Frontal fibrosing alopecia

Hello!  Has anyone's alopecia progressed from sides of head and bang area, receding backwards?  If so, have you had any treatment successes?

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Permalink Reply by Charla S. on April 4, 2014 at 11:15am

Thank you, Molly.  How do I access this info?

Permalink Reply by Molly Vazquez on April 4, 2014 at 12:15pm

Heres  the link Charla :) Be sure to send her questions you would like to have answered as she's creating videos for youtube. You can watch her first video here

Permalink Reply by Charla S. on April 4, 2014 at 12:36pm

Thank you so much!  What an inspiration your daughter is.  I know you are very proud of her.  I will purchase her book and see if I can incorporate what worked for her.  Again, thank you.  Charla

Permalink Reply by Kojack on November 5, 2014 at 11:51am
Mine started in July and hairline has receded an inch to an inch and a half around forehead and sideburns areas. I have been taking Finasteride every other day and applying topical lotion to hairline around my face (glucocorticoid 0.05%) twice daily (morning and night). I did that for 2 mos. but FFA was still active so doc gave me injections into my hairline around the face. Sorry, Not sure exactly what she injected. Since then I have continued with the previous routine and I do get some itchiness but feel the condition has improved somewhat ....definitely not as red and don't believe I have had any further hair loss. In 2 mos time I go for more injections if the FFA is still active, which I believe it is, unfortunately.
Permalink Reply by Patricia on January 31, 2022 at 12:01pm

The injection is called Kenalog

Permalink Reply by Kojack on January 31, 2022 at 12:32pm

7 years have passed now and hair loss finally slowing down but had sufficient receding in last 7 years to result in full time wig wearing.  Otherwise, I look like a clown.  Saw specialists even just last summer.  Finally gave up/gave in and decided will just go forward with wigs and discontinue treatment as hair won’t grow back anyway and there are worse things to be afflicted with.  Still get some itching but medicated shampoo helps.

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