Am I the only person that wants my hair back?

Hi everyone, im a newbie but everywhere I read that everyone has just got used to having alopecia and accepts it, whereas i want my hair back, am i the only one? and what is the most successful treatment i can try?

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Permalink Reply by Christie on January 28, 2009 at 3:12pm
It's amazing to see the responses to this question. I too have thought about the fact that everyone seems happy to have lost their hair. But the more I read on here and looked into people's profiles...I realized that a lot of you have been going through this for years and years. It's no wonder everyone is offering words of encouragement - You've been there...done that...
As for somebody new like me - I can understand the confusing part of it all. I have only been suffering from this since Dec. 08. I don't think i'm doing too badly though. I've shaved my head, got my wig (which I hardly wear). I've already been out in public with my hairless bean...
It's all a matter of where you chose to put your mind. Your mind is such a powerful thing - some people have no clue!
I was reading a blog about dental issues and how they seem to be related to AA. I am definately going to look into this - as I started suffering from headaches right before the AA started. Now I have more dental issues. It does make sense though. But again...everybody is different.... I'm rambling now..lol
Ben - don't give up on the things you want. But as you're going through this, please remember - It could always be worse!
Permalink Reply by Mary on January 28, 2009 at 3:39pm
It really is interesting how different people react differently to this. Christie...you sound just like me. Within a month of shaving my head, I was "out" in public. Within 4 months, I pretty much gave up on the wigs. Other people never allow anyone to see them bald (such as the author of the book who says only 4 people have ever seen her bald, and one of them is her doctor!) I couldn't live like that, always working at concealing/camouflaging my baldness. This disease is IN our heads as much as it's ON our heads.
Permalink Reply by Teresa on January 28, 2009 at 3:54pm
Hello, I am new here as well, and no, I am not happy with my alopecia, I want my hair back: I am losing my hair but at the same time I am not "accepting" it. Even if I decided to stop with treatments, I think that I will never accept it, nor I will ever be happy if I'll lose all of my hair. I don't feel anything special, I carry on with my life and that's it. I think that everybody reacts in different ways, according to their culture, character, etc... I am a bit fatalist, you know... regarding treatments, there are many, depending on the kind of your alopecia. Maybe you should see a dermatologist and first of all have tests (bloodworks etc..) in order to remove any doubt about possible illnesses. There isn't a real cure for the alopecia, but treatments that may work in some case and fail in another case.
Permalink Reply by Mari on January 28, 2009 at 5:53pm
Ben I would definitely thank God to have my hair back. But I have learned to accept the hand I got, and just go with it day by day. I have never found a successful treatment, if you do make sure to let me know :o)
Permalink Reply by GINA on January 28, 2009 at 6:15pm
Hi Ben, I thought the same when I started looking at this site. I was looking for info on what people had tried, what had worked and what was a waste of time and money. There is so much on the net about so called miracle cures, and I thought this would be place to ask because nearly all these people have or are traveling the same path. I am starting to understand there is no cure for alopecia, but there are treatments for auto immune disorders. Its just a matter of finding out why your body has started attacking itself. I mean it dosnt "just" do it because its not got any thing better to do! Good Luck.
Permalink Reply by Sharon, mom of Jon on January 28, 2009 at 6:21pm
Trina, I am the mother of an alopecia sufferer and I agree with your outlook. I really wish my son had his hair, but this is the hand we've, he's been dealt. We've tried treatments, been to the Cleveland Clinic. There is always hope, but in our case the AU is hereditary. I've resigned myself...no that's not the correct word...The way I look at Jon's condition is that he is otherwise healthy and as far as I know, a talented and happy young man. We have friends who have an 11-year-old son who is autistic. Does anyone else find themselves judging between conditions? Jon has alopecia.. isn't that better than autism? And now that I've said it out loud...of course it is, RIGHT? Yes, it would be great if Jon's hair grew back....
Permalink Reply by Mary on January 28, 2009 at 6:49pm
Sharon, what you said is exactly what I keep reminding myself: I'd much rather have alopecia than cancer, or a disabling disease. As I tell people, if you have to have an auto-immune disease, THIS is the one to have.

