I finally got the courage to tell my best friend about my FFA and that I might end up losing all my hair. I was absolutely devastated..she started laughing uncontrollably about the possibility of me…Continue
Leslie Ann, Thanks for asking...I have seen the dermatologist once since the initial diagnosis and have another appointment in December. I am still pretty much in shock over the diagnosis of FFA but am sleeping a little better.
Your feelings are so normal. Don't be so hard on yourself. It is a hard thing, but it gets easier. Be kind to yourself, and know this phase will pass. So many of us have been right where you are, and we are just fine. My advice is to have a cute wig ready if you need it. Hugs.
At 10:19am on September 23, 2013, Plain Jane said…
Hi Mary. I'm assuming you are the Mary who asked about antibiotics vs. antimalarials? I spent over a year on doxycycline, with no control of inflammation and rapid progression of hair loss. During that time, my doctor also had me taking propecia, which did nothing except cause chronic dry eye syndrome, for which I then had to take prescription eye drops!) This spring I started antimalarials and after 2 months, the inflammation vanished and hair loss stopped. I no longer take the doxy (or the propecia), and only wish my doctor had put me on the antimalarial in the first place. I would have quite a lot more hair still.
By the way, the kind of FFA I have is the type that causes a red scalp in the area of attack, with painful little blisters that make my scalp itchy and sore.
Hope this helps.
Mary, I'm using Olux its a foam and it has stopped the itching and I see an improvement! I read some reviews and I was leery but he told me to use it and come back in 6 weeks and he will start a series of 4 injections. I'm following t to the letter, applying twice a day and it works! Good luck and ask your dematologist about it.
Mary, welcome to Alopecia World. I'm sorry to read about your recent diagnosis and hope that your fear is overcome as the months progress. We all become stronger but it takes some time. I also wish to extend an invitation to join the Wisconsin group entitled "Alopecians in Wisconsin." We have several members in the Milwaukee area. You can click on GROUPS above in the menu bar to begin the process. Many hugs, Susan.
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.