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Prednisone
Can anyone tell me the success or failures of prednisone? I have tried it for a week had to go off but thinking about trying it again. I am desperate
Replies to This Discussion
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Permalink Reply by Jana on
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Hey, this is a place to vent. I know exactly what you are going through. I too burst into tears at one appointment, but it didn't work for me. This particular doc said "it's just hair" very sarcastically. I just about got up a slapped her into next week!! Needless to say, I will not be seeing her again. If you do stay on the prednisone, at least take vitamin D and calcium. And do weight bearing exercises to strengthen your bones. You look fairly young, but your bones can experience loss at any age, and Prednisone only helps the loss along. Your doc may also sugget a bone scan, just to see where you are at. Won't hurt. Good luck with your treatments. Keep me posted.
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Permalink Reply by Lisa Smith on
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You might want to think about eyeliner and eyebrow tattoos. I had them done and it really is life changing (for me). You don't have to worry about drawing anything on every morning. Jeffrey Segal did mine. He does individual hairs on the eyebrows, they really look great and I don't think about them anymore. They are just my brows. GL to you.
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I am wondering. I am a 54 year old single male who has had alopecia universalis for over 40 years. I have often seen comments from people on here about eyebrow and eye lash tattoos. But don't they fade in about 6 months? And doesn't one have to keep going back to have them redone again and again?
Mark Hansen
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Permalink Reply by Amy on
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Hmm, you should really try brow powder. I think they can look pretty good. No eyebrows and wigs is not a good look on me personally. I'm almost used to my banana and mostly "clear" face but put a wig on and I think I look crazy without my makeup. I do have some brows thou from shots in them. They are patchy.
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Permalink Reply by Tallgirl on
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Check out my brow powder on my photos with brown eyebrows. I like it better than "crayons."
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Hi. My name is Mark Hansen. I am a 54 year old single guy living on the east side of MIlwaukee. I have had alopecia universalis for over 40 years. All my hair started to fall out in a big way when I was in around 7th grade, 1968. The first doctor I went to was a dermitologist (before my parents and I knew a lot about alopecia and that it was a condition that should be treated by someone in internal medicine) Anyways, when most of my hair was gone a derm put me on prednisone at 5 milgrams a day for a few weeks to a month. I a short time all my hair started to come back. But when I stopped taking the prednisone, it all started to fall out again. And when the derm started to put my on it again, 1st, 10 mill, a day, then all the way to 20 millagrams a day, it did no good anymore. And when I went to our standard family doctor and when I told him how much I was taking he told me to stop. He told me that was way too much for me to be taking at the time. And the reason I finally stopped completely, besides the fact that it wasn't working anymore, was that my doctor at the time said that Prednisone can be a dangerous drug
if taken in large quanities and/or not monitored carefully, it can lead in some ways to cancers and other serious illness's over the long term. This was 40 years ago. And what you doctor or endroconologist may tell you may be different now. But all else I remember is that there is something in that drug that temporarily triggered something in my immune system to start my hair growing. And that was all. Personally I dont think it will work or at least contiinue to work.
Mark Hansen
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Permalink Reply by Kristy on
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I see that a lot of others have posted but I'll tell you my experience anyway. :) I had the Ophiasis pattern, was given 20 mg Prednisone in July 2009 by an Alopecia specialist, and in two weeks at that dose I had regrowth. I did a SLOW taper, where I took my last doses in early January 2010, so I was on it for six months. Side effects of sleeplessness and anxiety decreased as my dose tapered, and my hair seemed to be holding steady...I had almost complete regrowth. I was off all Prednisone by mid January and was down to just one small nickel sized spot. And then I miscarried in the spring at about 8 weeks pregnant and all hell broke loose. Nickel sized spot became Giant spot, Ophiasis pattern has returned, and now I'm losing hair everywhere...diffuse AA. Had to discontinue Kenalog injections as I was getting too much atrophy of the scalp. Now losing an eyebrow. So back to the Prednisone...my thyroid (TSH) was pretty normal when I started the Pred, but in June, my TSH rose significantly (over 4) with no change in dosage and now I have a previously undetected thyroid tumor that needs to be biopsied. So, I think that the prednisone screwed with my thyroid. And my doctor won't put me back on it while my thyroid is out of whack, nor would I want to, so my hair is fading fast. Just thought I'd share. I got my first wig last week. I have pretty much given up fighting it.
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I'm with you, kristy. My 15 year battle is over. I have given in to it and went to see a wig specialist on Tuesday. I have the same pattern. I am losing it in the back and now in the front too. I have longer hair, so it's fairly easy to cover up, but not for long. I'm thinking of getting a Follea wig. They are real European hair. Another client brought hers in the same day, so I could feel it. These are very nice wigs. A bit pricey, but hey.......we're worth it. The prednisone is not worth the health issues.
To Anonymous: Are you still on the prednisone, and is it working for you?
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Kristy- those pregnancy hormones are the best and the worst in my experience! Everyone should check out pubmed.com to see what works in regards to prednisone. There are some pulse therapies that seem to work, but long day every day prednisone is not sustainable.
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works for me but hair falls out as soon as i stop it. makes my scalp hair grow and my white facial turn back to brown and fill in. makes me gain weight in bad places (gut and face), and have insomnia. generally i stay away from it. my dermatologist is the one who puts me on it, but my g.p. is always against it and it's long term effects.
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Research sulfasalazine as an alternative. It is a safer drug if monitored and has about the same results as some of the harsher treatments. It works for some people but not all. My daughter has been AU for almost a year and she has been on a therapeutiic level of the drug for 4 months. She has several spots of regrowth. We are hoping this continues.
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I tried the Sulphasalazine after my doc took me off the Prednisone. I was on it for about 4 months and saw no regrowth at all. I took 2 500mg pills twice a day. There are side effect to it too. You need to have your liver and kidneys checked about every 3-4 months. I have heard it does work for some, but not most. What dosage is your daughter on?
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