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I am a desperate grandma trying to find some help from others who would be willing to help me with my granddaughter who is 12 now but has had alopecia universalise since she was 7. Her parents went through a bad split and she was sent with her father (who had a gf that she disliked very much) because her father convinced her mother that she couldn't provide the things that the girls would need. It was about 4 mo after this that my gdaughter lost her hair. Last year she told her father there was no way that she was going to live with him or that woman anymore and her and her sis (8) went back to live with their mother (who now has a boyfriend) and was ecstatic as she had been fighting for all of those years to get her girls. BUT now what is happening is the mother has no time for the girls as she works full time and spends the rest trying to devote to the relationship of her and her boyfriend.
She has no money for good wigs, so we are buying $15 ones that don't fit her properly. She is getting very bitter and will NOT discuss alopecia or anything to do with pen pals or getting other friends. I found out about the Gripper wigs and tried to find a way to get one for her but when I found out the cost I knew that I would have to go through a Lion's group etc. That's ok but I don't know anyone who sells them in Canada. Do YOU? Do you know where there are wigs under $50 or even $75 (real hair) (long) around the Calgary area.. I would love to talk to someone, anyone who is going through this problem too. She is an awesome girl, who won't let others see it. Underneath she is crying her heart out and her outer self is a shell of bitterness. She is a beautiful girl, with weight issues, and also needs to have counselling but parents won't hear me or her cry. I wish and pray that someone would knock some sense into their brains.
If you would like to talk to a grandmother and give me some advise please I'm open
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Hello-
I am so sorry to hear how your granddaughter is suffering. I wanted to offer to online purchase sites. I myself choose purchase from Patti at Patti's Pearls. She'll custom size a wig based on your head measurements. She will also customize a wig--add bangs, shorten, etc. I've never had a wig from her I didn't feel I got the very best service for my money. She is used to working with children with alopecia. She has a form of alopecia herself and her website and Facebook page are full of wig tips and info. Here is her website:
http://www.wigsbypattispearls.com/
You can also search the site below for wigs for kids. If you find something you like, you may want to contact Patti's Pearls to see if they could get it for you, or alter it as needed. She sells a lot of Jon Renau, and they make a fairly good number of kids wigs.
http://www.wigs.com/wigs/kids.html
God bless,
Cathy from Texas
Hi Granma
I can imagine this is a very difficult situation for you and your granddaughter. Having alopecia and having to wear something on your head that you don't particularly like is really insult to injury and can cause some really difficult emotional turmoil. Your Granddaughter is young and I'm sure trying very hard to find herself while dealing with a condition which changes the way she looks....difficult for you all. Getting a wig is not the only option available but I feel if this is what will help your granddaughter she needs the best wig possible to help her on this journey...she also needs to be in contact with people that have alopecia and understand wigs.
My daughter lost her hair at 12 years old and has been wearing Freedom for the last 11 years...we truly have found this to be an excellent choice. I will friend you and pop a couple of piccies up here so you can understand what Freedom Wigs are about and ask me any questions about them. They are fully secure without glues or tape, use 100% unprocessed virgin human hair and are extremely comfortable and easy care.
I would contact the Freedom Wigs lady who lives in Calgary. Here are her Contact details:
Sandra Fournier
at Reality Hair
Phone: (403) 226-8585
email: sandra@realityhair.ca
www.realityhair.ca
Sandra also has alopecia, is extremely understanding of this condition and a lovely lady to deal with.
Many of the Freedom Independent Agents work with Support Groups and Charities to make sure those that need a good wig get one. Sandra is extremely good at helping people with their alopecia....even if you decide this option isn't for you the experience for your granddaughter will be a positive one.
This is my daughter in a couple of her freedom wigs....she really loves them.
Good luck with investigating all the options for your Granddaughter and feel free to ask as many questions about the different options available.
Rosy
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