John
  • Male
  • Cortland, NY
  • United States
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Relationship Status:
Single
About Me:
I'm an ecclectic daydreamer who often doesn't set much of life to time unless I have too (work, et cetera). I am an artist at heart whose ideas are never put down. I am person who loves to get captured in the moment. I am superenergized only stopping to eat, sleep, or enjoy what's around me. I am a father of two kick ass daughters who teach me something new everyday. I don't seem to have one foot on the ground for a long period of time. If I am not teaching English at Erie Community College or as a Coordinator for Adult Education, I am walking around town with head phones and a cup of coffee, having dinner chats with my daughters, reading whenever I get a chance, watching the Independent Film Channel(IFC.COM), cycling...
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

John's Blog

Please give me some suggestions to help my daughter:)

Posted on April 25, 2008 at 3:11pm 11 Comments

My daughter was just diagnosed with Alopecia and I can see it is going to be devastating. I am supportive since I have it myself, but I understand how a female might feel a lot different. If anyone would like to be a pen pal for encouragement I would be so appreciative!

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At 3:40pm on December 14, 2008, Eileen Simpson said…
She will need your support for sure, but more then that she will learn from your example. She is blessed to have you.
At 7:53pm on April 28, 2008, Alex said…
no problem at all...i just remember being little with alopecia and thinking about how all the older girls were so comfortable and loved being bald...so now that im one of them, ive been trying to do what i can for anyone who needs my support

my email is alex_fabozzi@yahoo.com if theres anything else i can do, dont hesitate to ask =)
At 4:38am on April 26, 2008, Roger said…
Thanks for the tip! I will check it up when im there. Im very excited for the conference.

Roger.
At 4:04pm on April 25, 2008, Cheryl, Co-founder said…
Hi John, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 3:45pm on April 25, 2008, Carol said…
You're daughter can feel free to ask me anything, I'm never far from my computer. To have grown up with hair and suddenly lose it can be devastating to a woman, especially not knowing when or even if the hair will ever come back. If she's still in high school I can only image the pain she's feeling and learning who you're real friends are (it gets better after high school). It is because people struggle to cope with their alopecia that I started Palopecia. It is a support group for people who live in and around the Guelph, Cambridge, Kitchener/Waterloo and Fergus areas where they can come to meet other people just like them and learn about alopecia. I'm in the process of linking my group with the NAAF and I'm listed with the other support groups on the Canadian Dermatology Association's website. I'm in the process of developping a website for the group that you can look at if you like at www.freewebs.com/palopecia
I'm not sure where you are but if you're in the area you and your daughter are more than welcome to come by for a meeting. I'd be more than happy to answer any questions you have about alopecia as well as your daughters. Encourage her to visit alopeciaworld and drop me a note! :)
Time heals all wounds!!! Keep your chin up!
At 9:51am on April 25, 2008, Carol said…
Hi John - Welcome!
At 2:37am on April 25, 2008, Roger said…
Welcome.

Roger.
 
 
 

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