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Going through it again
my names amanda and im 28 years old,i first lost my hair aged 8 and it didnt start to grow back till i was 16 then another 5 years til it grew bk completely, recently it started to fall out again and i dont know how or if i can cope with it all again.Dont get me wrong i realise i was one of the lucky ones for it to actually to grow bk in the first place,but ive had all the funny looks off strangers, even one of my teachers asked me how long i had left because she thought it was cancer, not to mention all the coments u get off people. ive lost one eyebrow and have patches at front of hair line and a couple at the back, but the doctors told me they doubt it will ever return. growing up wigs wernt available on the nhs ,and i wasnt allowed to wear hats in school and there was nothing like these chat rooms then. i just dont know how il handle it all again and what to do next
Replies to This Discussion
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Permalink Reply by Heather Bloom on
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I don't think doctors should telling you it will not grow back, they don't know.
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Permalink Reply by CBrown on
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Hi Amanda,
Like you, wigs aren't covered here by health insurance, unless you have a plan that covers the purchase of one every five years. My hair budget is a part of my other expected expenses, like rent, car, groceries, etc. Wigs allow me to fly under the radar. I have worked for my current employer for six and a half years and share a floor with 300 other cube mates, and wearing a wig allows me to choose who I tell - because let's just face it, some people simply can't handle understanding this condition.
I was diagnosed with AA when I was five and had numerous spots off and on until I hit 23, when I lost half of my hair. I went through the cortizone injections for another four years after that (and for anyone reading this, I don't recommend that - you should limit your exposure to steroids for six months or less, if you can). At 27, I lost it all. There was one weekend where I reached the point of no return, where the shots were no longer keeping my remaining hair, and I had to throw in the towel and admit defeat. Then I went through a true grieving process. I suspect you had to do that as a child, and now you may have to again as an adult.
How lucky are we to have a site like this to be able to talk about our unique situation and to get ideas from each other on how to cope? I was completely on my own when this condition went haywire on me. You are not alone now, and neither am I.
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Permalink Reply by amanda ackroyd on
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thank you
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Permalink Reply by Susan P aka DGADBS on
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I know how you feel Amanda it's like going through hell all over again and it's all comsuming when it's falling out, nothing else matters when you going through it. I feel for you, I really do, big hug.
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i just dont know how i feel bout this, i was truely heart broken at first, my emotions were all over, to b honest they stil r. i feel stupid cos i can hide it but im not like most of members i know wots coming, i know i sound sad
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most of the members think if it grows bk it would b the best thing ever, but wen if falls out again your whole world falls apart
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i didnt even belive it at first i thought i was being paranoid until i asked my brother, im glad i have it, its made me who i am, i am proud i had it =, im just scared
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thanks matt, im ok today its that some times i get so pissed off with my self, i dont really care wot people say, for instance today ive gt my hair tied up and a big bald patch at side but i dont try to cover it as i dont care wot people have to say, i think its just getting me down as i am a single mum to a 3 year old and she starts school in sep and i dont want the kids saying owt to her a bout it. ive had injections but stoped as it hurt too much and didnt notice any change in growth, herbalist has told me to rub fresh ginger on the patches but i havnt tried that
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