Replies to This Discussion

Permalink Reply by Nants the Rebellion Dog on January 23, 2009 at 1:04am

When I went to my doctor, she had no idea what was causing my hair loss. I talked to my sister (also a doctor) and the same thing. I went to the Stanford Clinic and got a recommendation to begin injections. I did it once, but then did my own research online and opted to not go that route. I would definitely get a second opinion. Seems like you're getting conflicting information. It's hard to know what is best...there doesn't seem to be a lot of results from ANY treatments. Sending loving thoughts to you and your child. I can't begin to know what you're feeling, but it must be difficult to know what's best.

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Permalink Reply by Beth Breslow on January 23, 2009 at 7:35am

Thank you so much for your help!! This is exactly what I need...someones own experiences. I am so scared for my baby. She is so innocent...i wish it was me going thru all of this. I will definitely take your advice!! Thanks again for your support :)

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Permalink Reply by Kayreyn on January 23, 2009 at 11:51am

I'm not sure of the Olux Versa Foam, but my 5 year old had the Olux-E Foam 0.05% (Olux-E is just the foam version of Clobetasol - comes in foam, ointment, gel, cream) Seems safe, but only do what you feel comfortable with.

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Permalink Reply by Maygensmom on January 23, 2009 at 3:06pm

My daughter started using this foam about 2 months ago. However, she is 13. When she was 3 we used the steroid drops. If I were you, I would buy hats. Lay off the steroids for as long as you can.

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Permalink Reply by Beth Breslow on January 24, 2009 at 9:09pm

After hearing from everyone i've decided to just let nature take its course and pray that everything grows back on its own at its own pace. At 2 1/2 years old she doesn't know the difference. Thank god for little ones!!

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Permalink Reply by Beth Breslow on January 23, 2009 at 7:37pm

Thank you so much, Jeff. I totally agree...who knows what this drug could do to a little two year old :(

Thanks for your help :)
Beth

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Permalink Reply by Amy on January 24, 2009 at 6:55pm

Surprisingly, I've found some pharmacists to be more informed on medication than a lot of doctors. Not knocking docs, but, I've had prescriptions either for myself or one of my children & have had the pharmacist say, "DON'T DO THIS!"
Second opinions are always good to have.
I remember when I was first diagnosed with AA, over 10yrs ago. My primary care doc thought it was an allergic reaction to something, so he referred me to another doc. I did not like the feel of this doc when I went in for my appointment. Horrible bedside manner, very rough, cold. So, I went to a 3rd doc. Even though he told me the same as the 2nd, that it was AA & I should start steroid injections, he's approach was far different & made it easier to accept.
I wish you luck, b/c I know how difficult this can be.
Just keep going!!

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Permalink Reply by Kelli Moore on February 3, 2009 at 11:17pm

In October, my 7-year-old daughter used Olux foam 0.05% for about a week. It was irritating to her skin, due to the high alcohol content. She hated it and would run away when I tried to apply it. A pediatric dermatologist prescribed Clobex spray, the same strength 0.05%, and she seems to tolerate it better, although it makes what little hair she has greasy...right now I'm using a prescription medicine that is a combination of minoxidil and trentinoin from a doctor in New York. The hair regrowth in the bald spots is so much quicker and more gratifying than the results achieved from the steroid creams & sprays. However, I can see that it's not stopping the progression of the disease as she is continuing to lose her original long hair, no matter which spray/medicine I use....I wish you and your precious two-year-old all the best. I think the disease distresses us as parents more than than it does our young children.

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Permalink Reply by Beth Breslow on February 4, 2009 at 9:39am

Thank you for all your helpful information Kelli!! I agree, watching my daughter lose her hair and have absolutely no way of stopping it might be the death of me. I am trying so hard not to cry in front of her. I am so scared when she starts preschool in the Fall that people are going to make fun of her. This all is breaking my heart. Thanks for your support :)

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Permalink Reply by Kelli Moore on February 6, 2009 at 5:18pm

I know exactly how you feel, Beth. I cry at night sometimes, when my child can't see me. I dread combing her hair and seeing how much comes out in the comb. I also had to quit looking up alopecia on the Internet because I found myself obsessing about her hair loss and upsetting myself. I just try to take things a day at a time -- that's all I can handle and remain cheerful. Your daughter is probably going to have a great experience in pre-k because the children are all so young and have no preconceived notions about baldness. That's what my child's teachers told me and it is so true -- they don't become self conscious until about 3rd or 4th grade. I'll be your daughter's experience in her new school will be great.

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Permalink Reply by Jane on February 7, 2009 at 4:10pm

I agree. Unless it wa life threatening, I don't know of many doctors who would use that on a young toddler. Don't do it. seek other medical support.

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Permalink Reply by Pam (Julia's mom) on February 10, 2009 at 7:49pm

My daughter was also diagnosed at 2 yrs. old with AA and first tried Retin-A and Rogaine . That did not work very well so after switching dermatologists, he recommended us to try the Clobex. I was very nervous about it as well. It worked very well and she did get all of her hair back with this treatment. She is now 7 yrs old and has had many more episodes of hairloss, which I would treat with the Clobex, but it now does not work on her anymore. It is almost like she became immune to the steroid. She has tried many medications, but has had no luck lately with stopping the hairloss or promoting growth. We are taking a break from all medications. I always ask her dermatologist (that has a daughter) if he would use it on his child. I believe he always tries to give me an honest answer. He has said no to two treatments. Trust your instincts. You will make the right decision for your child.

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