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Alopecia back after 6 years :(
I found a spot on the back of my head last week, then found another unfortunately. I haven’t found a spot in years and was pretty bummed to find my alopecia was back. I got the shots yesterday at the derm, she also prescribed a steroid cream which I don’t believe I used last time. My nails do have pitting which I had last time and it never went away. Is there anything we can do to help keep this at bay? Vitamins? Probiotics? It’s been so long since I’ve had it I don’t really remember what I was doing back then. I know overall it just needs to run its course but if anyone has any advice I’d love to hear.
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Permalink Reply by Danette on
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Hi, I don't have too much advice to give you, but I do understand how you feel. I lost my hair four different times, in 1987, 1989, 2000 and 2009. Right now, I have a pretty full head of hair but I have started to see more falling out. In 2000, I tried PUVA therapy (where they give you a drug called Psoralen and then shine light on your head for a short time). A few times, I got cortisone shots. in 2009 - I didn't do any real treatments. I shaved my head for about 3 years and wore good wigs. I keep my hair short now - and it camouflages any spots very well. I think the steroid cream could not hurt but I hated getting the shots. I wish you peace and comfort with this - I know it's so hard.
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Permalink Reply by CLO on
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I truly believe it’s something in the environment and pH levels. For example, we just had our water tested because I too am dealing with patches of hair loss, my shampoo isn’t foaming or lathering, and even my skin is cracking. We have really hard water…..it tested at 17 grains. Our water was also very high with chlorine and probably many other minerals and metals that weren’t tested for. That definitely affects the pH of water, our hair and skin, along with so many other factors that we normally wouldn’t think about.
You can read more about the effects of mineral buildup and hard water here:
http://science-yhairblog.blogspot.com/2016/03/hard-water-and-your-h...
My shampoo’s aren’t foaming or lathering and depending on the type of cleansing agent in the shampoo (sulfates, sodium derivatives) the positive and negative charges react to each other and it becomes a horrible nightmare cycle. And, when the shampoo doesn’t foam or lather, it’s like rubbing and massaging the scalp without any slip. It bonds and forms a film makes the hair sticky and dry over time, especially depending on hair porosity, chemical treatments such as color, perming, relaxing, etc. It can cause other problems with hygral fatigue and how the hair reacts to water in terms of swelling and the weight of the water in the hair. And, with it being winter,…….anyways, that’s my input. Check your water and other environmental factors and check the pH of your hair and scalp.
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Permalink Reply by Camryn on
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I had a steroid cream and shots combo back in 2017 and it worked well for me with the big patch of lost hair filling in over the course of a year. Back then the derm also put me on the Viviscal supplement so that's something you could try.
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Last year this time my scalp and face were itching a lot and within 9 months I lost nearly all of my facial hair and about 80% of my scalp hair. I only tried a few injection at the beginning but gave up as I saw no results.
About 3 months ago, itching stopped and my scalp hair started re-growing with no more new patches. About 2 months ago I had another COVID booster injection and a few days later my scalp started itching again.
My conclusion was that the Covid vaccine caused the itching and the subsequent Alopecia (there are some articles online supporting this).. I consulted a doctor and he advise to use a cool cap (something like this: https://www.amazon.co.uk/dp/B09726TCM6?ref=ppx_yo2ov_dt_b_product_d...) everytime my scalp itches. I have been trying this, ice packs and cold water and so far touch wood no hair loss and much much less itching.
So if your scalp itches, you could try this method to see if it helps.
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I’ve had my hair fall out twice.Once in 2019 and once in 2017.Its a horrific experience.On the second occasion the doctor said I was having an allergic reaction to something I was putting on my hair.I new at the time that what the doctor was saying to me was wrong.At that time in my life it didn’t matter what I put on my hair or didn’t put in my hair it was just falling out in big clumps every morning.After a while it would start growing back for 4 or 5 months and then start falling out again.I started thinking about my diet and whether or not this could be causing the problem.One day I suddenly figured out what it was.This might sound ridiculous,but between about 2015 and 2019 I had really got into eating dark chocolate.I would eat a small amount of dark chocolate every day.After 4 or 5 months I would stop eating chocolate because I felt like I was starting to eat to much of it and I would stop for 2 or 3 months and my hair would grow back.I have now given up eating chocolate for good.I wash my hair every morning with a organic conditioner mixed with 10 drops of peppermint oil.I also drink soya milk every day and my hair has grown back really well.From my own personal experience I think diet can trigger an auto immune response.This obviously may not be what your experiencing but be open to the fact that all sorts of things can trigger reactions in your body.
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Hello! So sorry to hear about the new spots you have again. I am here in the group because of my son, always trying to find him new ways of support. He was diagnosed with AA at the age of 25. A terrible shock at that age. Since then he has been trying many treatments, including steroid-shots and more, nothing helped! The only treatment he found that was helpful was and is, Cannabis-oil! Applying it every day or twice a day and it really works. Plus a BIG treatment in parallel, staying calm, being in peace, no day by day stress! Changing your complete lifestyle to being calm and content! Try to get a prescription for Cannabis-oil, doing wonders. All the best everyone and Happy New Year 2023 with lots of health❣️❣️
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Permalink Reply by Melissa 74 on
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Gosh I'm so sorry. I can't imagine what that must feel like. I was continuously patchy from 12 until I had my first child at 30. Then all my hair fell out. She is now 18 and I've never had one hair grow back. 36 years straight with no remission. I imagine it must be terribly disappointing to have it grow back just to find a new spot. I'm so sorry. I hope the treatments work and I hope you get lots of helpful advise. You are strong and beautiful and you got this.
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I admittedly have not been to this forum in quite some time. I would periodically get cortizone shots to stop it. It has been more years than I can remember, but I can say for sure that since I found out I was type2 diabetic, I have changed my eating habits and brought my A1C down to normal levels and haven't had a single patch since. My AA started years before my T2 diagnosis, but my regular doctor visits flagged me as "prediabetic".
I control my T2 with intermittent fasting and diet alone(no meds at all). I am not suggest ing you do this blindly, but if you have T2 or an a1c that indicates some level of insulin resistance, It's a no-brainer to try this out.
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