Looking for advice and help

Hi I am new to Alopecia World and have lots of questions. My 15 yr old daughter Mikayla was diagnosed March 2010  It started with a huge patch found by our hair dresser which then progressed to more patches... using a lotion started to help regrowth...then 3-4 months ago it started again so suddenly, now she has only a then layer on top half of her head, and she is loosing  her eyebrows :(

It is very difficult for her to accept, and I am struggling to watch her go thru this knowing there is little I can do. I have shared with her and we are gratefully it is only her hair...and not cancer!!

But still -it is hard, and it is hard watching her knowing it has shattered her confidence and self esteem. Yes she is in councilling ... she is wanting a wig and we are trying to find out how to go thru this process...any advice would be great. We Live in Auckland, New Zealand. Any other parents living there I would love to have contact with you...as well as anyone else. I have also found apart from our awesome GP there is no help from organisations for her... well sorry not quite true... Canteen is going to meet with us - :)  But the other medical groups have turned us down saying she is too old, no funding, or just don't fit there criteria... we are in limbo due to her age.

Thanks for listening and look forward to making new friends on this site.

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Permalink Reply by Amanda Crichton on December 28, 2010 at 8:56pm
Thanks Dylan, Yeah Kayla doesn't have much hair left and is loosing her eyebrows too :( I didn't realise how many people are affected by Alopecia and the different types, degrees of it all. Very Sad for those who have to go through this, but I do see it makes a lot you so much stronger as you go down this journey.. I am grateful it is nothing more serious...still hard though. Blessings
Permalink Reply by Wynter GS on December 31, 2010 at 5:44pm
hi, i am 15 also and have had alopecia sense i was 1, im sorry your daughter is going through this but i would like to get in contact with her if you think thats possable because it helps so much to know someone your own age going through the same things. other than that i really dont have much advice :(
Permalink Reply by Amanda Crichton on January 2, 2011 at 3:02am
Hi Miss G, It is sad to hear you have had it so long, but good to know others are there in her age bracket. I will pass on your message to her, at this point she is struggling and not sure weather she wants to come on this sit...I was hoping she would...will be in touch. Blessings
Permalink Reply by Amanda Crichton on January 3, 2011 at 4:01pm
Hi again, I think Mikaela came and signed up last night on her own accord! :0 Once she is accepted, if that is what she has done... I will ask her to add you... she was reading my messages last night! Hope your day has some sunshine it :)
Permalink Reply by Amanda Crichton on January 3, 2011 at 4:35pm
Hi again, Mikaela has added you as a friend, Her surname is Riley. Thanks
Permalink Reply by Tallgirl on January 1, 2011 at 7:42pm
Just remember: synthetic wigs tried on in wig shops provide choices, mirrors, order colors, trim of bangs, wig shampoo and metal-tong wig combs, etc. Price is low, so you can maybe order 2 styles. You can stay overnight in a larger city and get a make-up demo or go to clothing/second-hand stores while there. Time to help that girl meet dance season head-on! Does she have a trusted friend or cousin who can come along for the adventure? Don't forget a special meal while there, and take your camera. See if an older, confident teen with alopecia from a support group can join you.
Permalink Reply by cindy Babs on January 2, 2011 at 12:03am
hi amanda. it's been 18 m0 since my then 15 yo daughter became au in 1 week during final exams (june 2009) of sophomore year.she 's 16 now and is wearing a wig and moving forward with her life. it has been a journey of some low, low moments.i think about her and worry about her all the time re: "the what ifs" . she has on more than one occasion told me to move on because she has done so.it has completely devastated my heart strings.i do my best to keep smiling but i am constantly thinking of and worrying about her. it's been the most difficult time in my life but i can see how it is getting better and can continue to get better as well.try not to despair. there are so many people on here going through the same emotional roller coaster with alopecia and its pain and unpredictability. it's a wait and see condition....and we are here to help as much as possible. :)
please feel free if you want to connect sometime. it will get better...
Permalink Reply by Amanda Crichton on January 3, 2011 at 3:05pm
Hi Cindy,
Thanks for your comments and encouragement! I do find if I don't think about it too much,and don't focus on it I have good days, and not so emotional! So that is what i am doing at the moment. I may have some good news and am going to publish it with asking a question...off to do that now. All the best with you and your daughter!
Hope we can chat again soon.

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