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Hair shedding
I was recently diagnosed with AA and have been getting steroid injections every month for the past 3 months, however my hair is still rapidly falling out around the bald patch. I am starting to get white thin regrowth in the bald patch where I have gotten the injection but still have heavy shedding. Has anyone else experienced this?
Replies to This Discussion
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Permalink Reply by Momtoalopecia on
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Hi! My son and I have both suffered from alopecia. I haven't had a recurrence since my early 20's but he is now 25 and still suffers from it. He has done the steroid shots. A year ago I came across a product called Monat. It has been a life changer for him. He hasn't had a shot since last October. I became a distributor of Monat so my family could use it. I can't tell you how many amazing results I have seen. As I read these posts it breaks my heart to see what people are going through. I know myself what everyone is going through. Monat has been a true God send for us. Please Please check these products out. My son said the first thing he noticed was that his shedding has stopped. Then his hair begin to grow again in those spots. You can google a ton of information. My website is janabenda.mymonat.com.
You can also contact me via email. Jbenda2014@outlook.com
The picture is my son's before and after.
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Permalink Reply by Patchy on
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I wonder sometimes about the shedding, too. I seem to have more of it around an area where a patch shows up later. I know that we lose about 100 hairs per day, but it seems more noticeable at times. I've heard that you can have re-growth and other areas that are actively shedding at the same time, which is frustrating.
I was wondering if it was because the hair was re-growing that there would be more shedding, but I think that's just wishful thinking. I'm trying the anti-inflammatory diet with supplements of quercetin, curcummin, vitamin D3 and biotin. We'll see how this goes.
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I've certainly noticed that I get hair coming back dark on my beard right in the spot of the injection (usually). On my head, when the spots got big, they continued for about 3 months (3 injections) before I started having regrowth.
The big question is whether the regrowth was due to the injections, or because my body had decided to stop the inflammation.
My beard is tricky. In some spots, I see immediate results within 21/2 to 3 weeks right where the injections were. But then, no place else. I'm starting to see white hairs in the bald spots on my beard, which may be the result of the injections, or just my body slowly stopping the inflammation.
It's known that the injections work for some right away, while others they don't work at all. Why? Nobody seems to know.
I think doing something is better than doing nothing. Cutting out inflammatory foods and taking anti-inflammatory supplements seems to be a pretty low-cost method of taking control.
But, I'm learning that I need to just wait and see. It's hard. No one seems to get the fact that, while it's not life-threatening, it takes a psychological toll.
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My son also has a couple of places in his beard. One spot came back white as well. When I see him I honestly can't tell it but to him it stands out. The last time I saw him both spots grew back. His bald patches on his scalp have now completely filled in.
When he was taking injections sometimes they worked and sometimes they didn't. It's now been a year since his last injections. He feels like his hair is now anchored better and is not falling out.
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That's very encouraging to hear! I know a lot about the disease since I've been reading about it a lot since January. I'm assuming the cycle will be around a year for me, but it's nice to hear of others having the same thing and their recovery. I was really hopeful that I could get my hair cut to its normal length by the end of August (which I did), but then noticed the two spots start up. So, now I'm back in longer hair mode.
I know what you mean about your son noticing the beard more than others. I suppose people just think you have white parts. When it was at its worst, people thought I'd been burned!
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Yes, his lasted a lot longer than mine when I was his age. Be encouraged there is hope. The products he uses now seem to have done the trick at least for him.
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That's great. It seems like auto-immune is such a moving target. Even though doctors can ID the JAK pathway and such, it doesn't seem to have an effect on everyone. I wonder how much of my remission is due to the injections and how much is just the natural subsiding of the inflammation? Hard to say. I suspect it's a bit of both.
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That's about how my son's injections did. He had patches then one patch would run into the other. When I was young the injections usually did the trick but for my son, sometimes they worked and sometimes they didn't. He was so fed up with injections (they hurt). When he started on Monat the first thing he noticed was he wasn't shedding then the patches started filling in.
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So, what's the active ingredient that addresses the auto-immune inflammation? From what I can see, this is a premium shampoo like Nioxin (to which I had a pretty severe allergic reaction).
While it's great that it worked for your son, I'd think there must be something that addresses the inflammation.
Currently, I've noticed my beard spots completely fill in with bristly white hair. The only thing I've done differently over the last two weeks has been take 500mg of Quercetin (a pill in the morning, a pill at night) and cut out sugar from my diet (and limit white flour and saturated fat).
I'm aware that this may just be a result of my body naturally ending the inflammation, too. So, I can't really draw a conclusion. My hair seems to be shedding less than it was, too. But, again, hard to draw a definitive conclusion.
But to my point, quercetin is a known anti-inflammatory, so it would make sense if I had positive results.
Any info you can give would be interesting!
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Capixyl is one of the main ingredients that is on the products. It's speciafally for inflammation. I have heard some about Nioxinand from what I've heard it does work but it's full of toxins. These products are made mostly of essential oils from around the world. The oils mimic your own oils. They bring healing to the scalp while the capixyl reduces inflammation. You tube has a ton of information and so does the Monat has their clinical studies are on the website. I would be happy to send you some links for information if you would like. My son also has spots in his beard. One spot has grown back white. To him the spots are very obvious but I hardly notice them. If you will email me your email I will send you some links.
Jbenda2014@outlook.com
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Thanks. I'll research it a bit more. I have been using an essential oil mixture on my beard for the past few weeks, too, but I discounted it as working since I've done it before with no results. That's why I think it's the quercetin for me. Thanks for letting me know the main ingredient. I love to learn!
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