Alopecia World
Where acceptance is all there is!
DPCP
Hello all,
I am new to this forum but definitely not new to alopecia and all the trials and tribulations it brings with it.
When I was 7, I developed AU and as you can imagine it was a challenging time being a child without hair, as kids can be quite cruel to those who are different from themselves. After years of conventional and non-conventional treatments, my hair just didn’t not grow back. Fast forward to puberty, which is when my hair started to finally grow, little patches at a time. It wasn’t until I was about 17, 10 years after the initial loss, was I able to say I had a full head of hair. I of course was elated and worn my hair with pride each and every day. I had always struggled with patches of hair loss and would get injections to “plug the wholes”, which always seemed to work. Now that I am on the “other side of puberty” my hair has once again fallen out. Alopecia Totalis. As injections are not an option for me anymore, my specialist has suggested the start of DCPC treatments, which has its challenges in and of itself. We finally found a percentage that is bearable but I am still battling the “oozing” and sleepless first night after application. Does anyone have any suggestions on how to deal with the seeping and lack of sleep?
Replies to This Discussion
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Permalink Reply by Football fan on
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Was the most horrible treatment.I would wake up at night scratching my head raw.Do you want to be on that treatment forever because even if it works once you stop your hair will fall out again.i tried it somehow for almost a year and I was miserable very single day.I’m surprised their still prescribing it.Sorry to be so negative but it gives me nightmares just thinking about it.
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Permalink Reply by Alo-mom on
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This treatment in my estimation is a waste of time and money and causes so much discomfort. Our daughter tried it under the supervision of a doctor in Los Angeles. This is not worth your time or your money. Sorry to be so harsh, but I hate to see anyone go through this discomfort.
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Alo-mom I also went to a doctor in Los Angeles.I have been on xeljanz for awhile with no side effects it never gave me all my hair back.I might try the Barcitinib from beacon in a few months.The other problem with the dcp is if you have any hair it leaves it a big greasy mess.
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