Airam-FFA's Discussions (101)

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Discussions Replied To (95) Replies Latest Activity

"Hi Lynda I hadn’t heard about Graham Little Piccardi Lasseur Syndrome with FFA - so…"

Airam-FFA replied Jan 8, 2018 to FFA burns itself out - has anybody reached this stage?

 28 Jun 22, 2018
Reply by Lori H

"Hi Liz Thank you got your post. I re-call many of the post extracts that you mentio…"

Airam-FFA replied Jan 2, 2018 to Counselling?! We are our own!

 16 Apr 5, 2021
Reply by Yringel

"Hi Jacq I will see if I can find it.   xOx"

Airam-FFA replied Dec 16, 2017 to Medication Break

 39 Jan 1, 2018
Reply by Jacqui

"Hi Afraid  It is a cruel situation for us to find ourselves in. Also with little suc…"

Airam-FFA replied Dec 13, 2017 to Has anyone had/tried cortisone shots to scalp?

 20 Dec 16, 2017
Reply by lorrie

"Hi LVL For the reasons that Beez gives, I decided not to accept any treatment that…"

Airam-FFA replied Dec 12, 2017 to Has anyone had/tried cortisone shots to scalp?

 20 Dec 16, 2017
Reply by lorrie

"Hi Katherine I too had Acupuncture and Chinese Herbs when I was first diagnosed. Bu…"

Airam-FFA replied Nov 27, 2017 to Turn Over of Specialist Dermatologists!

 5 Dec 2, 2017
Reply by NA

"Hi Katherine I wish you every luck with getting to see a specialist dermatologist.…"

Airam-FFA replied Nov 25, 2017 to Turn Over of Specialist Dermatologists!

 5 Dec 2, 2017
Reply by NA

"Hi Minter I have just read this article about Maca - this might help ease your symp…"

Airam-FFA replied Oct 26, 2017 to Hormone Therapy/ Menopause

 23 Oct 26, 2017
Reply by Airam-FFA

"Hi Mary I understand that they are presently working to validate the results of the…"

Airam-FFA replied Oct 15, 2017 to Results of Research at Guys Hospital for FFA, any results??

 2 Oct 15, 2017
Reply by Airam-FFA

"Hi Donna I have been using the Clobetasol shampoo and ointment for over a month. Th…"

Airam-FFA replied Oct 9, 2017 to Update from me

 17 Oct 9, 2017
Reply by Airam-FFA

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