talia
  • Female
  • Philadelphia, PA
  • United States
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  • MiNAH
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About Me
my son is 4 and has alopecia. the kids in school calls him name. im an young mother 24, and i dont know what to do bout helping him he knows a little whats happening but not to much The first time he relly seen his head was in a christmas pic. and he was shock he didnt know it was that bad. i find my self kind of watching people reaction when they see his head and the questions "whats wrong with his head. i dont want my son growing up thinking he is ugly because his head.i cry just thinking bout it. im crying now.and kids are cruel somtimes the name they call him.
Do you have alopecia? (Choose appropriately)
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (10 comments)

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At 5:18pm on February 12, 2009, KIM - Jessica's Mom said…
Welcome to Alopecia World. Bring your son to this website and show him all kinds of pics of AA. Make sure he knows he's not alone and that he's special. Alopecia makes him different and that's not a bad thing. Kids are cruel sometimes but they can also be extremely understanding if you just give them the information. God Bless.
At 10:48pm on February 10, 2009, Cindy said…
I am glad to hear your son had a great day sporting his new haircut!!!
At 11:49pm on February 9, 2009, Cheryl, Co-founder said…
Hi Talia, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
At 12:15am on February 9, 2009, Cindy said…
HI Talia. My name is Cindy and my 7 yr old suffers from Alopeica. I am very sorry to hear that you and your son are having a hard time coping with this. I see you are in PA. Have you contacted the children's alopeica project. I think they can be a great resource to you and they are based out of PA. www.childrensalopeicaproject.org . They run several events through out the year and in Aug is their first big kids conference. CAP focuses on building chidrens self-esteem. I think they can offer you help.

I suggest you send a letter home to the parents explaining your son Alopecia so the parents can assist with helping their child understand it. If you contact NAAF or even CAP I think they can offer you assistance with this and even provide to you materials to do a presentation to the class.
Please write any time. This is a great board to get support and advice from..
Cindy
At 3:26pm on February 8, 2009, LeslieAnn Butler said…
Hi Talia,
I know how awful kids can be. There are a lot of people here that can help you and your son. Welcome!
LeslieAnn
At 2:02pm on February 7, 2009, Linda said…
Hi Talia, maybe it would help your son if you shaved his head, I hear bald heads are "in" for guys. My brother and his 8 year old son both have shaved heads. Children can be cruel, maybe you can explain to his classmates what is going on with him so that they at least understand. He is a handsome young man and I'm sure you are very proud of him.
At 10:46am on February 6, 2009, Linda said…
Hi Talia, welcome to AlopeciaWorld, anything I can do to help, email me!
At 2:45am on February 6, 2009, Jacob said…
it doesnt really go on any family links from what i've seen. it just does what it does.
At 1:02am on February 6, 2009, talia said…
my son is 4 and he has alopecia. it just came ,july 3rd he got and hair cut July 4th his hair look like it was thinning.it seem like it was ringworm. but not really no scales. took him to dr they said it was alopecia.in september he had ringworm . took meds for 6weeks. the hair was still coming out. back to dr said again took meds again for what they thought was ringworm again. finished meds 2months. hair still comming out.i dont know what to do and y out the blue his hair start coming out is it because of that shop wherehe got his hair cut. no one in my fam or dad fam has alopecia im no understanding
At 12:54am on February 6, 2009, Cherylnz said…
Hi Talia,
Welcome to Alopecia World
 
 
 

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