Diffuse AA finally turning AT, need coping advice

After two years of battling diffuse AA and trying every treatment from  scalp injections to Methotrexate and lastly DCPC, the end result looks like it is progressing to AT.  I am so scared and confused at this point that I actually feel numb inside.   I think the final blow may have been the DCPC as massive hair started to fall after that treatment, but I am really not sure.  The strange thing is though that  even though I have lost ninety percent of my hair, I do feel little nubby hairs all over which I am hoping may be regrowth.  Just wondering if anyone could offer any advice on how to start to live normally again after losing most, if not all of your hair.  I have been so depressed that getting up in the morning is a major struggle.  My husband is supportive, but I don't think he totally gets how emotional this is for me.

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Permalink Reply by 2yv8sk37l2jbl on August 16, 2014 at 3:42am
I have had au since age 10. Think about how useless your hair is and how awesome it is that that you don't have to shave anything. Wigs can be fun if you let them as are scarves. I turned 45 recently and I have decided to not let it bother me so much anymore.
Permalink Reply by Starshine on August 16, 2014 at 9:31am

Thanks Susan, I do think about all the people who have been dealing with this for much longer than I have.  I know I will have to accept it, but being so new, it is going to take some getting used to .  You have a great attitude, hopefully I will get there one day.

Permalink Reply by 2yv8sk37l2jbl on August 16, 2014 at 10:32am
I don't know which is worse: losing your hair when you're older or when you're a child. I think the grief is a lot more difficult if you lose your hair when you're older. I don't remember crying about my hair or praying about it or asking why me. I do have some anger issues though. I admire the women on here that go without covering their heads in public. It is something I will probably never do. I do not feel that it's my job to educate people about my disease and rude questions really get on my nerves. So much for the goods attitude :)
Permalink Reply by Michjo57 on August 17, 2014 at 5:15pm

Don't waste another minute on worrying or treatments. I feel the treatments do more harm than good.  I stopped everything after six months.  Two things that got me through this.  1.  Jesus Calling daily devotional by Sarah Young .  2.  After one year of throwing away money on synthetic wigs that I did not like and end up throwing away or giving away, I got the Follea gripper.  It changed my life.  I had it styled to my usual hairstyle, wear it everywhere.  Even ride motorcycles and boat with it on.  It's part of me now.  I hid in the house for six months while I was losing my hair. I wore toppers and hats, and felt very uncomfortable with them on.  Now I have freedom.  Don't waste another day! PEACE!

Permalink Reply by chris for hair on August 19, 2014 at 10:05pm

Follea is fine for some, but not for others. I have had several Follea clients come to me expressing dissatisfaction. This is true for every solution out there. One must inventory their needs and pocketbook and then decide. I wear synthetics, yet live outdoors riding and training horses, and they work perfectly for me. No one knows, and even when I tell them they do not believe...So it is a very personal decision where there is no right or wrong answer.

Permalink Reply by chris for hair on August 19, 2014 at 9:58pm

I am likely Not the most supportive person to advise you, but I see people daily that suffer from many conditions that are much more overwhelming and devastating than AU. While I do sympathize with you, hair loss can be addressed in so many ways today, that no one need know you augment your hair. Personally, because of autoimmune disease, brain tumor treatment, and vicious genes, my hair is now gone yet I continue to look much better than my peers that have not had such trials. Part of this is because I refuse to be ashamed of what life has brought me. If I am fake on the outside, I am not fake on the inside as so many are today. I think this is the attitude we must adopt if we are to move out of the victims role and into the victorious role. See your life trials as tests of your enduring spirit, and life will change for you.  

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