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Permalink Reply by rshakiyla on November 15, 2018 at 6:06am

Hi, 

 I just recently got finished with a study where I was on xeljanz for about 5 months. After completing the study a couple of month after I noticed my hair started to thin and fall back out. I currently still have a bit of hair on my head still with fall out everyday and also my eyebrows with fall out. I had high hopes that the medicine would trigger what ever it is in my body to stop but I guess I was aiming too high 

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Permalink Reply by eleven11 on October 5, 2020 at 10:52am

Thanks, on behalf of the rest of us, for being part of this study.  I know stopping this medication is something we all wonder about being able to do.  I'm sorry it didn't work out.

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Permalink Reply by Nawar on October 6, 2020 at 7:11am

Sorry to hear that how many month did it take you to start notice that your hair started to thin? I have been on Tofa for around two weeks now 

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Permalink Reply by Brock on October 5, 2020 at 4:52pm

Has anyone had luck dosing down.  I’m currently on 20mg and would like to reduce to 15

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Permalink Reply by Nat on October 11, 2020 at 10:15am

Hi Brock, I was on 16 mg for 1 year. In March 2020 I reduced to 11mg every night and 5 mg every other day in the morning. No shedding. In July 2020 I reduced  morning pills 5mg to 3/week instead of every other day. In September, I found one spot. I think it's due to stress from virtual schooling and not due to reducing the dose . 

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