My daughter was diagnosed with alopecia at 7 months old. She is now 7, and has been completely bald, alopecia universalis, since one year old. I fully believe that the best thing a parent can do for their children with alopecia is to accept it. There is nothing wrong with having no hair. A parent that's constantly looking for a cure sends the message to their child that there is something wrong with them. Love them and let them know they are beautiful as they are!
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
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Awww, I'm sorry to hear that you won't be able to go. You and the girls will be missed. I know there will be many more events in the future. I hope to do a formal ball where all the children and adults are dressed in gowns and suits. I have always wanted to host one of those. Anyways my friend, thank you for getting back to me and I look forward to the next event already!!! I'll keep you updated. I will send you a link to our website, our myspace page, and our facebook page as soon as they are complete. Have fun in NY and give the kids a hug from me.
Love and Hugs,
How's things my friend? I wanted to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it, we all had so much fun at the last one!!! I know it will be great!!! Miss you much. Say hi to the family. Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Hi Justine, I am brand new to this sight and found you on a search. I completely believe in your philosophy! My daughter Hailey is 8yrs old and is Alopecia totalis and is very confident and proud to be bald. I see that you live in Ma. How old is your daughter?
Hi Justine, I sent you an email to with directions to our first CAP meeting next month. Did you get them? I hope to see you there. I already heard from 2 families that are coming..I also forwarded the flyer I created for anyone who would to share it in their community..Cindy
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