How does everyone stay so proud?

Don't get me wrong, I know this is my life now.

I started loosing my hair three years ago when I was a senior. I lost mostly all of my hair within 1 month. For the next year and a half I wore wigs and bandanas, dealt with the questions and came to terms with my situation. Once my hair started to come back I got extentions. Everyone told me this would be a one time deal and I would be safe. I didn't believe them for a second. I did the research and knew I wouldn't be that lucky. And then it happened.

About four months ago the cycle took over again. Although I'm dealing with it a lot better this time around, I don't think I can be like anyone on here. I've never met or talked to anyone with alopecia before. How do you stay so proud?

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Permalink Reply by Sarah on August 24, 2009 at 10:13am
I understand what you mean. I guess there is just a combination of reasons why I feel the way I do. I'm not ashamed by any means, I'm just torn. I guess I should take your advice and think about alopecia seperately and not in combination with other life troubles.
Thank you for your advice
Permalink Reply by Lee on August 25, 2009 at 1:23am
good post Tallgirl
Permalink Reply by Mary on August 24, 2009 at 6:39pm
Sarah,
It's really difficult to deal with. These people are awesome on here. I have areata, but it hasn't all come out and it grows back. My son has universalis. That's the real deal. My heart breaks for all of you especially you girls. My son's started during the summer right before his senior year of high school. Was a terrible year, hiding it, the wigs, etc. After he graduated he came out and told his closest buddies (one had figured it out) and decided he'd go to college hairless and start anew. His friends were so totally supportive and that was so important. Before he started college he went to the beach to get a tan on his white head. He was glad to be rid of the wig and swam in the ocean for hours. I wish he would get on this site and communicate with others but he doesn't want to. I find it helpful for me to be here. I don't know what will happen with mine. It's so wierd we got it at the same time, but I still have my hair, just dealing with bald patches here and there. I find it hard to be like some of those here too. I think its that we have good days and bad and during the bad days we have this condition to add to our problem. I'll pray for all my pen pals here. Hang in there.
Permalink Reply by Sarah on August 24, 2009 at 9:06pm
Thank you.
I have areata but my patches get huge. At the moment I am contemplating shaving the rest off and going out in public bald. I lost my eyebrows the first time but they grew back and haven't fallen out again yet.
Permalink Reply by Mary on August 25, 2009 at 1:15am
I felt much better after I shaved my remaining hair off...there are pics on my page of the night before. I felt in control again, and stopped crying every day picking up hair off the floor! Take care,
Mary
Permalink Reply by Lee on August 25, 2009 at 1:20am
Im not proud of my alopecia...but Im not ashamed. I dont think it makes me who I am...but I think it made me a lot stronger. Its a rough road. For the first year, I was severly depressed...but, now, Im sooo much happier. My alopecia never got better..but other things in life did. It wil lget better.
Permalink Reply by Sarah on August 27, 2009 at 5:30pm
I feel the same way too. I guess my only struggle now is to decide if I want to shave what little hair I have left off.
Permalink Reply by Christine on August 25, 2009 at 1:56am
Hi Sarah,
I may feel a lot like you do, I don't know that I'll ever be glad I have AA, I think that the cycling of AA is the absolute worse part, I have had this for about 8 yrs now starting with one spot, each time about every year or two, I go into shed mode and so far each episode is worse that the one before, this is not easy, sometimes I think to myself if it's all going to go one day I'd like it to just go! NOW the difference with me is I've never lost it all like you did, I know that the statistics (if we can believe anything as being predictable about AA) have led me to fear the worse for myself, I try not to dwell on this, and do pretty good about it between times when my hair is there. One thing that has helped me tremendously is talking to others about it, I have yet to meet another Alopecian face to face, but I am very vocal about my AA I let people know about it even when I do have all my hair, and tho I would not say I'm proud to have Alopecia, I'm not ashamed of it either, part of me wants people to understand this, and I'm hoping that this will help me if in the future I have to wear a wig. I haven't come to that yet but I know the day may come. I hope always that someone will find a cure for this for all of us. Alopecia is something that has happened to us, no one asked for it, and for some it tremendously impacts our lives, the unsteadiness of it is at times torturous and emotionally it hurts. But there is healing and everyday I'm an Alopeician and that will never change, with hair or without. So I guess we are all in this together and in that sense you are like us and we are like you, at least I feel that way.
Christine S

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