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Started Jan 14, 2016 0 Replies 0 Likes
Does anyone with FFA also have oral lichen planus? If so, how is it being treated? Thanks...I am so tired of autoimmune problems.Continue
Tags: autoimmune
Started this discussion. Last reply by Mary Oct 25, 2013. 64 Replies 1 Like
I finally got the courage to tell my best friend about my FFA and that I might end up losing all my hair. I was absolutely devastated..she started laughing uncontrollably about the possibility of me…Continue
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Mary, I take 5 mg Finesteride daily. It is covered by my Medicare part D plan. I pay $4 for a 30 day supply.
Leslie Ann, Thanks for asking...I have seen the dermatologist once since the initial diagnosis and have another appointment in December. I am still pretty much in shock over the diagnosis of FFA but am sleeping a little better.
Jane...I didn't realize that there are different varieties of FFA. I will ask my dermatologist about that at my next visit which is in December.
Hello and welcome!
How are you doing today?
Leslie Ann
Hi Mary.
I'm assuming you are the Mary who asked about antibiotics vs. antimalarials?
I spent over a year on doxycycline, with no control of inflammation and rapid progression of hair loss. During that time, my doctor also had me taking propecia, which did nothing except cause chronic dry eye syndrome, for which I then had to take prescription eye drops!) This spring I started antimalarials and after 2 months, the inflammation vanished and hair loss stopped. I no longer take the doxy (or the propecia), and only wish my doctor had put me on the antimalarial in the first place. I would have quite a lot more hair still.
By the way, the kind of FFA I have is the type that causes a red scalp in the area of attack, with painful little blisters that make my scalp itchy and sore.
Hope this helps.
Good luck.
Jane
Mary, welcome to Alopecia World. I'm sorry to read about your recent diagnosis and hope that your fear is overcome as the months progress. We all become stronger but it takes some time. I also wish to extend an invitation to join the Wisconsin group entitled "Alopecians in Wisconsin." We have several members in the Milwaukee area. You can click on GROUPS above in the menu bar to begin the process. Many hugs, Susan.