Do you keep a journal about your alopecia?

This is something I have been thinking about doing. This Spring will mark my 2 year anniversary with AA. I thought it might be interesting to start documenting everything from Dr. visits and treatments to actual days of patch loss discovery. I'd also like to keep notes about what I've been up to when I discover bald patches....the first patch I discovered on my head was while I was brushing my teeth at bedtime...I had been working in the garden and thought that I had been sunburned on my head (in May? how bizarre...) Actually I did get a sunburn on the bald patch. And then every few months more patches showed up. And the treatments began....and the hair started to grow....and more patches showed up.....etc.

Does this sound weird? Writing everything down? Maybe a few graphs? ;) Pictures? Like many of you, my emotions have been all over the place. Mainly I'm ok with AA. I know it's something I can't control. But it is very interesting to me. I guess this might be my way of embracing AA.

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Permalink Reply by Eileen Simpson on January 4, 2009 at 1:37am
Hi no I don't yet but something I'm thinking about. I just have'nt had the courage to do that yet. No I don't think it's sounds weird in the slightest, if anything I would hope it would help. I want to start but I think you have to be in the right frame of mind or at least I do. Everything has it's own time and place
Thanks for the reminder

Eileen

Good luck if your ready you should do it, if it doesn't feel right you can stop right?
Permalink Reply by Nants the Rebellion Dog on January 4, 2009 at 5:43pm
I keep a journal...sometimes with more regularity than at others. I think it helps with all areas of my life. It records my thoughts and feelings. It's good to go back sometimes to view the journey you're on! I would encourage you to keep a journal. I also add three things I'm grateful for each day...keeps me focusing on the positive and keeping my eyes, ears and heart open to gratitude!
Permalink Reply by Val on January 4, 2009 at 10:38pm
I have a journal that I write in everyday and it helps me tremendously!
On really bad days I love having something to go to and read about good days and how far I've come in my acceptance. I also just recently started a blog that is great! I started it in an effort to keep people in the loop and have a place to share publicly what I think and feel about everyday.
It's a really personal decision and there isn't a right or wrong way to do it (Thank goodness!)
Val (c:
Permalink Reply by JeffreySF on January 5, 2009 at 12:13am
Several years ago I kept a journal until somebody discovered it and read it.
I was pretty pissed off and I stopped writing. I wrote down everyday activities and would browse through it at years end to write my Christmas letter.
Anyway,I just started keeping a journal again starting on Jan 1st. 2009.

Jeff
Permalink Reply by Amber on January 6, 2009 at 1:15am
i keep a journal but not just of alopecia but everything. i love to journal. i have lots of journals that i plan on giving to my kids and grandkids someday. journals and words will last longer than i ever will. :)

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