear I will never let that happen again. My kids really suffered from all of it.
well thanks for the infor look forward to talking to ya soon
jessica
So this is my second time around with AA I'm looking into Vacuum Wig and read that your is can you give me some info I love your cut to I'm so happy to see your pic casue I'm kinda down in the dumps about losing it again.
Lisa
Yes, I would like to fall in love, too. I think that may never happen again, though...
It's hard leaving them for the first time!
I am doing great -- painting today!
Hugs!
Hugs!
Rog
Just stopping by to say Hello. Hope all is well. Big hugs to you and Delaney.
Love and Hugs,
Dotty
Thank you. And likewise, if you ever feel like chatting Ill be here as well. Although not the most active member due to a heavey workload! =D
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.