just diagnosed and scared...

Hi everyone, i'm Catia, i'm 24 years old and i'm from Portugal... first of all it's really nice and confortable to realise that there are many people with this problem and it really help us to understand what we are felling about ourselfs... I'm still not completely acepting that i'm losing my hair and that i can be bald... 2 months ago i found one big spot without hair on my head, i was surprised but not very worried to be honest. I went to see my family doctor, she told me with was a fungus, not convinced i talk with some friends, i search a little bit but i did nothing! i was living my life when i start noticing hair loss... every time i shower, every time i touch my hair, every time, every time i saw it fall... and fall... I went to see the dermatologist last week ( 21 May) ALOPECIA AREATA, auto-imune disease... bla bla bla! i was shocked, i was perplex, i wanted to understand but it was realy weird, it was not happening to me! By being dietitian and working on the health area, after thinking a little bit, after remember some topics about imune system i finally understand and i rejected the treatment with corti. injections.
Now i'm having some problems in deal with this reality, in a week i lost half of my hair, i have more 3 or 4 patchs and today i start to wear a headscarf...
i also start today regular Reiki sessions and on tuesday i'll start a regular training wth meditation... i'm also a laughter yoga leader and i'll support my hope with terapies that can help me re balance my soul, my mind, my body...

Just a question for you my new friends ;) th dermatologist told me that it was very possible,in is opinion,the total loss of my hair, because it was falling a lot, quickly and from all of the head... In youropinion, because of your stories... how long until getting bald? that's what is stressing me more... see it falling and falling and falling.... and it is so itchy so uncorfortable...i have short hair, for lucky, but if it continues this way i'm thinking shaving...

Sorry about my not perfect english! ;)

thank you very much!
Best regards!
Cátia

Views: 436

Replies to This Discussion

Permalink Reply by Fay on May 28, 2013 at 7:05pm
Most of my hair fell out within three weeks. I had it cut very short to the head and even it was not enough. For my own piece of mine. I just shaved what was left off. It was better than watching it fall out. Currently, I have been rocking head scarves ( different colors and styles). I plan to show my baldness soon since the weather is getting hot. Big ear rings and bright lipstick ;). The first week or two you will die inside, but it will get better and you will live you life. People ask me if I am sick ( cancer) and I respond no just bald as a bat. I do not get questions after that. The more I say out loud that I am bald the more accepting I become. You will be okay. I had a kid tell me I was jealous of him because I was bald and I said no he was jealous that his head wasn't as perfect as mine and he needed hair to cover it up. You will be okay. Say that to yourself everyday and eventually you will believe it.
Permalink Reply by Kathryn on May 30, 2013 at 2:05pm

Hi, Catia,

Firstly, I am so sorry that you are going through this. This is probably the worst stage because of the unpredictability of the whole thing. Not knowing what's happening, why, and how the disease will run its course is so frustrating. I promise you, Catia, it will get better.

I began to shed my hair about 2 years ago. After 2 months I had to wear hats to cover the loss, and by 4 months I shaved because there was so little left. It was liberating to shave because it felt good to take some control over a situation I had no control over.

These days I wear a wig to work and when I dress up, but I usually go bald or wear hats everywhere else. I had my brows tattooed and that is a "godsend."

I admire your choice to address this disease holistically and naturally. I think the problem is systemic and needs to be addressed as such. Hang in there, Catia. You will be ok.

Permalink Reply by Catia on May 31, 2013 at 7:28am

Thank you very much for your words Kathryn, yesterday i made my decision i couldn't take it anymore, they were falling a lot and after another medical opinion that did not bring anything new i decided to shave my head.. It was painfull but i felt that i preserved my psycological wellbeing with this decision... I'm confuse and it's weird see my image on the mirror but i have to think that i'm not sick!!! maybe someday it wiil grow stronger and more beautifull! thanks for the supporting, happiness for you kathryn!

Permalink Reply by Weston D on January 11, 2014 at 11:55pm

Seems like your off to a fine start Catia!  Alopecia is an ongoing thing, sometimes you feel fine and then there is a low moment or week.  I gotta say I respect that you just came out with it!

Permalink Reply by Aly on December 18, 2014 at 7:09pm

Hi Catia,
I am half Portuguese, living in Australia.

I have just been diagnosed and last night I found several new spots, with the first one being quite large. Im a mess today but also thinking about a fun hairstyle while I still have any to cut!

It is my dream to visit Portugal one day so we should meet up if I do.

best

Alena

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