Comment by Meryl on July 20, 2011 at 8:10pm

Would the "it gets better" campaign be helpful? I am so sorry about this.

Comment by Pamela on July 20, 2011 at 8:58pm

TO ALL who have sent such incredible messages to Russell: You cannot know how much you have done not only for Russell, but for my husband and myself. I knew Yokasta only through BU, but she is the one who showed me what an incredible community you have here.
We read all the messages to Russell last night, and there were a lot of tears, but healing tears, mostly "Alopecia Sucks!" and Mom and Dad snuggled next to him and said "YUP, it does....BUT..." it means your body is able to tell us there is something wrong - so it will help us fix it" - Might not have been the exactly right thing to say, but after those tears, his voice was stronger and he was happier than he had been for two days.
I have to take him for allergy shots tomorrow, then will be taking him to camp, where one of his favorite camp staff member will be with him. They are also going on a field trip tomrrow and a camp member will be watching him.
MUCH MUCH LOVE and GRATITUDE -
Pamela Farr

Comment by Tom on July 20, 2011 at 9:03pm

hell yea, be strong little guy. kick some ass.

Comment by kastababy on July 20, 2011 at 9:49pm

Pamela,

Even though we won't be there in body with Russell tomorrow, we will all be there in spirit. I hope he has a fantastic day tomorrow and he holds his head a little higher knowing that there is a world of people around the world that are fighting with him and for him every day!!

Comment by Pamela on July 21, 2011 at 9:50pm

Well we had a red-letter day at Camp today. Nice, sweet counselor told them about "We all need ot be nice to each other and to help treat each other as we would want to be treated." Then Loren and I got up and kinda did a nice off-the-cuff tag team thing. I told them about Russell's issue of Alopecia, what it was, what causes it (Russell was up next to me, TOOK HIS BASEBALL CAP OFF, SAID "SEE ?" - very common place, no emotion, just "See? Here I am !" I was flabbergasted - he'd never done that before). ANYWAY, I then looked at the group for a minute, silently, and then said to them the words Russell's tormentor had said to him. "I hate you because you're bald." "I hate you because you're diseased." "If you tell anyone I'm going to get a knife and hurt you." Loren was over on the other side in front of the kids and started talking about being hurt - physically, and emotionally, and we all need support - from one another within our own "Group" so to speak, and from outside as well. He asked the kids for their help in getting over this; Russell has to deal with this issue every day - and we need their support too !

Comment by jennifer on July 22, 2011 at 10:17pm

I think the teachers, camp counselors, counselors, principals need to put a stop to this immediately. Those kids who are bullying need to have a consequence for their inappropriate behavior. This brave little boy does not need to put up with others who are disrespectful. Also, ask other parents of children with ALopecia what they have done in this type of situation. Perhaps they have ideas about how to bring awareness to the school/students. And finally, I hope this little boy makes lots of friends his age on Alopecia World because "normalizing" his condition and being friends with other kids who have similar experiences/feelings will help him alot.

Comment by Cindie on July 25, 2011 at 1:35pm

Hugs to the little guy, and I send prayers too. But I do agree with the (very, very handsome) guys on here: SHAVE his head, and enroll him in a self-defense class, because bullies don't understand "being sat down and talked to." I know that is not politically correct, but it's the truth!

Comment by Trixie on August 3, 2011 at 5:25pm

Arrgh! the video is no longer available

Comment by Pamela on August 3, 2011 at 6:37pm

Hello all ! I'm sorry - we had a friend of us tell us that we could have issues because Russ mentioned the little boys name in the video. Soooo - we thought it better to pull it. Thank you so much for your incredible love and support - we have found SO MANY new friends - and Yokasta, there is a course designer at BU whose little boy has Alopecia too. I told him about this site and CAP.

Comment by kastababy on August 3, 2011 at 8:00pm

Pam - make sure you send the course designer my way too! What course are they the designer for??

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