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I was taken aback just now by a response somebody gave me on regards to regrowing your hair when you have alopecia. This person said, and I quote:
"The issue with alopecia is that it’s often self-limited and your hair might have grown back if you did nothing."
And just now, they sent an article trying to back up their claim, that it actuality COULD grow back if you did nothing! I honestly didn't know! I had to do SOMETHING in order to grow my hair back. The few people I know who had it whose hair grew back did SOMETHING to grow their hair back, but do you know of anybody whose hair grew back when doing NOTHING???! This is the article they sent me :
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My hair actually did grow back when I did nothing, but I do think it is different for everyone. The photo that I am posting is from the summer of 2014, the second is from 2020.
My story began in December 2013.
Of course when it happens to you, you do, research, seek everything. Go to every other doctor, get second, third, fourth, n opinions.
I first noticed the hair fallout while taking a shower.
I was exhausted that day - was still nursing my 3rd child, had started a new job, each of my 3 children were going to different schools and my babysitter had just left town for vacation. (My typical lifestyle, however).
So when I got the flu and my husband wasn’t able to follow the kids, I just took ibuprofen to get my fever down and continued as if I were the healthiest person alive, dropping and picking up kids, going to work, cooking and cleaning as usual, though with a sweat.
(Something one wouldn’t do now with the current pandemic).
The patch in the picture was the first, followed by a 2nd and 3rd... eventually I had 5 patches, each gradually getting bigger. The easiest thing for doctors to say is that it is the immune system, stress, your own system attacking your follicles. Because there really isn’t a known answer.
I bought a natural concoction on-line from an Israeli specialist, lathered my patches morning and evening. I went to the most renowned specialist in Italy who diagnosed me with alopecia areata universalis totalis - I would lose everything including my eyebrows, eyelashes, etc. He prescribed a cortisone treatment to be applied immediately with an in-house applicator that utilized electricity.
But everything I had read about cortisone was that it could make your hair grow back temporarily, creating a dependence which brought on many other issues. I hesitated.
I went back to my dermatologist who commented, “dear, if the specialist discovered a treatment that truly worked, he’d have won the Nobel Prize!”
Then at about the same time, a kid in my daughter’s third grade class was diagnosed with leukemia- her chemotherapy made her lose all of her hair. At that point I decided to do nothing, the worst that could happen to me was that I’d become bald... the poor girl could lose her life. (She survived thankfully).
I decided, while doing nothing (which was less costly as well) to do a documentary and started documenting every couple of months.
miraculously, y the end of 2014, my hair started to grow back. In 2015, i had two more small patches that popped up, but by the end of 2015 I had full hair regrowth.
What I wanted to say however is that in my opinion, my hair loss was actually attributable to an excessive use of lice treatment- in 2013, one of my children had gotten lice for the first time ever. It was very traumatic for me never having had experienced it.
The morning of discover, I had lain next to my daughter with my hair spread out. When I applied the treatment to my own head, grown lice fell out. From that point forward in 2013, I would lock myself in the bathroom and treat my head - sometimes leaving the treatment in for twice as long as what was recommended - I did this about 8 times over a 5 month period. The last treatment had been in October 2013 - two months prior to my hair loss.
The doctors however, all scoffed at this detail. Said no, it was stress maybe my immune system, but not the lice treatment!!! (Though there have been many other periods in my life where I was so much more stressed and my hair stayed intact).
Nothing I found online linked chemicals as a possible source. Although I was literally applying insecticide to my poor absorbent scalp!
During my bout with Alopecia - my sister was living in Iowa - in corn country. She was substitute teaching. She made the comment at how surprised she was to see so many kids inflicted with alopecia within the area - small patches here and there. Until it happened to me, I didn’t even know what the word meant!
Makes me wonder if the pesticides being used on the crops weren’t leaking into the water...??
In 2016, when all my hair had grown back, I had numerous moms from the elementary school where there had been a lice problem, ask me what I had done to get my hair to grow back. Sure enough they had all used lice treatment on their own heads and were experiencing hair loss, not necessarily in patches but in some way or other.
Today I still have my hair - it’s not as thick as it used to be but I haven’t had anymore patches nor do I do any chemical treatments except color though without ammonia.
I’ve been wanting to write my story for years because I truly believe that some cases of alopecia can actually be linked to something other than stress, which I believe is my case.
Would love to see more research done in this respect.
This is extremely interesting... Thank you for sharing your story. I have learned something...
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