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Hi Caro,
Welcome to the group. Sorry you are dealing with FFA, but glad you found this group! I am 37 although, I believe my hair loss started around 32 as well. I was diagnosed a year ago. My hair loss was very slow at first, so slow that I didn't notice it, although now I can see it when I look at pictures of myself. I started losing hair more rapidly after giving birth to my daughter. I haven't tried Plaquenil, or any meds really. I am too much of a chicken I guess : ) I did try the steroid injections but was not pleased with the dents they created in my forehead so I stopped them. I do receive UV laser treatment which seemed to be working well, but I'm still not quite sure. People also tell me that they can't notice my hairline. I can still hide it by parting my hair just right, but I'm not sure how much longer that will be possible, so it's kind of a waiting game at this point. I planning on eventually needing some sort of hairpiece, although somewhere in the back of my mind I'm still hoping to hold onto as much of my hair as possible. It's crazy how much this has affected me, it really has changed my world, but I'd like to believe things are getting easier. If it weren't for this group I wouldn't know another soul with this condition, so I'm glad I found it. Are you in the UK? There are a few UK ladies on here have a fabulous recommendation for hairpieces if you look through the comments. It's interesting that you have had this for 15 years. Many of the doctors claim this disease eventually burns out, but haven't heard of that happening for anyone yet. Anyhow, welcome, and best to you!
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