Alopecia World
www.alopeciaworld.com
Newly Diagnosed with Alopecia
Information
This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.
Members: 545
Latest Activity: Feb 9, 2020
Tips for Coping with Alopecia from Day One
2. Consult a physician when you think your hair loss has become excessive or abnormal.
3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.
4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).
5. Remember that bald is beautiful, too.
6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.
7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.
8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.
9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.
10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.
Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.
Discussion Forum
What are the top three challenges you have as a woman coping with alopecia in a hair obsessed society?
Started by PamFitros@boldlybaldwomen.com. Last reply by Macaulaccormick Aug 28, 2019. 7 Replies 1 Like
Newly balding
Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies 1 Like
just diagnosed and scared...
Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies 3 Likes
How do I do this?
Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies 1 Like
Development of AA
Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply 0 Likes
New to this...
Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies 0 Likes
Just diagnosed
Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies 0 Likes
Children with alopecia in New Zealand
Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply 0 Likes
Getting Past the Pain - Three Things You Need to Know
Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies 2 Likes
Sad
Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies 0 Likes
Just realized it's probably not coming back...
Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply 0 Likes
Anyone lose their eyebrows before losing all their hair?
Started by rugsfromme2u. Last reply by Anna Jun 10, 2014. 8 Replies 0 Likes
Question About AA and Eyelashes
Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies 0 Likes
It's been a (long) Year
Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies 0 Likes
New to this World
Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies 0 Likes
Trying to learn how to move forward
Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies 0 Likes
Unpigmented regrowth?
Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies 1 Like
New to all of this, diagnosed just days ago with Alopecia Areata
Started by Stephanie. Last reply by Annette Mar 30, 2013. 15 Replies 0 Likes
Comment Wall
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Comment by Carma Harper on July 23, 2017 at 12:07pm
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I was diagnosed with Alopecia Areata in may 2016, then in Oct. 2016 I lost all of hair on my scalp. In April of 2017 I was diagnosed with Alopecia Universalis so I have no body hair! it is very hard excepting this when I have always had beautiful hair but it is great not to have to shave!! It is very hard trying to stay positive!! seeing new Dr. in Sept. at Cleveland Clinic so hoping for new answers. Dr. here in Memphis has totally given up on me!!
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Comment by Alopecian Beauty Mixer on July 8, 2017 at 3:00am
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Alopecian Beauty Mixer (Charity Event)
(STRICTLY ENFORCED DRESSCODE NAVY BLUE & WHITE /CREAM ONLY) September is Alopecia Awareness Month thier ribbon color is navy blue so September 30, 2017, We'll be launching a fundraising campaign to support individuals who suffer from the diseases Alopecia Areata & Cancer. This is a family friendly event that will include networking, food, drinks, special guest, custom wig give aways/demos, complementary massages, makeovers and A lot more. Including a bartender for 21+ participants! We also will have live performances/Celebrity photographers are going to be in the building for personal and group shoots. Why not have a amazing time while supporting a positive cause? Lets come together as a community and show support, love, while giving back to one another! See you there...
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Hi guys I'm having a special Event called:
Alopecian Beauty Mixer (Charity Event)
(STRICTLY ENFORCED DRESSCODE NAVY BLUE & WHITE /CREAM ONLY) September is Alopecia Awareness Month thier ribbon color is navy blue so September 30, 2017, We'll be launching a fundraising campaign to support individuals who suffer from the diseases Alopecia Areata & Cancer. This is a family friendly event that will include networking, food, drinks, special guest, custom wig give aways/demos, complementary massages, makeovers and A lot more. Including a bartender for 21+ participants! We also will have live performances/Celebrity photographers are going to be in the building for personal and group shoots. Why not have a amazing time while supporting a positive cause? Lets come together as a community and show support, love, while giving back to one another! See you there...
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Comment by Storm Mahzyti on November 2, 2014 at 8:19am
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Hi guys I'm new to this site recently diagnosed with AA about a month ago. I just need to talk to people who understands and can help me cope with it..
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Comment by PamFitros@boldlybaldwomen.com on October 20, 2014 at 12:09am
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Alicia, This is a project I have in the works at the current time. I want to know what women want to hear about. What problems they are looking for solutions to...what part of hair loss is the most emotionally or socially painful that they are looking for help with. Behind the scenes, these interviews are coming together. Matching up the right experts with our most pressing needs takes feedback you and the many others struggling with hair loss.
Help me help you by asking those you know to check in here or BoldlyBaldWomen.com/Contact-Us to leave a comment or request.
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Alicia, would you be interested in being able to download interviews with scalp care specialists?
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Newly diagnosed with Alopecia?
Click to read a blog post about National Bald And Free Day!
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Getting Past the Pain - Three Things You Need to Know!
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Comment by MamaDavis on July 31, 2014 at 10:56am
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Is there any way to tell if this AA will progress into AT or AU??? Within in 3 weeks of noticing my first spot, I'm petrified how fast more and more spots are appearing.
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Hi,
I am new to this site and have recently been diagnosed with FFA. I have been dealing with the eye brow/hair loss for a few years now and it has become progressivly worse and harder to hide. It is very comforting to read all the comments and feel like I am not alone.
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Comment by Sophia on May 11, 2014 at 4:09pm
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Thanks a lot Cheryl! :)
Now I'm a little bit scared about that situation, sometimes I'm optimist and sometimes I'm really sad.. but I hope that with time that problem become secondary..
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