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Permalink Reply by Kath on May 23, 2013 at 6:05am

Hello Snowflake, losing your hair is a very difficult thing to comes to terms with, it's a big part of you and your femininity and its perfectly fine to feel upset and bewildered about it. I lost my hair when I was 26, it slowly all fell out after about 3 months I was completely bald, and all my body hair had also gone. Unfortunately there isn't a cure, I was devastated like all of us, my beautiful thick auburn brown hair had disappeared, and all I was offered was a wig on the Nhs ! Thanks then Doc ! I paid privately to see a dermatologist thinking there must be some treatment,but to no avail... You could have steroid injections, but they were not very successful and quite often painful so I went home sobbing. I remember the first time I had to go for a wig fitting, I felt so nervous and crap about the whole thing. I did go out in my new wig but had to have a couple of drinks first!
That was 18 years ago.... Wow I still am the same, although Just recently i do have some fluffy regrowth on my head and eye brows but I'm not really getting excited, as it quite often falls out again. I have learnt to cope over the years, with ups and downs, I wear bandanas around the house and when it's hot, I've sent a huge amount if money on real hair wigs, and frankly it's not worth it, there are so many good quality wigs and styles available now, much more than when I first had to get to grips with wigs shopping. I understand how you are feeling very much so, in the early days its so distressing, but you will be ok, and your real friends and family love you for who you are, not what you look like, and that's it in a nut shell. I found love as a baldy ! My husband doesn't care about my baldness , he calls me cute ears and strokes my head ! And because I'm happy with it now, I have more confidence and go out with bandanas or hats I'm ok with it. Time will help you, I have had lots of people come up to me thinking I have cancer, they just automatically think this, it did upset me at first, but now I accept it. You are a beautiful strong person inside just remember that, there will always be times when you don't feel good about how you look, but it will pass, and you will carry on and get through that bad day, it's only natural for us to want our hair back. I'm always here for chin wag and support, keep smiling :) kath x

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Permalink Reply by Snowflake on May 27, 2013 at 7:04am

Dear Kath,
Firstly apologise for not responding sooner... its been a hectic week with family dramas :-( Thank you for your message, and i feel bad that i couldnt respond to you on the day when you were having a hard time... :-( Hope today is a bit better for you Kath. I feel you so much, as I too went through drastic hair loss, my beautiful long long hair :-( and those nights in the shower looking at my hair that had fallen out each time.... i cant even describe how i was feeling, i was just crying all the time, was so sad.
My partner doesnt care what i look like either, he actually loves the new regrowth, this crazy platinum blonde color that has grown back on my head.. me..well im just trying to adjust to it... one minute i have hair, next minute im losing hair,..next minute im BALD...then next minute regrowth happening...then next minute the regrowth is now crazy snow white color! hehe i dont have a choice but to deal with it..so im doing the best i can :-) you keep smiling yourself, you sound like a brave woman for dealing with this so long... hope to hear from you again.... take care, Snowflake :-)

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Permalink Reply by Snowflake on May 28, 2013 at 1:25am

Hi there.... sorry for late response. So sorry to hear you were having a hard day.. is today any better for you? Hang in there, you are not alone. I had very dark days whilst losing all my hair.... still have moments now.. gets a little better with time.. and with chatting with like people on here, whom know exactly how you feel. Cheers, Snowflake.

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