Speech on Alopecia in schools.

Hi Everyone,

I am doing a speech at a little girls school in christchurch to help her peers understand what Alopecia is all about.

I have done a few of these before and they always go well but...

Now that I know about this site, I thought I would ask all of you guys what you would have liked to be told or talked about when you first were diagnosed?

What your friends/family/colleagues wanted to know as well?

Since we are all different with how we dealt with it, I thought it would be good to get everyones opinion on this matter.

Speech is on friday.

thanks in advance for your help.

Anna.

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Replies to This Discussion

Permalink Reply by Fitzy on September 2, 2008 at 2:56am
thanks!
Permalink Reply by Rose Marie' on September 2, 2008 at 3:07pm
Hi

I think when Bev came into Libby's school the biggest thing that helped was telling everyone that Libby was still all she had ever been and did not want sympathy but just good supportive friends who understood her.

Good luck with everything Anna.

Rosy
Permalink Reply by Megan on September 2, 2008 at 7:58pm
hi Fitzy,
i wish you lived in nj so you could come talk to my daugher's class!
Permalink Reply by Sharon on September 3, 2008 at 4:05am
Hi
Anna we are really lucky to have you willing to come into our children's classes to talk to them about alopecia. Thanks so much for being the wonderful person you are.

Good luck with the talk, let us know how it goes.
Sharon
Permalink Reply by Courtney on September 3, 2008 at 11:08pm
i think u need to start off w/ telling them that alopecia is NOT CONTAGIOUS. kids always asume that w/ any type of illness. and tell them that just bc someone doesn't have hair, does not mean they are any less of a friend. and we need support, not bullying. hope this helps!
Permalink Reply by Cherylnz on September 3, 2008 at 11:09pm
Hi Anna,
Thankyou for taking the time to speak at the Schools on behalf of the children that have Alopecia.
All I would have liked was that they understood that I did not want sympathy. That I was no different to them and Alopecia is not contagous. We all would like to have understanding, friendship, love, encouragement and confidence just like everyone else. To be able to experience all the activities that schools offer like sports, swimming, school camps etc without the fear of been different and teased. I was blessed that I did have the same good friends right through my school years and it did not make any difference to them that I wore a wig. Thanks again for the wonderful job you are doing.
Permalink Reply by Fitzy on September 3, 2008 at 11:12pm
thank you all for your helpful comments!
Permalink Reply by Gill on October 13, 2008 at 4:28am
How did it go Anna?

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