As far as treatment goes, I'm not willing to compromise my otherwise good health trying something that might have bad side effects. I took Prednisone for one month, and decided to stop when it didn't halt my hair loss. If someone came up with a pill that would stop the T-cells from attacking the hair follicles, and the medicine didn't have any possible negative effects, I'd go for it in a minute. But, I prefer to feel good and be hairless, than risk feeling sick just to have hair.
Permalink Reply by Jennifer on January 29, 2009 at 3:35am
I REALLY want my eyelashes and eyebrows back! My hair was never that great, but I wouldn't say no.....so, you aren't the only one wanting their hair back. Embracing my baldness has been a coping mechanism & turned into an acceptance that this may be how I will be forever - but, maybe not...who knows?
Has anyone tried DCPC treatment - I was recommended for it, but was nervous about the fact that I would have toxic chemicals dumped on my head (and it wouldn't bring back my eyelashes and eyebrows). This Doctor I went to see here in Vancouver (Dr. Shapiro) has been getting some amazing results, evidently....I don't think it's for me, but someone else might be into it.
Permalink Reply by ben on January 29, 2009 at 9:55am
Wow and thank you so far to everyone that's replied, it is quite incredible reading all of the many different perspectives in this discussion, one thing that sits in the back of my mind is that just maybe with acceptance comes the loss of any chance at getting my hair back, but I know that would suggest a certain element of alopecia is psychological, as far as treatments go, I've been reading about how we shouldn't really use chemicals and try to cure our symptoms, we should really be trying to cure the cause. any other thoughts?
Permalink Reply by BaldGirlsDoLunch.org on January 29, 2009 at 9:00pm
Banking on finding the cause is too much of a long shot to be a realistic goal. Too many people are being sold the "hope" of cures. Auto-immunity is way too complex for the likes of a piddly fund like a national aa organization to make any real progress despite the perpetual hype machine to give more money. Do your own digging around. Look carefully at what the money they have so far has actually done and do your own due diligence.

Autoimmune diseases are already known to be highly complex and none of them have ever been cured. Some have so-so treatments. Others have none.
Permalink Reply by Christie on January 29, 2009 at 10:46am
Hi Ben,

I'm glad you're getting a few different perspectives - it's always helpful to know that you aren't alone.
The way I decided to look at is this: If I kept my hair, and watched it all fall out piece by piece (or clump by clump)...I would be obsessing over the fact I was losing it. So I decided to shave it. Now all I have to focus on, is it growing back. I'm not sure if you've heard about the "Law of Attraction"...but I firmly believe that we attact "like" things to us. So, if I'm gonna try to focus on anything - it's to focus on seeing it grow back...not falling out.
I have made a dentists appointment because I believe I have impacted wisdom teeth. After all the posts about dental infections possibly being linked to AA...I thought I should check it out. Even though they will remove my teeth - It's better than going through the headaches everyday and the hair loss...I wonder if it will help??
Permalink Reply by Pat on January 31, 2009 at 10:38pm
I guess it comes down to this for me: it ain't growing back so I have to live with it, getting upset/angry/frustrated etc just makes me an emotional mess so for me acceptance helps me to cope...kind of stops the fruitless wishing and hoping. However having said that I would love to have my hair back. I'm not into the bald look at all for myself! I wear a wig whenever I go out in public. Maybe it's a pride/ego thing I don't know but I just feel more myself with 'hair'. I don't know of any treatment that works for everyone. Different people respond to different treatments. As I'm between au/at and have been that way for some years I'm not holding my breath for it to regrow anytime soon but if it happens I'll be turning cartwheels! Oh yeh I tried the shots in the scalp at first but the regrowth fell out when I stopped the shots.

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