Alopecia World
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First post
Hi everyone,
I have been on this forum for a while, but never really posted anything. I do get comfort from reading this site. I am 34 years old and i am from the Netherlands. 17 months ago i got sick for a while and at the same time my hair started falling out. My hair has not stopped falling since. I have been diagnosed with: alopecia areata, alopecia diffusa and a very bad telogen effluvium.
I am still unsure which one is the right diagnoses and i struggle to find a good dermatologist who actually knows something about hair loss.
Some days, like today... I just want to shave it all off, but i can still cover the baldness. My hair looks a lot thinner now and like i said i can still cover it up, i don't feel like my old self anymore. I guess you all know what i mean.
I just wanted to say: thank you all for posting your stories here. It gives me strength and a feeling of not living this nightmare alone.
xx
Replies to This Discussion
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Permalink Reply by Alliegator on
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Hi and welcome!! You are definitely not alone. I shave my head, and I have grown to love it. I just wish my hair (what I have) didn't grow so fast. It gets prickly by the end of the day so if I would have to shave it each day if I didn't wear wigs as well. I hope you find a good dermatologist. You might try to see if there are any hair specialists.
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Permalink Reply by Christine on
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I've Had AA for ten years now, and Like you I was able to hide it pretty well, most of my hair loss was on the lower parts, but have since started losing on the upper in Big spots as well where you have difficulty hiding it, I have bought a wig in the past but was never happy with it, it itched and bothered me with slipping and not feeling real appearing. I had told myself that when and if my hair got so bad, I would want a prosthetic type of replacement first, because of the human hair and quality, second because of the security. I have gotten to that point now, I know that shaving will be a emotional step for me, and I'm a bit scared of the prospect, I have been told that I can keep some of my hair and still wear the hair, but I'm hoping that I will love the way it looks so much I will be ready to shave it all. My husband is having a lot of trouble with it, more than me right now, I won't say that I've given up all hope of my hair growing back, but there are times when you get so sick of the ups and downs, and it's really a big down when your losing and can see no end to it. I'm expecting to get my hair on the 28th of this month, and as it gets closer I get more determined to be done with my own hair, that is continuing to fall out in large amounts. Hopefully I will hide it for just a few weeks more. Best of luck to you and whatever you decide, it's such a personal thing.
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You're welcome.
Awe, thank you!!
I know what you mean about washing. It made me sick when I had to clean my bathroom, and I had hair everywhere. That is good that you are getting prepared for a wig. I would do lots of research to find what you want and what would work for you.
This is my blog if you would like to view it: http://lifeasabaldgirl.wordpress.com/
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Permalink Reply by ASRN on
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I just joined too and we are the same age. I feel like a web stalker because I am sort of obsessed with looking at and reading this site since it is SO NICE to see people like me and see that I am not a crazy person for feeling like I do :) I am getting ready to meet with my 4th dermatologist. I have sort of given up on any of them being able to "fix" me but I have see one anyway for a skin check and figure it can't hurt to have yet another professional's thoughts about the AU while I am at it. Good luck!
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