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Do you have any other autoimmune issues?
I've had alopecia since September 2008. Lately I feel like my autoimmune system is completely out of whack.
For those who have other autoimmune issues, how soon after getting alopecia did they surface? What do you do about them? Diet? Supplements? Exercise? Acupuncture? Thanks!
For those who have other autoimmune issues, how soon after getting alopecia did they surface? What do you do about them? Diet? Supplements? Exercise? Acupuncture? Thanks!
Replies to This Discussion
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Permalink Reply by Maritza Stern on
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My son Thomas age 7 AU since age 6 months also suffers from ezcema (autoimmune) since birth and severe food allergies since birth (also autoimmune). You could try eliminating certain things from your diet that build up yeast in the body. Low sugar, not too many carbs in the diet, but eliminating eggs, dairy and wheat altogether is crazy if you don't have celiac disease or allergies. You need those foods to have a good working immune system. I would definitely go the organic route if you want to try a diet and whole grain pasta and whole grain breads and foods. Good luck!
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i would love to know more about ur diet....i am going through the worst alopecia i've ever had, and have tried shots ,anthrillan ,cyclosporine etc...i will try anything
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I would like mor information on this I dont have any other autoimmune-my sister has RA-i have been vegetarian for 20 years-just took out dairy 2 years ago-history of IBS-had colonoscopy and pill cam-slow working intestines-any suggestions
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Permalink Reply by Tamara on
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I was first diagnosed with ezcema when I was about 16 or 17, and then when I was 22 I was diagnosed with Crohn's Disease, which are both autoimmune, and then just recently with the Alopecia. I've talked to a few other people with Alopecia that also have other autoimmune diseases too.
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Susan, there may be another reason that the diet is working for you. You have other medical issues that may have been caused by the foods in your diet, but it probably wouldn't be a good idea for people who have just alopecia to avoid those foods since it is necessary to eat them. It could be that the diet you are on is making you feel so good inside that your stress levels have been reduced and that's what is letting your hair regrow. Stress puts a heavy burden on an immune system that is already compromised by other autoimmune diseases. I have suffered with IBS irritable bowel syndrome all my life and you know what the main cause of it was MSG Monosodium Glutamate....I discovered it NOT the doctor who took me off bread, tomatoes, onions, chocolates, etc. and put me on loads of pills that also didn't help. Being on that diet never helped me, but once I started probing the MSG b/c I read an article about it and low and behold a lot of my foods contained MSG, I decided to omit that from my diet and life has been so good for my stomach that I feel like a different person. More pleasant, LESS STRESSED. : ) What others should do is get tested for food allergies and avoid those foods if they are TRULY allergic, but it's a longshot to say that avoiding those foods may bring you hair.
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Permalink Reply by Mary on
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This is all very interesting, and I'm tempted to try the no-gluten, no-dairy, no-eggs diet for a bit, though it would severely strain my marriage ( ;-)
But, I ate gluten, dairy and eggs for 47 years before I had the slightest hint of AA or any digestive problems. I had super thick hair my whole life up until age 47, with no hair loss. Then after 7 years I went AU at age 55. (BTW, I had my doctor test me for celiac a year ago after I read about a possible connection - no allergy, he said.)
So my question is this: if I went my whole life up to age 47 with no manifestation of AA, why would changing my diet now reverse it? I know allergies can develop later in life, but this just seems a bit of a stretch. I'm interested in your opinions. Thanks.
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Permalink Reply by Nicolle joi houseman on
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Susan, i do agree with you. We can become allergic to things we have used all our lives. I have AA and also hashimotos disease. What would you suggest i eat or eliminate from my diet? I dont feel the dr's. are very helpful. I would really appreciate any help you can give. You seem very knowledgeable about all this. Thanks!! :)
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Permalink Reply by Patrick Quigley on
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Susan, I TOTALLY agree with you!! I'm living proof myself. I've had AA for 12 years now, and have been using my VitaMix Blender every single morning to get my raw veggies and a little fruit. I'm pretty much on the Paleolithic Diet and my hair is growing back. It did take a few years for the improvement to finally take effect, but that is the only thing I changed; my diet. Folks have to realize that it's not going to turn around in days, or weeks or months. It takes years to heal the small intestine. We have to think like Celiac patients. I feel there is a relation there. Did the steroid injections for 5 years in my eyebrows and scalp and the patches would always return. I must admit, I love bread. And pizza. And carmel rolls. BUT NEVER, NEVER AGAIN!! I have read the Eat 4 Your Blood Type book PLUS Dr. Barry Sears book Toxic Fat. Needs to be on everyones coffee table! I know there are some who don't trust the science, but again, I gained my testimony and am a true believer. So glad to see your post Susan!!!
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Permalink Reply by Connie - Chris' Mom on
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My son started losing his hair which sent us on a journey to find out why (he quickly went AU). Along the way we found out that he had Ulcerative Colitis an autoimmune bowel disease. The colonoscopy revealed it had started at least 2 years prior when we thought we were dealing with an allergy. He had broke out in the hives and we couldn't find a cause. The anti-histamines the specialist prescribed didn't help. The prednisone was the only thing that relieved the symptoms and then we dealt with it with natural supplements and the problem seemed to go away. Now as we deal with the Colitis his hair is growing back. He's been on heavy-duty immunosuppressants for over nine months and his hair is really coming back - eyelashes too! Now the doctors want to take him off the immunosuppressants and try something with less long-term side effects so we'll have to wait and see what happens to his hair. As much as he wants hair he's very clear that he wants his Colitis under control more and won't do anything for his hair that could compromise the Colitis treatment. I'm so glad that he has his priorities straight!
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Permalink Reply by Tallgirl on
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Hey! I just heard on the morning news that some stuff in the asthma inhalers has been helping other autoimmune conditions. I wonder if this easy treatment may be researched for us soon? They said it eliminates the need for steroids.
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Susan, my son has avoided his allergic foods 100% since age 1.......I also am college educated. I also worked in a hospital for 10 years, studied Microbiology, Anatomy & Physiology, Nutrition, Organic Chemistry, etc. What I am saying is that this is not a miracle cure for all alopecians to try. If they choose to try it okay, but I don't want everyone to think that it will automatically work for them. if my son has been on a strict diet (he can only have corn and rice grains). He drinks rice milk and can only have rice cereal. His meats are organic and Kosher (NO MILK OR GLUTEN), I can go on and on about his strict diet and that is why I am saying to others that even if you remove these foods from your diet it doesn't mean you will grow hair. What works for one person doesn't work for another. We have chosen to accept this disease (AND THAT's JUST US) and focus on other parts of our lives. Our family motto is "Pray for Health, Not for Hair". Eating healthy, getting excercise, no steroids, no pills, no creams, no herbs. I appreciate all you have gone through in your life in search for a cure and your imput in very useful and valuable to all. I will pray for your continued hair growth.
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